No sleep = crabby pants Kemps

October 11th, 2009

We have been hit with a few trials the last few nights.  I’m going to share so that all the Hallie fans can be praying for our family.  Three nights ago Adam was awake most of the night with a migraine.  The next night was after Hallie’s SCT so her and Carter were both stirring the whole night. (if one sounds the alarm, then they are both awake).  Then yesterday I, (Katie) got sick with a stomach bug and went to bed early with Carter who is teething & crabby.  Oh the list goes on!  I don’t want to be negative b/c it is a blessing to be here.  I am asking for prayers for endurance as Adam and I have hit the breaking point.  I am so thankful for my husband too as he has been such a servant here and always quick to be on kid duty.  Today is Sunday and we have a free day which will be a great recovery day.

Hallie received her second stem cell treatment on Friday.  She is a fighter and squirmer.  Her IV came out a number of times and the poor little girl had to be poked again and again.  The nurses finally got a good vein in her foot and life was better.  I started out holding Hallie down, and found out I’m just not strong enough anymore… so holding her down will always be Adam’s job.  It’s still too early to tell if there is any significant changes but we’ve been encouraged by a number of stories here.  For example, Hallie’s friend Lily is one treatment ahead of Hallie. She came with only light perception and could see bright colors.  Yesterday she could read large print!!!!!!!  It’s incredible!  I’ve talked about another lady, Shanan, who is 40 with ONH.  Since being here she has doubled the distance she can see the eye chart.  We are so encouraged.  These stories are what keeps us going through the sleepless nights!!!

Sending our love to all.

Katie

Entry Filed under: onh,Uncategorized

6 Comments Add your own

  • 1. Carol Petersen  |  October 11th, 2009 at 8:38 am

    Dear Hallie, Adam, Katie and Carter,

    You are all in our prayers! God will Bless Little Hallie and all those needle pokes will bring her a better brighter life in the future. Adam and Katie your gratification will come when you return home to the states and witness Hallie’s improvements! Baby Carter won’t remember any of this! -HANG IN THERE- and STAY AS STRONG AS I KNOW YOU BOTH ARE!

    God Bless!
    Carol

    PS. We were at the Awareness in Missouri on October3rd. Before Melissa spoke we showed a clip of an interview of Melissa and Cameron a few days after they returned home from China when Cameron had SCT for ONH/SOD. Cameron and Melissa walked up to the microphone as Melissa started talking Cameron got bored and walked over to the projector to play with it. As I watched my grandson I thanked God that he could now SEE that projector and that he now has the ability to waljk over to it and want to play with it.

  • 2. Mike Hoff  |  October 11th, 2009 at 11:49 am

    Here is hoping and praying that you guys all get some much needed rest. We are thinking about you all back in Denver. You missed snow here today!! I hope that the next treatment goes easier. Take care and stay strong!

    Mike, Diane, Caden

  • 3. Mom Sweeney  |  October 11th, 2009 at 5:55 pm

    Hey guys,
    Just an update on the home front. Meg and Bobby are here for the weekend helping move Ali and Jordan in. Their house is becoming a home and looking great. Tricia is in the hospital with an infection and we were blessed to have Dash and Connor here also. Dash was quick to find Hallie on the fridge and points her out every time we pass by. Connor introduced himself to Jaydie as: Jaydie, I am Uncle Connor and this is Uncle Dash, remember us? Will will be here next week-end. He has a pass and is coming in on the train. I will pray for strength and endurance for all the Kemps. What a blessing to have Lily there and we will pray that Hallie will soon forget the pain that she is enduring at this time. We know that God has his hand on all of you. Please accept the hugs and kisses we all are sending.
    Love MOM Sweeney

  • 4. Devon  |  October 12th, 2009 at 11:48 am

    Sweet Dreams tonight best buddy!! Praying you all sleep soundly tonight. Hang in there!! God is at work! Love you =)

  • 5. Carlie, Tami, Michael, Austin and Gabby  |  October 13th, 2009 at 4:19 am

    Oh Katie, Adam, Hallie and Carter – We are thinking and praying for you all every day! You are so brave – ALL of you! You inspire us every minute you are there. Hallie – we can’t wait to get together when you come back! Everyone at Anchor Center is on Fall break this week – so Carlie and I are having fun – even with the COLD weather here! We are sending all our angels over to you until your journey is done! Take care!

    Lots of Love, Hugs and Kisses

    The Perez-Mesa Family!
    Carlie, Austin, Gabby, Tami and Michael

  • 6. Melani  |  October 13th, 2009 at 8:26 am

    We keep following your blogs, and praying with you and so many others for the peace and SLEEP you need!
    Love ya,
    the Pineda bunch

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