Archive for January 16th, 2008

I Forgot to Mention…

As usual I forgot to mention something! Hunter will still have to have therapy when he comes home and we will begin potty training and things like that.  Also, he will start school for disabled preschool children.  Lets remember this on your prayer lists.  I know it will be hard for schools to accomodate children with special needs such as Hunter’s. He will be 3 in March and starting school in August.  I have to put in so early to give him enough head start to be up to the level of other children his age. And I will be ordering him a white can for mobility reasons. I need to get him to be as independent as possible and not let him be held back.  I have learned that we we get people praying in volumes miracles happen.  I hope that soon Hunter won’t have to have all of this, but we need to prepare.  So lets just pray that God blesses us with a sighted child and for the tools to teach him, and the strength to succeed.

3 comments January 16th, 2008

Hunter’s First Spinal Injection

Hunter has just gotten back from the operating room where he had his first spinal.  He put up a pretty good fight over the IV though.  They gave him something to make him sleep finally then inserted the IV in his foot.  The doctor told me not to worry and sent us from the third floor where the operating room is back to our room on the 20th floor.  I think it was really harder on me than him.  As of now he is sleeping sweetly, for a change!  He hasn’t been running a fever or throwing up anymore so that is great news! The doctors came in yesterday and we were told that Hunter can see LIGHT!!! He knows when the light is on or off which he had light perception prior to the stem cell treatments.  But the way I understood it is that before when the light was on it was dark when the light was off it was darker, but now we suspect that Hunter can see the actual light!!!  I would download some pictures but guess who left the cord for her camera in Kentucky???  Maybe with a little assistance from our newfound friends we came get some pictures of our little guy on here!  Hunter’s next treatment is Monday which will be another spinal, then Friday, his fourth injection by an IV, then his fifth and final treatment for now, anyway will be on next Wednesday by a third lumbar puncture.   Also we have been asked to do a televised interview. I have agreed but we don’t have any details yet, so I’ll let you know when I find out.  And since there are so many children here we may plan an outing, to Hooters possibly, but again I don’t have any details. But lets certainly hope that works out to give us all a break from the hospital atmosphere.    So as always remember us in prayer and all the others who are receiving stem cells and traveling to and from China.  Thanks for your comments and e-mails, I appreciate them very much. I’ll keep you posted. 

1 comment January 16th, 2008


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