6 mo post China!!
We are continuing to be encouraged by Hallie’s improvements everyday.
Her vision has definitely improved and it seems like she is getting better at functionally using her vision. As some of you know, she has a “sweet spot.” This is her peripheral vision of her left eye. To look at something directly in front of her, she turns her head completely to the right. (see pics below)
Hallie loves to talk about colors and label different objects on what color she thinks they are. Her music therapist, Miss Amanda, quizzed Hallie on her colors by picking one out of two colored transparencies with light behind it. Hallie got 13 out of 15 right!! Recently at Hallie’s ophthalmologist appointment, her doctor compared her optic nerve photos before and after China. He said that her nerve in her left eye is larger than before and a slightly healthier color.
Another blessing that has resulted from the stem cell treatments, has been her growth hormone levels. Just to reiterate, part of Hallie’s condition is some pituatary gland hormone deficiencies. Before the stem cells, Hallie would have a growth hormone injection six days a week. Since the SCT we have decreased her injections while she is still improving on the growth chart. She is so tall now!!! Her bloodwork also shows that she has “normal” levels, even with the decreased injections .
We also want to take this opportunity to thank all of the people that continue to support us. There are so many people out there that are steadfast in asking for updates and praying for us. This means more to us than you will ever know!
God Bless,
Adam Kemp
Easter 2010
Notice how Hallie's head is tilted to put her tone block in her peripheral vision on her left side.
Playing "Alaphababy" on the computer. Again her head is turned. The screen is white and as she presses buttons, colors and lights pop up with a voice labeling the images. This is such a great game for little ones!
Hallie and Zach playing Alaphababy. Again, an example of Hallie intentionally turning her head to find her sweet spot. This is a new thing since stem cells.
Add comment May 21st, 2010
