Pictures post!

September 9th, 2008

Hi everybody!

Okay, now I know how to include pictures in a post! 

But first, before the visual feast, I have an update about the date of the first injection.  It is delayed another day.  Now it is on Thursday (Wednesday night your time).  That is when she will get her first IV stem cell injection (not the spinal). 

Here’s some pictures to share so you have a visual of our adventure………enjoy!  If you want to see any picture bigger, you can double-click on it to enlarge it.

At least Jillian was roomy and comfortable on the long plane ride!!!!!  :)

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This is the hospital:  ZheJiang Xiaoshan Hospital…..and our room plaque with Jillian’s name from the USA 

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This is our rigged up luxury bath for Jillian.  The child’s tub is tied in by a belt I used to have…..it was a braided belt that we unbraided and used the three lengths to tie it onto the safety rails around the toilet.  The tub is kind of suspended in air above the john.  It works though!  Good thing Jillian’s not snooty!

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This is a typical day outside.  Although today as I’m writing this, it is sunshiny outside and I can actually see blue sky and see for miles!  But it’s still very hazy.  I was starting to think you never saw blue sky. 

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This is our room in the hospital.  We’ve rearranged it so Jillian’s bed is alongside the wall so there’s more room.

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This is the night I cooked spagetti for us and about 4 other families.  It was a hit!  What you see here is pretty much the whole “kitchen.”

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This is Jillian in standing therapy.

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Jillie and Grandmommy chillin’ and hangin’.

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This is our first venture out of the hospital.  We walked to a small park nearby.  There’s tons of pictures…….

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This is the night we went OUT!   We went with an interpreter and a driver to (pronounced) Woo Shan Square.  We didn’t stay very long because Jillian was tired and anxious to get to pizza.  She didn’t give a hoot about being surrounded by Chinese culture….she wanted pizza.  There’s a few I just have to narate…….

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This is my favorite picture…..

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This is all carved in wood…..there’s also a wood carving inside of some kind of warrior.  it was very detailed and pretty.

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Okay…..here’s where it gets really good.  Remember I told you about throngs of people gathering around Jillian, saying how she looked like Barbie, etc.?  Well, in these pictures, what you don’t see is the dozen or so people that stepped back so they wouldn’t be in the picture…….but this gives you an idea.  And it’s been like this everywhere she goes.  If they don’t stop and talk to her, they openly stare/look at her.

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Jillie and Grandmommy by some lion statues

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This is just some fancy apothecary…….I think that’s ginger in the big glass bowls.  I just had to take this picture….for those of you that know me, you know I dig this kind of stuff…

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The only part of the evening that Jillian cared about……Pizza Hut.  She couldn’t wrap her mouth around a piece of pizza fast enough.  They were shocked at how much she ate.  And those of you that know her, you’re probably not shocked at all!

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This is the Chinese lady that we have as a helper after Mom left.  She LOVES Jillian and Jillian loves her right back……most of the time.  She even bought a couple little presents for Jillian yesterday….some little hair ties and a Hello Kitty pen.  It’s great having her here, because, for instance, when I am making lunch or at the nurses’ station, she is playing with Jillian.  Even right now while I am doing this post, she has Jillian in the “play room” and they’re having a great time.  I have to admit that I have to kind of fight to hold my little girl though!!!!  :)   She is ALWAYS trying to take her from me.  Last night she helped me give Jillian a bath (you know, the part that scares me most because she’s so darn slippery and heavy when she’s wet.).  So last night I was bathing Jillie….and the helper was “helping” me.  She’s got her hands in there washing too………next thing I know I was slowly inched away to the side…..and before I knew it, I was out and she was in!  She scrubbed and scrubbed Jillie.  I don’t think Jillie has ever had such a thorough washing.  She was taking her hands and rubbing, rubbing, rubbing……. I swear she removed a layer of skin!  So I went ahead and got the towel ready……and I became the helper!

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We went to the grocery store and walked through a park on the way.  It was really pretty.  (Mom, this park is prettier than the one we went to……it’s the one we see out of our window)

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This is Jillian’s physical therapist, Anna.

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Okay, that’s all the pictures I have for now…………but I’m sure it was enough, right???!!!!!!  I’ll post a little as I go from now on so there’s not so many at one time.

We love you all!  I’ve got to go get my little girl back now…………

P.S.  >>>>> Just a thought…….still no comments to read from Daddy yet.  :(  

Entry Filed under: cp,Uncategorized

12 Comments Add your own

  • 1. Jenn  |  September 9th, 2008 at 6:12 pm

    Good Morning Family
    These pictures are great. I am happy that all is going well. David was happy to hear that they have Pizza Hut. And that Jillie got hers. We are continually praying and we always have you in our hearts. love you all.

  • 2. heidi Dragomir  |  September 9th, 2008 at 9:16 pm

    Hello Tami and Jillie Bean!

    I read all your posts today and got caught up. I feel like I’ve been to China and back for the last hour. I went in chronological order and it’s sounds like there has been some pretty interesting, cosmic happenings around you guys, getting the better hospital, the head doctor, the wonderful help. I rolled on the floor laughing at the bathing scenario. I bet she can give a good massage too. You should ask her for one that way she will not have as much energy to steal your girl away all the time. That is so interesting about the Bone Marrow Transplant. There is hope. I am glad that so far so good. Jillie sounds like she is a trooper and that you’re being strong for her. My password for writting this note is auspicious. May you have an auspicious day and look forward to hearing how the first treatment of stem cells go. Sending you lot’s of love.

