Jillian Rose’s CP Blog

update for the update

September 4th, 2008

I have an update for the update!  But first, if you haven’t read my last post about the bone marrow collection, you can just scroll down and read it first……then you won’t miss one juicy detail!

So you all don’t worry, Jillian woke up (right after I uploaded that last post) and she is doing great!  She even gave me a glimmer of a smile.  And when I told her we’d have a peanut butter and jelly sandwich, that little smile grew pretty big.  So she’s been awake a couple of hours, has eaten and did not upchuck (for lack of a better term), and has laughed and been happy.  Her vitals are all good.  The IV has been removed.  We had to change the bandage on her puncture site, and I’ll tell you what it’s like.  There’s two small puncture holes on the back of each of her hips.  She doesn’t seem to be in pain.  She’s supposed to stay in bed for 24 hours and I’m not to carry her around.  So I just wanted to fill you all in that Jillian is doing great, and the nurses will continue to check on her through the night to make sure she stays that way. 

I’m pretty sure (the language barrier) that one of the doctors said that she is the first bone marrow collection/transplant performed on a small child at this particular hospital.  They have no idea how many stem cell injections she will have.  It all depends on how the cells grow out in the culture.

Thank you all for loving her so much and checking in on her!   I’ll post again when I know anything else.  We love you all so much!

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