Posts filed under 'onh'
Hunter has just gotten back from the operating room where he had his first spinal. He put up a pretty good fight over the IV though. They gave him something to make him sleep finally then inserted the IV in his foot. The doctor told me not to worry and sent us from the third floor where the operating room is back to our room on the 20th floor. I think it was really harder on me than him. As of now he is sleeping sweetly, for a change! He hasn’t been running a fever or throwing up anymore so that is great news! The doctors came in yesterday and we were told that Hunter can see LIGHT!!! He knows when the light is on or off which he had light perception prior to the stem cell treatments. But the way I understood it is that before when the light was on it was dark when the light was off it was darker, but now we suspect that Hunter can see the actual light!!! I would download some pictures but guess who left the cord for her camera in Kentucky??? Maybe with a little assistance from our newfound friends we came get some pictures of our little guy on here! Hunter’s next treatment is Monday which will be another spinal, then Friday, his fourth injection by an IV, then his fifth and final treatment for now, anyway will be on next Wednesday by a third lumbar puncture. Also we have been asked to do a televised interview. I have agreed but we don’t have any details yet, so I’ll let you know when I find out. And since there are so many children here we may plan an outing, to Hooters possibly, but again I don’t have any details. But lets certainly hope that works out to give us all a break from the hospital atmosphere. So as always remember us in prayer and all the others who are receiving stem cells and traveling to and from China. Thanks for your comments and e-mails, I appreciate them very much. I’ll keep you posted.
January 16th, 2008
Hello!!! We have moved to a new room and new floor. We now reside on the 20th floor in room 2. Its very nice it have pretty mohogany wood and a nice view thru a big window. We now live closer to the computers and there is an even bigger place for Hunter to run! His new obsession is playing with the trash can! He loves to to swing it around and put his feet in them! No matter which room we are in he always manages to find the trash can. Our representative Kirshner is expected to be here soon so we need to remember her as she is traveling. She has truly been a big help. She handles all the arrangements and makes this possible for families each and every day. She has given hope to children and families with disabilities where there was none. Also, Rylee and Shayla Lovett arrived last night. We met them and became fast friends. Hunter’s next treatment is Wednesday and it will be a spinal injection so lets remember that in prayer. I know its hard to help or control these treatments, but God can do all things so lets put this in his hands, without him we wouldn’t have made it this far. Also lets remember all the families who wish to receive stem cell treatments for their children. Its hard trying to raise money and make arrangements, it is quite stressful as well so lets pray for them, too!
January 14th, 2008
I forgot to mention that there is another little girl who has optic nerve hypoplasia like Hunter here. Her name is Lydia and she is 6 years old. She needs your prayers, too! We have met Carl and Paul and they are really nice. We also met Marjorie and Danica on our first day. Remember all these people in prayer. They make it a little easier to adjust to a new country and culture. Thanks for all your comments and we hope to get HOME soon.
January 13th, 2008
Hunter had his first round of stem cells by IV injection. They put the IV in his foot. Which was a fight, but they were very good with the needles. It took four nurses two trys to get the IV in, as you know Hunter is a stout little boy. Unfortunately we’ve been couped up in our room because Hunter was throwing up for two days. But since he hadn’t had a fever his scheduled injection was carried out. He is scheduled for a second round of stem cells on Wednesday January 16 by a lumbar puncture in the spine. He will be under anesthesia thankfully. But last night and today he hasn’t been throwing up and still no fever, so lets pray for his second procedure to be a success like the first one. Hunter is in his own time zone as sar as sleeping goes so pray for me and my mom that we might actually get to sleep at night, instead of naps when Hunter naps, because believe me they are fewa and far between! Rylee Lovett will be here at 6:45 PM and she is on the 18th floor with us! I have been corresponding with her mother for over a month now so we are really looking forward to meeting them! Lets pray that the have a safe trip and that Rylee has a good response to the stem cells. Keep us in prayer as well and all of the other people from all over the world who need these stem cells. I will let you know how Hunter’s treatment goes Wednesday.
January 13th, 2008
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