Archive for November 23rd, 2007

Day 32 – Thursday 22/11/07

Jay had his first stem cell injection today, they came at 9.20am and took him to the operating theatre, he came back at about 10.30am.  He then had to lie with his head flat on the bed for 6 hours (if you know Jay, you can imagine how hard this was).  He was given a small injection to help him rest which didn’t really work.  He continuously tried to get up, he eventually fell asleep at 2.30pm – 4.00pm, when he woke up he was in a lot of pain.  I called for the Doctor, she gave him a pain killer and said it will hurt where the needle was put in.  He settled for 5 minutes on and off for about 1 and a half hours, then he was in a lot of pain again, screaming with pain (not very nice to see) I called the Doctor again, she said he couldn’t have anymore painkillers as he had already had some, she also said it would be sore for Jay as they have to try several times to get the needle in the correct place as Jay had an abnormal spine.  We managed to settle him for a little while.  She said she would give him something to help him sleep through the night but that’s all she could give him.  It has been a very hard day.   It is now 8.00pm Jay has been awake for some time and if he stays in bed he doesn’t seem to have any pain.  He has just dropped off to sleep now, hopefully he will sleep all night.

3 comments November 23rd, 2007

Day 31 – Wednesday 21/11/07

Jay had physio. this morning, Julia had him today, Jay was very tired today as he had been awake through the night, he got up at 2.00am and jumped into bed with his grandma he then got up at 6.30am, Grandma got up gave him his breakfast and took him out so Nicola and I could have a lay in. He did not do well in physio, he doesn’t like it as Mandy stretches the insides of his legs and it really hurts. We went for a walk round the hospital as Jay likes waving and sticking his thumbs up to everyone. Even though he plays up, he makes up for it as he has a very special gift, of making you laugh and gives so much love.  Nicola went out today and bought him some new C/D’s to amuse him. But Jay was not all that interested. He is now having his IV, and listening to his DVD.  He looks very happy at this moment but the noise from the dvd is very loud.  I am now going to switch off and watch a video and have a glass of wine.

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Day 30 – Tuesday 20/11/07

Jay had his therapies as normal, I think he’s getting really fed up with them all, he has to be bribed all the time to do anything. Nothing new to report today.

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