Hunter’s Optic Nerve Hypoplasia Blog

Hunter’s Famous!

January 22nd, 2008

I wasn’t able to post for a few days, because the room was closed for interviews.  We have received news that this program is going to be put to the test in a double-blind study here in China.  This will truly be the information that the U.S. needs to help him and kids like him right there at home.  Hopefully this will catch the attention of those in the U.S. We will be filmed and I will be participating in a televised in-depth interview that will have the potential to go to NBC news, this isn’t guranteed to go there, but has definite possibilities.  We are going to try to make a DVD for the ONH kids that will have interviews with the families of the kids with ONH.  I will let you know when this is set to be processed and tell you how you can get a copy. Tomorrow we are going to go to West Lake and then do a little shopping.  We are getting restless as you can imagine, it is hard to be in a hospital especially for this amount of time.  We have only 9 days to go, believe me we ARE counting down!!!   Happy 7 months old, little Brookeytoodles!!  Love Mommy and Bubby!!!  Thanks for your comments and remember that Rylee and Lydia are here, Lydia seen Christmas lights on the tree at the nurses’ desk and Rylee put her nose to the TV!!! WE are cooking with stem cells!! Haha!  Keep everyone here in your prayers and remember our next treatment is Friday via IV so pray for me that Hunter may not leave too many teeth prints!!! I will let you know of any more updates and improvements! 

Entry Filed under: onh,Uncategorized