Posts filed under 'als'

wednesday 12th march

G’day folks,  no great news to report today . I had my sixth lumbar punture on monday, i have not slept well for two nights , so physio has been hard and i have not made much progress but that happens when you are tired, they said. For your information astrid , andy the physio and accupunture man has been using cups on my lower back it reminds me of your treatment at home .I will ask him questions about the accupunture treatment for you . we are planning to go out sunday for sightseeing . Next monday will be my last  lumbar treatment so it wont be long till we are flying home ,thanks for messages astrid, paolo, uncle brian, madeline,geoff and sue .We will be hoping for a roosters win friday night .I really appreciate the messages you all send it gives me inspiration.Thats all for today love you all the Irwinsxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxxoxoxoxoxoxo

7 comments March 12th, 2008

sunday 9th march

Hi everyone ,having a day off today , although i did some exercises myself this morning with annettes assistance we took some pictures off the ward today , other than that it has been a quiet day i have my program for next week , i have my next lumbar punture on monday and we have rest days on friday and sunday next weekend will be our last one here we are looking forward to coming home. As i have said i am making some progress but it is going to be a long road they say the best results will come in three to six months time, but i have to work hard to achieve my goals . One thing we have noticed over here they let off fireworks all hours of the day and the night we have been told it is to celebrate every occasion births, deaths, marriages ,etc. thanks for the messages dean ,mum ,brett good luck with touch on monday and wednesday.missing you all love the Irwinsxoxoxoxxo

4 comments March 9th, 2008

friday 7th march

Hi everyone , its been a very busy week sorry we have not written before this , annette has been sick again and courtney is sick today .Mondays lumbar punture went well and i had another dose today through the drip , so no laying on your back for six hours  i am having progress with my strength ,walking and my speech is stronger and clearer .The physio is quite hard but it seems to be working from a laying position i can now lift my body up to a sitting position ,i am getting close to being able to get out of bed myself unaided .Annette went to the night markets on wednesday to look for souveniers they was not much there but they are very busy and you have to negociate all your prices but you usually end up getting your price , we hope to get out next sunday to try and find some more things.They have drivers who will take you to sight seeing spots for a small fee.sorry we have not been able to post pictures we can not work out the computer we are taking plenty of pictures to bring home, thanks for your messages tony, heath ,tim,aud,madeline.I will disscuss tattoos when i get home madeline . we will write again sunday or monday as we have the weekend off.all our love the Irwinsoxoxoxoxoxoxox

2 comments March 7th, 2008

sunday 2nd march

Hi everyone,some good news from my mum ,apparently there has been a breakthrough in research into the cause of motor neuron disease a gene has been discovered that mutates and causes the illness, so they can start treating the gene with different drugs to find  a cure. This gives all sufferers renewed hope that there will be a cure soon, the discovery was made in australia.All is going well over here we are getting over our sickness.I recieved my program for the next week , i have my next lumbar punture on monday at 2.30pm around the time you play mixed in lismore dean, so think of savage  when you are setting mat up for a try.I do physio, wave therapy and accupunture each morning from 8.30am.We have rest days next weekend hopefully we might get out next sunday as we have been to sick this week. Today we just had a lazy day watching chinese  television thats all for now  we will write again wednesday, missing you all love the Irwins . xoxoxoxoxoxoxoxoxoxoxoxox

10 comments March 2nd, 2008

friday 29th february

Hi everyone sorry we have not updated, but we have had some sickness in the camp.Annette has contracted puemonia on monday and was on a drip for 2and a half hours 2 days in a row, courtney has been sick also as well as myself.They have given us antibiotics as well as some chinese medicines,one of the medicines has snake bile in it, it tastes rank but i  think it works.The progress has been slow this week due to me being sick i still try hard but i have been feeling weak , i had my second lumbar punture on wednesday , once again i had to lay still with my head not moving for six hours it was the longest six hours ever. The only pain is when they first put the needle in your back for the local anastetic.Thursday was the usual accupunture, physio and wave therapy .Friday is a rest day this week i have physio and the rest tommorow and a rest day sunday . Thanks for all the new comments i got this week from family and friends, its good to hear from you all .good luck to the big kahunas next week and make squirter do more cause i am not there. we will write again sunday or monday i leave you with this final word from our famous aussie boxer jeff fenech   I LOVE YAS ALL AND I WONT BE LETTING YOUS DOWN.love from us all goodbye.

1 comment February 29th, 2008

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