September 15, 2008
September 15th, 2008
Hi friends and family!
Everything is going very good with Jillian. IN FACT……she has something new she is doing! Always before, when she would clap her hands, it was always with her thumbs tucked inside her closed fists. So she would hit her closed hands together. Yesterday, as I was trying to get her to sleep and she was all relaxed, she took both hands and “clapped,” very clumsily, her open palms together. Yes, the right hand too; which if anyone knows her, her right hand is closed tight a lot….she kind of uses it as a stabilizer, so to speak. Well, it was so cute and momentus, because she too realized she was doing something she couldn’t do before. She looked up at me with a small smile, as if to say, “Mom, look what my hands can do!” I said, “I see, honey! You’re clapping with your hands open! Congratulations!” She was very proud and kept doing it. Of course, that messsed up any chance of taking a nap…..but that’s okay. She’s usually been able to do it when asked to……most of the time. She has been using her right hand a little more, for instance, to turn a page in a book.
I asked Dr. Tony this morning if it is common to see something so soon after a stem cell injection, and what he said was that it is not necessarily the stem cells, but it is the “elements” or “components” of the stem cells more or less triggering the nervous system, something about gathering all the stem cells together. (?)Now, remember that there is a degree of a language barrier in conversations. But it was said that It is a very good sign!
I also discovered just a little bit ago that Jillian’s brain injury is a little bit more than I had always thought for these past four years. I always just thought it was in the left ventricle only, but I have been told this morning that in fact it is in both ventricles. But he said this is common in cerebral palsy, and that she should still respond well to the stem cell treatment.
Also I am told that her first spinal injection COULD be tomorrow. They will let me know in the morning. That is Tuesday morning for me (Monday night for you). I’ll let you all know as soon as I find out. If it is indeed that she is getting the spinal tomorrow, then I will make sure to throw on a quick post so you all can include her in your prayers before she “goes to sleep” and receives the procedure.
Okay, she has fallen asleep while I was writing this post (Thank God! finally!), so I am going to run (walk) quickly to the grocery store and let LaLa keep an eye on her meanwhile. Gotta get there and get back quickly, so I gotta sign off and say bye-bye! Love you all!
Remember that I’m still not able to retrieve comments…….but I will be able to once they fix whatever is going on with this silly thing.
All right! Love to everybody! Have a great day!!!!!
Love,
Tami and Jillian (and Carole too)
Entry Filed under: cp,Uncategorized
12 Comments Add your own
1. Toni and Pete | September 15th, 2008 at 2:17 pm
Hope you got out and about and that it wasn’t raining too hard. We leave for a softball tournament in Dalton, Ga on Tuesday and won’t be back until the 26th or 27th of this month. You will be starting to pack to come home by then, I bet. That is wonderful news about Jillie’s clapping and making so much progress! You KNEW this would work, didn’t you? Hang in there. You two will be home soon. We will be calling Grammy tomorrow and I will try to catch her up on everything you have said.
Love, hugs, and prayers
Toni and Pete
2. Jenn | September 15th, 2008 at 6:00 pm
Good Morning All
I am happy that Jillie is showing progress. Even better is that she sees it. We all know that more is to come. Bigger and Better baby. YAAAAHHH. YOU Rock JILLIE WILLIE. Love you all
Jenn
3. Janet | September 15th, 2008 at 8:46 pm
PRAISE THE ONE FROM WHOM ALL BLESSINGS FLOW!
Remembering you, Janet
4. Gwendolyn | September 15th, 2008 at 10:14 pm
OMG! we are clapping for joy! that is such good news!
our prayers and our love continue to come your way. God’s hands are clapping.
hugs and kisses
loe.
Gwen & Keith
5. "Skip" | September 15th, 2008 at 10:48 pm
This is great, being home and able to access the web and get all this good news each day.
Thank you Jesus again for more prayers answered.
Prayers and love
“Skip”
6. Michelle Hirt | September 16th, 2008 at 12:45 am
Great news, Tami, I am so excited for both of you!
7. Jessica Joy | September 16th, 2008 at 12:48 am
Hey Tami and Jillie!
I love and miss you both so much. I was looking at the pictures of LaLa and said, “I wish that was me with Jillie instead:(” Nevertheless, I am very thankful that you both have LaLa.
I am blown away in amazement at everything I just read! But, I am not at all surprised! Jillian Rose is a survivor and she can handle anything that crosses her path times 10! She is going to get stronger and stronger and stronger; I am believing and praying for a 100% recovery. I just know that that is how it is going to work out. I am so proud of you, Tami, for going to all measures to give this opportunity to Jillie. You have sacrificed everything for her and for that you will be rewarded.
Stay strong and encouraged; do not be easily dismayed. Instead, become elated at any sign of progress because you know it is only going to get better for Jillie:) I think of you both everyday and you are both in my prayers.
With Love,
Jessica Joy
8. Becky Howe | September 16th, 2008 at 1:59 am
Tami and Jillian,
I am so glad to finally have some info on you! You have been in my thoughts and prayers for a very long time and i am so relieved/excited to hear that you are doin so well!! Your pictures are amazing and Jillian looks beautiful as usual! I am thrilled to hear that you are already seeing results.. thats amazing!! I will continue to keep you in my prayers.. things are only going to get better!
With all my love,
Becky.. and Littleun too!
9. mom | September 16th, 2008 at 4:40 am
Honey thats great news. She is in good hands with the doctors in china. With all of the preyers she is also in Gods hands. Sure miss you. Miss your calls. I love both of you wery much. Keep me posted.
Love and kisses, Mom
10. Kimmie | September 16th, 2008 at 8:53 am
Hey Tami & Jillie Bean!
Our God is an awesome God…no guestions about it.! He is good…ALLLLL the time.
Keep the faith. Our creator is in the business of miracles and Jillie Bean is one of them! Be encouraged…praying continually for both of you & Brian back at home. You’re an amazing person/mom, Tami & Jillian is blessed to two wonderful parents in her life.
“Every good & perfect gift is from above…” James 1:17
Consider yourselves hugged,
Your PSL neighbor, friend & prayer warrior,
Kimmie
11. Kimmie | September 16th, 2008 at 9:03 am
Hey girrrrrls….
I’m hoping our comments are reaching you..!
It seems some are missing from the blog on previous dates…oh well, what would I know…this is all new to me. Anyway…know that you are continually in my prayers (as I’ve mentioned previously).
God is good…alll the time!
Again…consider yourself doubly hugged.
Your PSL neighbor, friend & Prayer Warrior,
Kimmie
12. Lori and Billy | September 16th, 2008 at 9:59 am
Hi Tami,
Thats great news, I’m sure Jillie just loves to clap, she loves all that fun stuff. Rebecca saw her ball in one of the pictures and said, Hey, theres that ball that Jillie had me chasing. Jillie would just crack up watching Rebecca go get it. Can’t wait to hear every little new thing Jillie can do and discover! Thinking of you two everyday, Give Jillie a kiss for me, and another one, and another one, and one more! Love you God Bless you.
Lori, Billy, Rebecca and Vincent
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