“good days and bad days”
April 27th, 2007
Everyone has told us that there will be good days and bad days but where we started off so great after the 1st injection we thought that it was going to be all good. Lastnight JC had a major headache which he never gets but it is a side effect of the stem cell injection. He went to bed very early 7:30. We woke up early and spoke with the kids via web-cam, such a wonderful start to our day. JC’s walking is off and we hope that it is just because it is early. Unfortunately his balance is very unsteady the whole day and we are both disappointed. We do the regular daily routine and the headache is still hanging on but JC still gives 110% but it is frustrating because his “dizziness” has returned.
A good part of today is that we found a few things we could eat. For lunch we went to a restaurant and pointed to a picture with spagetti and one with rice and veggie/beef. The spagetti was tasty but the other tasted like Mr. Clean. We also went out to eat with our friends for supper at a place where the menu had some english and also a waitress who spoke english it was great, JC had steak.We are very lucky to have such wonderful friends here, we know we will be friends for life.
Something else good was that JC did not have acupuncture today, we think that they forgot and he wasn’t going to suggest it.
I also think that I have found the secret to the elevator situation. I put Bengay heat cream on my leg today and when I got in the elevator people were gagging and holding their noses, people were getting off the elevator because they couldn’t stand the smell and they weren’t hiding the fact that it was because of me. You would think that this would be embarassing but I couldn’t stop smiling and thinking to myself no more crowded elevators for me.
I am quite shocked at how many bums we see on the streets here, and I don’t mean homeless, I mean bums literally. Everywhere you go baby’s bums are hanging out, the small children and baby’s pants all have a slit down the bum and no diapers they just go anywhere and I quess the parents just clean the spot, I haven’ quite figured this out yet.
Bathrooms are a totally different story. It is funny how with all the people we talked to about going to China and all the research we did one little fact slipped by.
On our first full day here JC and I went to get “massages” to (tramatic to mention now). I had to pee really bad and of course I hadn’t bothered to learn the word for bathroom at this point, so I am making hand gestures and doing actions, try it is harder than you think, finally after doing this for a few minutes and for a few people I was finally directed to a room with a couple of stalls. I go in the first one and there is a hole in the floor, so I move to the next stall figuring that maybe they were reparing where that toilet was supposed to go, next stall same thing but this time I see a roll of toilet paper. At this point I am ready to explode and figure this is going to be impossible well let me just say it’s possible. This is the normal way of using the bathroom, sqatting over a hole in the ground, we fiqure that is why everyone around here has no thighs or bum because they are doing squats all day long. So when I get home my toilet is gone.
We have to go in every bathroom everywhere, we go just to get a look and to let those who haven’t experienced this new exercise routine try it out. YOU KNOW WHO YOU ARE AND SO DO YOUR SHOES.
Well I am writing this late and JC is already asleep, so sweet dreams , I hope tomorrow is better for JC.
Entry Filed under: mjd
12 Comments Add your own
1. Christine Caume | April 27th, 2007 at 9:33 pm
Hi Guys,
We are all thinking of you back here. It seems to be routine now for alot of people to check out this sight. I check it out every morning (before bus passes). I have my priorities too.
I even have parents phoning me to get this address. It’s so nice that we can communitcate this way.
The kids are doing great. They come in each morning with something new to say or repeat. We all look forward to it.
You guys take care of yourselves and each other. We will keep in touch.
2. Rose Pitt | April 27th, 2007 at 10:22 pm
Julie and JC
Sorry to hear about your head aches and dizzines Sometimes things have to get worse before they get better. Hopefully you will start feeling better very soon. I know you will. Keep your spirits up, that’s half the battle.
Julie, If you run out of things to do, to occupy your time, you might want to check out the local “Comedy Club” . I know that you could get a gig or two. You are too funny.I lchuckled the whole way through your message today. You know that laughter is one of the best medicines.
