Archive for December, 2007
Jay woke up about 7.15am. He slept very well after his stem cell injection the previous day. He was in a good mood and it was as if he hadn’t had the injection. Nicola and Julia went off shopping and Jay and Grandma stayed in the hospital. We were told by Dr Amy to give physio a miss but to go to OT where Jay gave his all, saying all the letters Lilly asked of him. He tried so hard to carry out all the exercises with the bean bag. We then went back to the bedroom and Jay had his IV’s and at 4.00pm we went for TCM where Dr Wisdom talked about how Jay needed all his exercises and learnings to be repeated time after time to learn to programme the brain to make what comes easy to us become easier for Jay. After TCM Jay and Grandma went to the computer room for a short time just to keep Jay amused and then went back and had pizza, chips and peas for our tea. Jay was back to his mischievous self, doing everything he was not supposed to do when he did not have one to one attention. When Nicola and Julia returned they brought a wig back and we had lots of fun putting the wig on Jay and the rest of us. Then we had a visitor, Shirley who had worked at the cafe and left, called back to see us and she brought very tasty, fattening cakes which we thoroughly enjoyed. It was very good to see her as she had helped us greatly on many occassions when we needed a translator. Jay did not go to sleep untill about 11.00pm.
December 10th, 2007
Jay was taken for his stem cell injection at about 9.20am and came back at about 10.30am. We then had to keep him lying flat for 6 hours, he was given an injection for pain and an injection to relax him. This worked much better this time, thankfully, he slept most of the time, we also had to tie Jay to the bed with some restraints, this may seem drastic but it did help when he tried to get up. After the six hours Jay got up and didn’t seem in any pain he was a bit wobbly but that was it. We are very relieved lets hope it stays like this.
December 4th, 2007
Jay was much better today, he didn’t work hard for physio but I didn’t expect him to. He worked hard for OT and did everything he was asked to do. Jay is getting his stem cell treatment tomorrow morning which I didn’t think he would be getting. Fingers crossed it’s not as bad as the first one. I had a better day today, mum & Julia came back and I went out and did a bit of Christmas shopping.
December 3rd, 2007
Jay had a mixed night, he had fluid going into his IV all night so we didn’t have a great sleep as the nurse had to keep coming in and out all night. His temperature did spike up again but then came down after more medication. The Doctor said the fever isn’t anything to do with his stem cells, she said it was a cold. He is on antibiotics just in case, and had blood taken for testing. We have had a very boring day stuck in the hospital room, Jay is feeling a good bit better but still a bit unwell. I didn’t want to take him out of the room just incase he caught anything else. I didn’t get back to the hotel for my 2nd night, I didn’t want to leave Jay when he was ill. Julia stayed for an extra night in the hotel, it’s nice for them to get a break. This is the end of the 6th week, it has been dragging this past week and a half as we have been confined to the hospital. Hopefully next week will be better.
December 2nd, 2007
I can’t believe it’s December already, it doesn’t feel like Christmas time here. Jay had a good morning, he looked back to normal. I had a nice night in the hotel, it was nice to have a bed to myself as I have been sleeping in a single bed with Jay for the past six weeks. I had a swim but was very disappointed as there was a sauna and steam room at the side of the swimming pool but they were for men only, there was other ones but you had to go back to the swimming reception and across the hall but they didn’t open until 1pm and that ones didn’t belong to the hotel it belonged to another company. I had a long conversion with the help desk about why they supplied them for the men and not for the woman, they ended up saying they had a different culture to us, but it may change when the hotel gets revamped next year (for the Olympics I’m guessing). Jay got ill again at about 2pm, he went to sleep and when he woke he was sick, I took his temperature and it was high (39.5). He was given medication to reduce his temperature and given some fluid through his IV, his temperature slowly dropped but he has slept all day. Poor Jay being ill again, I don’t know how much more he can take. Thank you to everyone who is leaving comments, it is nice to know you are thinking about us. Jay liked the photos from school, it was nice for him to see everyone. I don’t think Jay will be getting his next stem cells on Tuesday, the Doctor is now saying she can’t confirm the dates. I also don’t think he will receive 3 injections in the time we have left. I said previously Jays red blood cells were high after his stem cell injection, I made a mistake it is his white blood cells that are high (the ones that fight infections). The Doctor told my mum that Jay would be worse for his next injection. (oh no! I’m not looking forward to that).
December 1st, 2007
Jay was fine this morning, he was eating and drinking well. I am now away to the hotel so today it very short. Granny is in charge for the rest of the day and night.
December 1st, 2007
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