Hunter’s Optic Nerve Hypoplasia Blog

Four Down, One To Go!

January 25th, 2008

Hunter had his 4th stem cell treatment and it was adminstered by IV injection.  Even after having a mild sedative he fought tooth and nail!  But we finally got him through it and he is doing great, having no fever as of yet.  I would have posted more however the room where the computers are have been tied up due to interviews, camera crews, and so on. I was going to post yesterday about our trip to West Lake but the laundry lady didn’t come back with our clothes.   I only had a pair of pajamas, that surely would not be acceptable and  I know this because I was scolded in the elevator, because my neck was showing. Even when the laundry came back, I sent 3 outfits and got back 1 pair of pants and 2 shirts. Lets hope I get all my underoos back before Thursday, ifnot I’m leaving them and I’ll be Kentucky bound! 

We went to West Lake and found it less than the best. The ‘department’ stores are closet size and theres pretty much the same stuff in each store.  I did buy Brooke 3 outfits that were simply irresistible and a crawling baby, maybe she’ll take the hint!  But she better not until her mama comes home!!  I also bought a gift for my sister-in-law.  Hunter got a pre-cane toy that is yellow and as you push it in front it has a little bear that beats a drum (quietly) when you push it!  Before we went shopping we went to Starbucks for coffee and then to McDonald’s.  Shayla and Rylee came with us to West Lake by the way. At McDonald’s each of the kids got a balloon.  Rylee was waving hers and Hunter reached out for it!!! I was so excited.  Then in the car on the way to the mall she was waving it and he did grab it!  Did he see it? I think so and I surely hope so we just can’t say for certain.  We can only tell by his behaviors and actions.  Any way, when we came out of the mall a very persistent man grabbed my arm showing me pictures of shoes.  I said no, but he said yes he followed us almost to the car!  The place was very crowded almost like Time Square.  I don’t think we’ll be going back there.

The doctor came in this morning and when they opened the door they were talking among themselves.  Hunter was playing over by the door.  As soon as they come in he sprinted about midways the room, fell, got up and ran again!  It was a priceless moment, so cute.  Then of course, he wouldn’t let them give him any kind of exam. They joke and say, “Hunter no cooperate.”  Which is an understatement!

We will be leaving on Thursday, January 31.  We will arrive at Nashville, on Thursday at 9:17PM.  So lets pray for a safe trip.  Hunter’s third spinal and final treatment will be Monday instead of Wednesday so they can see what progress comes so lets remember that as well and all of the other kids and adults receiving stem cells.  I don’t know when he’ll be filmed or what station it’ll be aired on or when it’ll be aired.  They wanted to film him getting an IV, but it was probably safer that they didn’t and Kirshner told them from her part experience that it wasn’t a good idea.  But anyway hopefully sometime before we leave they will get him.  He is the youngest child here at the moment at least receiving stem cells.  Our new friend, Danica is leaving in the morning so lets remember her for a safe trip and well wishes. 

We have a couple of birthdays coming up:  Trish’s birthday is the 26th and I am so very sure my loving husband will surely forget to call her so if you see her tell her I said happy birthday, Nicholas will be 3 on the 27th, and Lee is too old to reveal his true age, but has a birthday on the 28th so lets remember them.  Also, Hunter’s uncle Wesley would have been 21 on the 30th.  Thanks for all of your comments and prays and more posts will come when I can get to the computers and have more updates!!  Miss Brooke, Mommy and Hunter will be home soon, remember NO CRAWLING, SITTING UP, OR TEETH until Mommy gets home, I love you!!! 

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