September 13, 2008
September 13th, 2008
Hi everybody!
Just wanted to let everyone know that Jillian is doing very well. Her temperature has been up and down for the past two days, but it’s not been anything that is really high. Dr. Mike told me that the prednisone (that must have been the anti-allergen medication I was talking about before) can make them warm. I was also told by Dr. Hong that a raise in temperature is common after a stem cell injection…..although it’s not as common after an IV, but most common after a spinal. She doesn’t seem to have a cold…..there’s been no coughing or runny nose. So must be a side affect of her miracle mixture. So you can all rest easy because she’s doing great.
My wonderful friend Carole arrived tonight!!!!! You would think she just drove across town…she arrived all bubbly and full of smiles! Jillian just about jumped out of her skin with happiness to see her Aunt Carole! I hope we’ll be able to go to West Lake tomorrow. They’re supposed to do some special sanitizing thing in all the rooms with vinegar where the patients have to leave anyhow, and they’re doing some minor construction in our room also, so I think that would be a perfect day to do something touristy. BUT….it’s supposed to be horrible weather. Go figure. There’s some temples at West Lake that are thousands of years old that I think would be interesting to see, and there are museums too. But you know that I’ll bombard you all with pictures if we indeed get to do some sightseeing.
I have the schedule for Jillian’s spinal injections. This coming Wednesday (Tuesday night for you) will be her first spinal. The next one is the following Monday (Sunday night for you), and after that is Friday (Thursday night for you). Then we leave to come home on September 29th, which was our original departure date. Carole, bless her heart, is staying with us for the duration.
Jillian has been waking up in the middle of the night and staying awake for a LOOONG TIME for the past 4-5 nights…..I’ve lost count. Aaaaaargh! Last night she was awake when the nurse came in at 3 a.m. to take her temperature and was giggling at the nurse. I knew that wasn’t a good sign. She finally went to sleep around 6:30 a.m.
I just have to tell you quickly about the dinner we had the other night. I ordered braised chicken. Sounds safe enough, eh? Well……there was, um, a chicken foot in it. Claws and all. I had to touch it to get it out. Can you feel me shudder all over again at the memory?
A woman I met that is here, we were talking and discussing where each other was from…..and guess where she’s from? Stuart. We’re neighbors (well, when we lived in Florida, that is). What a small world!!!! There are a couple of families that left in the last 2 days from the U.S., but still four families left from the U.S.; there are two families from Romania, a family from Italy, a family from Denmark, and a family from Hong Kong. There are a couple more coming in the next few days. It’s a true melting pot here on the 20th floor of Xiaoshan Hospital!
For some reason, I can’t access any of the recent comments that you all have left for us, say within the last day. As that is the highlight of my day, it’s really bumming me out. But it’ll be like Christmas when I do finally get to read all of them at once! So keep ‘em coming please, because you have no idea how much encouragement you give us.
I’m sending back some love to all of you, and kisses and hugs too, from me and Jillie Bean!
Entry Filed under: cp,Uncategorized
11 Comments Add your own
1. Gwendolyn | September 14th, 2008 at 1:06 am
Hey Girls!
hugs and kisses! Star, I’m so glad you have Carole there with you!
and that Jillie is better! that’s good news. i have a cute story that she might enjoy:
Today when we were out on Hat-Trick, about 6 or 7 miles offshore, i took out our first aid kit , which is bright red, and sat on the deck looking through it for some aspirin (i have the wine flu today) and just as i did, a little green parakeet came out of absolutely nowhere and landed on the kit in my lap then flew off so fast leaving me wondering if i was seeing things! Keith was snorkeling on the reef but when he came back i was excitedly telling him all about it before he could even get back on the boat. when he finally did get back onboard, he turned and said, “here’s your little green bird right here.” and indeed, it was perched on the engine mount. it flew inside the cabin and remained there until we got back to our moorings and then it flew away. i felt sad to see it go, actually. we are guessing that it must have been someone’s pet. maybe it got blown too far offshore or something and needed a place to rest. there were two other boats out there next to us, so i don’t know why he picked me, unless the red kit attracted his eye. i took a couple of photos with my cell phone and will send them to your email address. how cool is that? i just thought Jillie might like to hear the story of the little bird who hitched a ride on a sailboat!
