First Stem Cell Treatment
October 7th, 2009
Hallie had her first stem cell treatment via IV on Monday. We are so sorry we haven’t written about it yet!!!! The nurses put in her IV in the morning and the stem cells were administered in the afternoon. The inserting the IV, just like when Hallie gets blood drawn, is a huge process. It is comforting to have Adam here because he can hold Hallie down so I don’t have to. Hallie was such a trooper all day. Even though Hallie only had one hand the whole day, she was still here sweet self. Monday night, she slept wonderfully which is a blessing. Some of the other parents shared the stem cells make their kids awake and alert throughout the night.
Throughout the last six months before these treatments, Adam and I have been drilling Hallie on what she sees. Every time we go for a walk, we encourage Hallie to reach out when she sees something with her eyes (i.e. the video of Hallie seeing cars). I feel like we have tested and retested her so that we have a good understanding of what she sees. Since her first treatment, there have been two occasions where Hallie has discovered things, without my prompt. Yesterday during her bath, Hallie put her eyes right up to a chrome circle dial (it was shiny like a mirror and in her peripheral line of sight. Then, today at the pool, as we walked by a white, marble wall that was reflecting the sunlight, Hallie immediately put her hand out to touch it. I don’t want to jump to any conclusions too soon, but I just wanted to share what we have observed.
Entertaining Hallie while we wait for the IV of stem cells.
Yesterday was a free day so we went to the mall in the morning and went on a carousal ride and did some shopping. Then last night we went to the pool at the Holiday Inn with the kids and another family. Everyone loved it.
We are continually blessed by the other families that are here and by the letters from home.
Gaining more hope for Hallie everyday,
Katie
Entry Filed under: onh,Uncategorized
4 Comments Add your own
1. lily sweeney | October 8th, 2009 at 9:15 am
hey katie i saw that pic of you singing with the statues lol
say hi to hallie for me love you
lily
2. lily sweeney | October 8th, 2009 at 9:19 am
hey katie i saw the pic of you singing with that statue LOL say hi to halie for me
3. hallie | October 8th, 2009 at 10:14 am
Lily!
I’m glad you get my silly humor. Hallie has another Lily here that she adores- only b/c this Lily is sweet as a cupcake- just like you! Thank you for reading our blog and checking out our pictures. How is school? Are you going to play VB? WE miss you beautiful!
love,
Katie
4. angela | October 10th, 2009 at 1:51 am
hi kemps! so exciting to hear about the first treatment! glad it went well… can’t wait to hear more!
katie…check your email – don’t know if you have yet – i sent you an email a couple days ago… you NEED to read it!
love you ALL!
xoxo, ang
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