With regards to the “Bums” hanging out,Wow! hard to beleive! it’s probably not a bad idea!! Think about the savings to the environment, with the landfills not having to deal with the “Pampers” issue,although iIt must be a little dangerous walking by the kids that have to go POOP???? I hope the streets arn’t too crowded?
Keep smiling and keep writing. I think this is a wonderful thing.
p.s. Grandma is doing fine,The kids are in good hands! I talk to her daily.
God Bless
Rose
3. Rose Pitt | April 27th, 2007 at 10:30 pm
Cherie,
I can’t beleive I called you Julie… so sorry ,I realized the minute I pressed the button. “Old Age” is kicking in faster than I think!!
Some things never change.. Your Mom will love this
Rose
4. Jillian | April 27th, 2007 at 11:53 pm
Hi Cherie & JC -
Mom just left me a message about this site last night. What a great way to update everyone on what has been happening. I have been thinking about you both often and look forward to reading about JC’s progress. I am sure there will be good and bad days BUT I know that it will be worth it in the end. Hang in there!
Sorry about the food situation. Thank goodness for chocolate and junk food. I hope you find some other alternatives soon.
Take Care and HUGS to you both.
Love, Jillian
5. Coady Lewis and Gail | April 28th, 2007 at 2:23 am
Hello guys,
Hope your bathrooms get better(hahaha). Just want to wish you and JC all the best in China. Keep your heads up things will or already have become better. Take care and see you both home very soooooooooooooooon.
6. Tammy Collin | April 28th, 2007 at 4:49 am
Hi Cherie and JC
You don’t know me, but like everyone in Geary, I know you and your situation. As a former home and school member Wallace sent me this address. I am so pleased that you have made it to China and that JC is showing improvement already. The thoughts and prayers of my family and everyone I work with at Dollarama are with you. I look forward to reading your blogs and hearing of JC’s improvement. May God Bless you and your family.
7. Tammy Collins | April 28th, 2007 at 4:53 am
ooppss my last name is Collins with an s lol silly me
8. Debbie & Greg | April 29th, 2007 at 1:09 am
Hi again guys I was just talking to Jillian and she told me that i have to post under your last entry !! I went to the bottom of the page until i saw comments and wondered why only 4 postings were there !! DUH I totally agree with Rose when she told you to do a comedy gig .I laugh the whole time i read your descriptions of your new adventures ! Kolin said that the toilet situation was the same in Holland when he was there .Strange to us . Guess we all have to give ours a big huggggg of appreciation and not for the reason that some would be hugging it !! Sending you both positive energy and healing power prayers love Deb and Greg x0x0x00x0
9. Eric Tucker | April 29th, 2007 at 6:44 am
I am so glad to “hear” all of your activities, for reading this blog is just like hearing it from you, a great job of descirbing everything. I am glad that things are going well. Me and the staff are all praying for you and are looking forward to seeing you when you get back, I hope you don’t starve before you do get back.
Take care,
Eric
10. Denise, Marcel, Brandon & Brianne | April 29th, 2007 at 9:37 am
Hi JC and Cherie!
. It sounds like JC is making some progress and we are praying everyday that this progress continues and gains momentum. Keep your strength and spirits as high as you both can so as to manifest only a great and miraculous outcome from this journey!!!
What a wonderful idea this blog is! At least this way you can keep every single person updated on the daily progress and ‘cultural events/difficulties’ LOL of your lives while you’re there without having to send single emails to everyone! It sounds like China may not be as wonderful a place to visit as I once thought. I sure hope the friends you have made there will soon be able to point you to the right places to eat and… ‘uhum’… use the toilet
Can’t wait to share this blog with the kids tomorrow!
Take care and we send all our love!!!
xo
Denise and the rest of the ‘Ogon’ clan!
11. jayce8 | May 4th, 2007 at 9:12 am
JUST LOOKING IF WORKING
12. EMMANUEL AMADI | January 1st, 2008 at 12:54 pm
how are you doing? now that you are back from china. i was diagnosed with mjd in 2004, and planing to go to china during the summer of 2008.
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