    Love Heidi, Bhakti (I tell Sara about Jillie as well and she sends her love as well).

  • 3. Jane Litchfield  |  September 10th, 2008 at 3:39 am

    Hi Tammi and Little Jillian:

    So glad that things are going as well as they are for Jillian. We are praying that these I.V.’s will be successful and work miracles for little Jillian. Thanks for the pictures. I really enjoyed them. Makes me feel that I am there with you. (Wish I were).

    Had to go over to the beach and make arrangements to get some things fixed that so renters broke and messed up. Had to get a new dishwasher, fix the bed, couch and curtain rod. Will run back over for the day and put up new curtains. Seems there is always something that needs my attention.

    Take care of yourself and little Jillian and do a lot of looking for me.

    I love both of you very much.

    You and Jullian are in my prayers

    Love, Aunt Jane.

  • 4. Sharon Johnston  |  September 10th, 2008 at 5:41 am

    Great Pictures You all look so happy. I ‘m happy for you and that you have so many people that care.
    Have a great day

    Sharon
    Lake Martin Dock

  • 5. Sharon and Jason  |  September 10th, 2008 at 11:36 am

    hey t and jb – what wonderful pictures. tell jb i love pizza hut too! praying for you both every day you know? grow those cells, get them in, do some good. love you both. oh and Jason had his shirley temple curls cut this weekend, i was trying not to do it, i loved his hair long, but how could jb marry a boy with hair as long as hers – so it’s cut. still curls at the back, still cutest boy EVER so don’t you go marrying her off to Simm eh?
    love ya, Sharon

  • 6. Toni and Pete  |  September 10th, 2008 at 12:33 pm

    Loved the picture of the three generations and all of the pictures are great! Is there anything you CAN’T do? Now you are a pro at sending pictures in your blog. Jillie looks very content so she must like her surroundings and all of her therapists, helpers, musicians, etc. But no one can replace her dear mommy!
    The streets look exceptionally clean and I love the weeping willow parks. You are doing a great job of keeping us all up to date.

    I look forward to more of the same tomorrow. Good night and love,
    Toni and Pete

  • 7. Christy and Maria  |  September 10th, 2008 at 12:53 pm

    You two look great!!! Thanks for the update and I pray that everyone of those cells get in there and do their work!! Can’t wait to hear the outcome!
    Blessings

    Christy and Maria

  • 8. MOM & KAYLA  |  September 10th, 2008 at 9:09 pm

    GOOD EVENING TAMI AND JILLIE. WE MISS BOTH OF YOU VERY MUCH. GREAT JOB ON PICTURES. WHY WAS THE TREATMENT POSTPONED? IS EVERYTHING OK? GIVE ME A CALL AND LET ME KNOW HOW BOTH OF YOU ARE DOING. I AM SO GLAD THAT THE HELPER IS WORKING OUT. I THINK YOU SHOULD KEEP HER TO HELP WHEN CAROL GETS THERE. WHILE JILLIAN IS SLEEPING BOTH OF YOU COULD GET OUT FOR A WHILE. KAYLA SEND HER LOVE AND HUGS. SHE MISSES JILLIAN. LOOKING FORWARD TO HEARING FROM YOU. WE LOVE YOU BOTH VERY MUCH,
    MOM & KAYLA

  • 9. Aunt Cindy  |  September 10th, 2008 at 11:03 pm

    LOVE the pictures!!! I’m so glad you, grandmommy and the bean got to go out and explore a little. The kids thought it was great that you ate at Pizza Hut in China. That’s alittle like a chinamen coming to America and eating Panda Express. So Jilli will be getting her first treatment tonight, we will be thinking about you both and sending you lots of love, hugs, kisses and the very best wishes. Let us know as soon as possible how she did. Love you both very much. You are BOTH SOOO AMAZING!!!!!!!! Love, Aunt Cindy

  • 10. Gretchen and Sam  |  September 11th, 2008 at 4:58 am

    Hi Girls! We read your posts all today and are so excited for you. The pictures are great and we’ll be praying for that first injection. I lead a Bible study tonight and we’ll be hitting this one hard! :) We look forward to hearing good things over the next weeks.
    I must tell you Tami, this gives me such hope for Sam. I have never looked into this, but after reading so far, I am starting to consider it. Sam “seems” so delayed cognitively, and this really gives me hope for him. Take care girl, and Hi to Jillie from Sam and I.
    Love,
    Gretchen and Sam

  • 11. grammakuna  |  September 11th, 2008 at 10:04 am

    Hi ! I guess you’re getting ready for the IV. I know all will go well.
    Our love and prayers surround you. You’ve come so far and now it’s really happening. The pictures are wonderful. Everyone is thoroughly enjoying them . The hospital looks like a 5 star hotel.
    Jillie really is a star. Not surprised though. Thanks so much for
    sharing your experience with us. Love,kisses and prayers are
    with you. Let us know as soon as you can how it went.
    Kisses and sugar, Gramma Kuna

  • 12. Mel  |  September 11th, 2008 at 10:06 pm

    Hey Tami!

    Wonderful pixs of your exciting adventure. Glad you 3 got there safely and are getting adjusted. Eat some excellent authentic cuisine for me :)

    Sending you warm thoughts. Squeezes all around.

    Love,

    Mel

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