Mr. Drew
August 14th, 2008
We received Drew’s album and it is really cute. There is a lot chinese writing within so we will have to get it translated before we leave.
Drew has slept 4 days in a row for 11 hours straight each time. He also started up his 2 hour naps like he was doing at home. We don’t know what to do with ourselves with all of this sleeping! Drew is doing much better with all the rest he is receiving. His tone is a lot more relaxed, more so than it was at home. I can put him in certain positions which I could never do before or at least not very often. One of my favorite ones is sitting him on the side of the bed with his legs dangling down the side. Sometimes I can even sit him on a flat surface with his legs straight out in front of him. We find ourselves using the Native American style of sitting a lot less. All of these positions are with assistance.
Drew also has a collection of sounds that he works on all the time. He has been saying “ma ma” about a dozen times a day for the past 6 days. It still takes a lot of work for him to say the “mmmm” sound but he can do it! He can say the following on command: da da, ba ba, ga ga, ssssss, eeeee, yeah, essss, jaaa, ed, ouuuu, and a few others. I have been trying to get him to say our names when he wants something instead of screaming bloody murder. He’s having nothing of it so far. Mike feels that he could say all of these things back home but after the first stem cell treatment he has been saying them more frequently.
Dr. Tony feels that Drew will show the greatest improvement during the 3-6 month time period. After 6 months, he feels Drew’s level of functioning will level off if that makes sense.
Entry Filed under: cp,Uncategorized
3 Comments Add your own
1. Aunt Linda and Uncle Jim | August 14th, 2008 at 7:22 pm
Drew,
We are so proud of you; saying ma ma and da da, sitting on the edge of the bed, and sitting in positions you rarely sat/stayed before! Wow! And best of all, sleeping through the night. You know Mom and Dad really love that. So you’ve moved into your 3rd room… Hang in there. Can’t wait until you get home and really relax. I bet you Drew will have some really positive surprises for you then! We love you all.
Uncle Jim & Aunt Linda
2. Laurie & Dave | August 14th, 2008 at 7:38 pm
Good work Drew! Yes, sleep is good. It helps in many ways. We are so proud of all the hard work you are doing. You are very brave and determined. We have lots to talk about when you get back. I know once you get home and are in your own environment you will surprise us with more great things. Keep up the good work and keep on sleeping.
Love,
Nonni & Gramps
3. Rosemary and Pete | August 14th, 2008 at 10:36 pm
Way to go Drew! We love to hear about all your improvements, both in tone and in speech and in sleeping! Your stem cells can really go to work for you when you are sleeping well. We will be thinking of you all day on Friday, during your 5th treatment, and then we hope you get to have some fun over the weekend. Stay safe and be strong Drew. Love to all, gma & papa
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