Hallie's ONH & SOD Blog

The first few days

October 4th, 2009

We haven’t wrote much b/c Hallie has not started treatment.  Although, tomorrow at 4:30pm local time will be her first one.  So, until then she has been receiving acupressure massages to increase circulation and promote total body wellness. These treatments will continue daily after the SCT.

We have been enjoying this family’s new adventure and time together.  Yesterday someone told us that we are a crazy creative family. This comment was inspired b/c Adam was pushing the kids in a shopping cart in the common living area… I should note that he wasn’t just pushing them, but “speed racing” them.

We have loved getting to know the other families from around the world that are here.  We are staying in a public hospital that has two floors designated as the VIP stem-cell ward.  The main issues being treated are SOD/ONH and Cerebral Palsy.  There is a lady named Shannon from the US who is 40 and being treated for ONH.  She is accompanied by her mom and daughter.  Her mom, or Gma Judy as we’ve coined her and I (Katie) have a lot in common!!!  Gma Judy was the 4th of 8 kids, got married young and had her first daughter (Shannon) who was born blind.  Shannon also has a brother close behind her- same as Carter.  So, needless to say it’s been awesome getting to pick their brains for advise on how to raise Hallie.  Shannon has been here 2 weeks and has already seen improvements!  It’s so encouraging.

Check out our website for new pics and videos!!!  www.hopeforhallie.com

Entry Filed under: onh,Uncategorized