Have fun on your site-seeing trip and give Jillie lots of kisses for me!
love you,
Gwen
2. Varinia | September 14th, 2008 at 2:34 am
Hi Tami,
The little boy Drew ( see Drew’s CP blog) that was at teh same time with us had teh same reaction to stem cells by being awake in teh middle of the night. I think the stem cells are working and awakens the brain if I can say that. I think something is changing then.
Have a nice day if you visit West Lake. It is really nice.
I look forward for your updates next week.
xxoo
Varinia
3. Lori and Billy | September 14th, 2008 at 8:52 am
Hi Tami,
Thank god for guardian angels That would be CAROL. I could tell she is a real special person the night I met and her husband. I’m so glad Jillie is doing well and that the fever is just a side effect. Hope the weather was half decent for you all to get out. Rebecca is going to show her Chinese teacher the pictures and your blog and ask her about some of the locations and of course tell her all about Jillie Bean. As always we are thinking of you and Jillie.
God Bless You, give Jillie a kiss for me, and another one, and another one, and one more!
Love Lori, Billy, Rebecca, and Vincent
4. Lori and Billy | September 14th, 2008 at 9:00 am
Tami,
I forgot to add, maybe you should consider going vegetarian.
just a thought??
Love ya Lori
5. Jill and Macy | September 14th, 2008 at 9:54 am
Hi Tami and Jilley Bean!!! We are so excited for you and have been thinking of you alot latley, so we figured you were in China. Sounds like everything is going well! What an exciting trip and such a great reason to be there! We sure do miss u guys and Ben. We will be checking your site everyday for all of the good news and progress. Talk to you later.
With all of our love to both of you,
Jill and macy
6. Sue Kelly | September 14th, 2008 at 12:19 pm
Hey Tami!
I have been thinking about you and Jillian. I am so glad everything is going well. I am really glad your friend came to be with you. I am sure it makes the whole process so much easier when you have support. And hey, I think the pictures of you are great. It’s great to put a face with the name. We’ll keep the prayers coming!
Sue (and Ryan)
7. heidi Dragomir | September 14th, 2008 at 7:46 pm
That’s good news that Jillie’s reactions to the stem cell treatment are normal. The waking up at night giggling doesn’t seem all to bad in the sense that It’s a giggle not a discomfort. I’m sure you all need your sleep though. Mayit’s having an effect already and Jillie doesn’t want to miss a thing.
Enjoy China while you can and I’m glad you have a comforter with you.
Merry x-mas!!
Heidi + Bhakti
8. Jenn | September 15th, 2008 at 1:33 am
Hello Jillie, Tami, And Brian
Very happy that Jillie is feeling better. We hope that you girls have a good time sight seeing. Cant wait to see the pictures. We are also happy that Carole is there now. Thank-You Carole.
As Always you are in our hearts,ind, and prayers.
We Love You all.
Jenn, Doug, and David
9. grammakuna | September 15th, 2008 at 11:25 am
Thanks for the call. Tell my granddaughter I’m very proud of
her. The best is that she recognized she had done something new. Kool beans ! And this is only the beginning. Im glad Carol
is there with you. It’s going to be great to have her support.
I can’t wait to see your pictures. But for now I’m going to bed.
Talk to you again tomorrow (by blog). LOVE YOU ALL>
Gramma K
10. "Skip" | September 15th, 2008 at 11:40 am
Hi Tami/Jillian
Just got home, from a week iin the Ga.boonies and the first thing I”m doing is to catch up on the Blog.
Looks like all the prayers are being answered.
Thank you Jesus
You and Jillie get many many from me each day.
I now have a week at home to keep up on Jillies progress, then back to the boonies. for a week. But you will always be in my prayers.
Love and prayers
“Skip”
11. luanne russell | September 15th, 2008 at 8:21 pm
Tami, I am keeping up with you and Jillian and have you in my heart and prayers.
Luanne
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