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16 weeks on
Unfortunately, I have had no real benefit from the stem cells to date, and have now given up on them doing anything for me. However, others I know, have benefited. Thus, if I had to choose again, I would still go to China.
Having tried nearly all the ‘Alternate Health’ MS ‘Cures’, and not had real benefit from any of them except for LDN(Low Dose Naltrexone), I am moving on to the next one, which is Antibiotics(MS could just be a bacteria/virus, that needs killing off).
Although I think that my Blog says it all, I am happy to communicate with anyone re stem cells or MS. My email address is richday@talktalk.net
September 6th, 2008
11 weeks on – Stem cells have done nothing for me so far. Why? Do not know.
Had communications with a fellow MSer treated like me at Hangzhou and Haikou. He continues to get improvements to his condition and is very pleased with his progress.
So, you pay your money and you take your chance
August 2nd, 2008
6 weeks on – Still no noticeable MS improvements yet.
Kirshner(Bieke) has suggested I review a book by Dr AG Payne on Umbilical Cord Stem cells available on Amazon.com. It recommends a best diet for helping stem cells to do their work. Anyone going for treatment should obtain this book before going to China. I have been eating foods that are best to be avoided both in China and since I returned home.
June 30th, 2008
4 weeks on – No real noticeable improvements yet, except my face looks more youthful
June 16th, 2008
3 weeks on
No real noticeable improvement yet. Still a bit up and down. Did manage to stand for 30 seconds with feet together and eyes closed. Will test my self each week to see if my balance improves.
Had an email from Ron(who also has MS) and Elaine who we met at Hangzhou. They were 2 weeks in front of me. Ron has made progress. He says ‘My balance is getting better every day although I have some down days too. I can walk 5 times farther than in the last 2 years’. So good for Ron. I want some of the same!!!
June 8th, 2008
2 weeks on
No major breakthrough as yet but I feel that I am getting a bit better/stronger and exercises going well. I think that I am back to where I was before breaking my arm last November, and definitely better than I was in China.
I must say that my broken arm is much better thanks to the hands on exercising it received in Hangzhou.
Keeping in touch with Glauco from Italy who received stem cells last summer in Shenyang. His progress has been very significant and he has been improving steadily over this period. Thus the stem cells work over quite a long period of time.
May 31st, 2008
1 week on
Flight home to UK went OK except for a wheelchair missing in Beijing. Had to use the shuttle bus to get from the internal flight terminal to the international terminal 3. No wheelchair was waiting when I got off the bus, so I ended up sitting on top of our luggage on a trolley and was wheeled down to the CheckIn counter when things got sorted out. So, beware, if you are changing terminals and/or the flight carriers are different.
Since getting home, I was not too good for he first few days. I have been sleeping a lot and not been up to exercising. However, today, I feel quite a bit better and think that I have got back to the MS level I had before going to China. I have been able to walk a few steps across open space without hanging on to anything. I have trolleyed around the supermarket for a while. And I have had a good exercise session. So, I am currently positive and waiting for the stem cells to do their job…..and get me a bit better.
May 24th, 2008
Feeling good. Last LP over…no more punishment now. No more lying on my back for 6 hours after the injection. Off home in 1.5 days…Great. This is my last blog from China. Will continue my blog each week at home to say how I get on. Also, I am going to determine the effectiveness of a vibrating plate machine for building my MS depleted muscles.
The hospital is the Hainan Provincial Nong Ken hospital, and the staff have been very good.
Richard’s bit – Could not be more proud of my wife. She has gone to the 7 needles with a smile on her face every time. She has had a lot of ups and downs with her walking and her back and head pains. But still has come up with a smile. As she says “Today, I have not complained, sworn, used my credit card, talked on the phone, or eaten any chocolate, and I’ve been out of my bed over 10 minutes”
May 13th, 2008
Just 3 sleeps to going home. The third day after stem injection and feeling better. The first 2 days after, I am always not good. Got good personal attention at PT today and was feeling well enough to do the exercises. The good news is that my bone marrow stem cell cultivation has gone OK and that the LP is happening tomorrow am rather than the day before we return
Richard bought a phone card today at 100 yuan(7GBP). He made the nurses laugh by telling them what good business people they were as a 100 Yuan card in Hangzhou only cost us 40 Yuan, and they were making a real good profit.
We get our food at the little restaurant attached to the hospital and chicken as we know it is out, and the meat bits in the dishes are bones and gristle. Thus just eating various vegetables with rice. All tastes good. Richard got confused with his change as the yuan(7 UK pence) has lesser amounts in notes as well as coins. Thus he got confused and thought that a 5 note was 5 yuan rather than a half yuan. Believing in his mathematical capabilities, he ended up losing 3.5 yuan in his change. He was thinking of sorting out the young lad who he dealt with at this evenings meal selection, but after ordering 2 fried eggs, rice and 4 vegetable portions, the charge was only 7 yuan, he let it pass. Thus 10 chinese meals for the 2 of use can be bought for one 15 minute international phone card. The restaurant is in the wrong business.
May 12th, 2008
We would like to thank you all for your messages of support. They have been most welcome. We did get your previous message, Pauline, but it must have got lost in the ongoing computer problems that we have had( sometimes it worked but mostly it hasn’t). Richard has to confirm each comment for them to be included.
MS STATUS – Still not as good as back home. I go up and down. Sometimes I can walk a bit without need of support and other times I can hardly stand. Again, have to finish the LPs(just 1 to go) and wait and see.
We are reading our books slowly so as not to run out of them. Hoping for UK newspapers in Beijing for the flight home. We have each read at least 7 books each and in Hangzhou we were able to leave those we had read and take some replacements. However, there are no English language books in the Hainan hospital. To compensate we have been doing 2 Observer crosswords each day(The Telegraph crossword is out as there is no printer readily available here). We have tried the DVDs on offer, but, to us, they are difficult to follow due to poor copy quality, the sound and lips not always matching, the US accented speech and poor sound quality(and we are probably half deaf anyway).
Weather is still cloudy and cool. The fruit here is so much better, sweeter and juicier, than at home.
When we use a 100 Yuan note(7GBP), the chinese taker studies it at great length. We presume this is because the chinese are so good at copying everything, they expect the money to be copied.
May 11th, 2008
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