Balls! This is my second attempt at posting this as the first draft dissappeared somewhere.
Today was Grace’s 5th injection and she’s fine although it wasn’t the usual haven of calm it usually is here.
The whole process starts 2 hours before when she can’t eat or drink anything however today this was 3 hours because the plane was late bringing the stemcells. The lumbar puncture takes about 20 minutes and that was all normal and she comes back to the room for 500ml of IV and 6 hours of lying flat. All the same as usual, she falls asleep after a few hours and i settle in for some peace and quiet until about 9.30pm, but today has other plans and the noise on the ward wakes her after 40 minutes. She wakes sore, tired and very hungry. Once she’s finally stopped crying and settled a little i tackle the task of feeding her while she’s lay down, this is solved with cake, cheese triangles and some evil looking orange drink that has too many E numbers. she’s then dosed up with melatonin and i let out a big sigh until the endless round of temperature checks are landing down. I can’t complain about the nurse they’re great it’s just sometimes i wish they weren’t so good and forgot us just for one evening. I think i’ve just been here too long surrounded by people and noise, and it’s so noisy from 6am-9pm. They even have choir practice on the ward a couple of times a week, where doctors and nurses meet in the doctors lounge in the evening, there’s no going to the pub like they do in Holby City!
Anyway she’s fine and that’s all that matters. We’ve got tomorrow and Sunday off and i’m hoping to get into Hangzhou city and do some sightseeing, ok, i really mean shopping! Hangzhou is set round a lake and you can go on boat trips and walk along promenades and stuff, it’s supposed to be really beautiful and it would be nice to see more of the country than just Hong Kong airport and the local supermarket. And if i’m lucky i might find a bookies so i can put my bet on the National. All this hangs on the weather as today it was so foggy i couldn’t see accross the road.
I’ve found films i can download off LimeWire and tonight is ‘The Number 23′ with a bowl of pork casserole, well i think it’s pork!
Hi Leanne and Grace
Glad to hear it’s going so well. You must be getting weary by now I’m sure, but seeing Grace sitting up must be spurring you on! Are you over half way now? I’m sure you must be? It’s fantastic that you can see improvements already – no matter how small they may be.
Sounds like Grace is still being a little star – can’t be easy being poked and prodded, especially when you’re so young and haven’t got a clue why! But, she’s being great isn’t she – bless her.
Enjoy your sightseeing … ahem ….. shopping if you manage to go. I’m sure it’ll freshen your head and stop you going stir-crazy in the hospital. I think you could be forgiven for the odd splurge if you see something nice!
Hope to see you both when you get back.
Lots of love and luck
Tracy
Hey hun how are you doing? Ive got my head around you being 7 hours ahead so you will be asleep now right?? I hope the weather picks up for you must be going a bit stir crazy by now doing the same thing day in day out? How do you feel its going? Grace seems to be coping really well and on those pictures she looks soooo gorgeous. Im still missing you like crazy but I bet your enjoying the break from me!!!!!
Keep in touch and keep up the fantastic work on this blog it is really is a brilliant way of keeping updated and to be able to send you love and support, so it is very important.
Luv ya!
Sian and the boys
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Hi
I hope you enjoy the movie. I thought it was good. i generally don’t like Jim Carey in his comedy roles but I think he does really well in the more strange roles he takes.
Good luck with the weather. I hoe you manage to get out and get some peace and sightseeing and shopping done.
Not long left now. You have done really well so far you really deserve a break and some time with your family.
All the best xxx