Archive for November 24th, 2007

Day 34 – Saturday 24/11/07

Jay was awake at 5.00am.  He would not go back to sleep so Grandma got up with him at about 6am they got dressed and went walk-about the hospital.  They ended up in the computer room as normal watching his videos but he was not happy, he was in a lot of pain.  We managed to stay away from the room till 9.00am to give mum and Julia a rest.  He was visibly in pain and the nurse sent for the doctor and again he was given an injection to relax his muscles.  He slept for about 2 hours but was in lots of pain when he awoke and tried to walk.  The doctor returned and gave him an injection this time for pain, he fell asleep for a few hours and seemed a good bit better.  He was put on his IV when he was sleeping so when he woke up he knew he couldn’t get out of bed as he was attached to his IV.  He has been kept in bed all day to help the pain.  It has been a really long day as I’ve (Nicola) had to lie in bed all day with Jay watching the Singing Kettle (I’ve watched it that much, I’m dreaming about it).  Jay is even off his food, he is normally a really good eater.  Everyone else I have spoken to hasn’t had any pain where the injection was, some people get a bad headache, so I think Jay has a headache as well as a sore back. Jay missed out on a trip to an indoor play area for children today as he wasn’t well, it was organized by the co-ordinators at the hospital for all the children.  Poor Jay I hope he gets better soon. 

8 comments November 24th, 2007

Day 33 – Friday 23/11/07

Jay was awake at 4.00am screaming in pain, the nurse gave him a pain killer but the doctor had to be called, he was then given an injection and Jay fell asleep from 5am – 7.00am he did seem a lot better when he got up but he squirmed in pain when he moved a certain way.  Trying to keep Jay resting most of the day was a nightmare.  He wanted to go out of the room but he was very tired and would not sit down.  He didn’t have any therapies today so the day seemed to last forever.  This day was one of the toughest grandma has had yet.  It was easy when you could go walking with him before the stem cells but when you have to try and keep him still, just is nearly impossible.  I now know how Jay managed to overcome his prematurity and all the infections he had thrown at him when he was first born 13 and a half weeks early just weighing in at 2lb 2 ounces, it was his sheer grit in his nature that got him here where he is today and hopefully this sheer grit will get his stem cells working and get him walking better and communicating to make his future better for him. 

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