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Hunter has just gotten back from the operating room where he had his first spinal. He put up a pretty good fight over the IV though. They gave him something to make him sleep finally then inserted the IV in his foot. The doctor told me not to worry and sent us from the third floor where the operating room is back to our room on the 20th floor. I think it was really harder on me than him. As of now he is sleeping sweetly, for a change! He hasn’t been running a fever or throwing up anymore so that is great news! The doctors came in yesterday and we were told that Hunter can see LIGHT!!! He knows when the light is on or off which he had light perception prior to the stem cell treatments. But the way I understood it is that before when the light was on it was dark when the light was off it was darker, but now we suspect that Hunter can see the actual light!!! I would download some pictures but guess who left the cord for her camera in Kentucky??? Maybe with a little assistance from our newfound friends we came get some pictures of our little guy on here! Hunter’s next treatment is Monday which will be another spinal, then Friday, his fourth injection by an IV, then his fifth and final treatment for now, anyway will be on next Wednesday by a third lumbar puncture. Also we have been asked to do a televised interview. I have agreed but we don’t have any details yet, so I’ll let you know when I find out. And since there are so many children here we may plan an outing, to Hooters possibly, but again I don’t have any details. But lets certainly hope that works out to give us all a break from the hospital atmosphere. So as always remember us in prayer and all the others who are receiving stem cells and traveling to and from China. Thanks for your comments and e-mails, I appreciate them very much. I’ll keep you posted.
January 16th, 2008
Hello!!! We have moved to a new room and new floor. We now reside on the 20th floor in room 2. Its very nice it have pretty mohogany wood and a nice view thru a big window. We now live closer to the computers and there is an even bigger place for Hunter to run! His new obsession is playing with the trash can! He loves to to swing it around and put his feet in them! No matter which room we are in he always manages to find the trash can. Our representative Kirshner is expected to be here soon so we need to remember her as she is traveling. She has truly been a big help. She handles all the arrangements and makes this possible for families each and every day. She has given hope to children and families with disabilities where there was none. Also, Rylee and Shayla Lovett arrived last night. We met them and became fast friends. Hunter’s next treatment is Wednesday and it will be a spinal injection so lets remember that in prayer. I know its hard to help or control these treatments, but God can do all things so lets put this in his hands, without him we wouldn’t have made it this far. Also lets remember all the families who wish to receive stem cell treatments for their children. Its hard trying to raise money and make arrangements, it is quite stressful as well so lets pray for them, too!
January 14th, 2008
I forgot to mention that there is another little girl who has optic nerve hypoplasia like Hunter here. Her name is Lydia and she is 6 years old. She needs your prayers, too! We have met Carl and Paul and they are really nice. We also met Marjorie and Danica on our first day. Remember all these people in prayer. They make it a little easier to adjust to a new country and culture. Thanks for all your comments and we hope to get HOME soon.
January 13th, 2008
Hunter had his first round of stem cells by IV injection. They put the IV in his foot. Which was a fight, but they were very good with the needles. It took four nurses two trys to get the IV in, as you know Hunter is a stout little boy. Unfortunately we’ve been couped up in our room because Hunter was throwing up for two days. But since he hadn’t had a fever his scheduled injection was carried out. He is scheduled for a second round of stem cells on Wednesday January 16 by a lumbar puncture in the spine. He will be under anesthesia thankfully. But last night and today he hasn’t been throwing up and still no fever, so lets pray for his second procedure to be a success like the first one. Hunter is in his own time zone as sar as sleeping goes so pray for me and my mom that we might actually get to sleep at night, instead of naps when Hunter naps, because believe me they are fewa and far between! Rylee Lovett will be here at 6:45 PM and she is on the 18th floor with us! I have been corresponding with her mother for over a month now so we are really looking forward to meeting them! Lets pray that the have a safe trip and that Rylee has a good response to the stem cells. Keep us in prayer as well and all of the other people from all over the world who need these stem cells. I will let you know how Hunter’s treatment goes Wednesday.
January 13th, 2008
Good News! Hunter will get to leave on January 31! We just have to reschedule the plane and we will be set to leave 5 days early! I can’t wait to get back so Hunter can see his home and family, especially his little sister, Brooke!! Today Hunter had an ECG to be certain there are no problems with his heart before he has a his first injection. Remember his first injection is Friday by way of IV. Be praying that we will see great results. Carl who has been here just 2 weeks can see LIGHT!! The staff says Hunter looks like Cameron who was here in July-August. Check out his website at www.cameronsmiracleofsight.com! Oh and Hunter is drinking orange juice and water, which he didn’t before he wouldn’t drink anything but milk. He still drinks milk but he will drink it cold now. I don’t know what changed but be glad that he is trying new things! I will update you as we make progress, remember us in prayer and all the others who are here from all over the world to be blessed with the promise of stem cells! There are people here from Australia, Italy, USA, and several others!
January 9th, 2008
We arried at 8:45 PM on January 7th. After being on 3 different airplanes for approximately 17 hours altogether Hunter was very tired. He didn’t want to sit down on the plane so my Mom and I took turns wrestling with him. He even stood on his head once. Anyway, we are here and we have some adjusting to do with the time difference and commuincation matters. Hunter is scheduled for his first injection via IV on Friday. Since Hunter has very good movement therapy will not be done. He cannot have acupuncture because he will not sit still and I’m sure he will pull on the needles. This would not be safe. We may be able to go home earlier than planned because we are only having stem cells and no therapy. It’s not definite but hopefully we will. I miss my daughter, Brooke terribly and hope to have Hunter’s eyesight to take back as a miraculous souvenir so he can SEE her too! We will meet Shayla Lovett whose daughter, Rylee will be receiving stem cells for ONH as well in a couple of days. And as soon as we have time we are going to meet Carl who is the first adult to come to China to receive treatment for blindness. He had one injection of stem cells and is already seeing flashes! Visit his blog at blog.stemcellschina.com/carl for more information. Hunter was showing off to the doctor and staff, they were putting a toy up to him and when he grabbed it they would move it to see how he could follow. He chased the toy all around. Maybe he can already see more than he is letting on?? Let’s hope anyway! Keep us in your prayers and we will keep you updated on his progress.
January 8th, 2008
Hunter, his grandmother, Belle, and I will leave for China on Sunday morning at 7 AM. We should arrive in China at 8:45 PM on January 7. Let’s keep our fingers crossed that we are blessed with a miracle for Hunter. Everyone remember us in prayer and we will be praying, too. I know that God will bless Hunter and meet his needs. I will keep everyone updated with good news, hopefully. Lets pray for a safe trip to China and back home again! Thanks to everyone for support!
January 4th, 2008
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January 3rd, 2008
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