A bad afternoon for Jillie
Hi everyone
Just putting an update because I said I would let everyone know everything that is happening. I don’t know why, but Jillian had HORRIBLE stomach cramps today. I’ve never seen her in this kind of pain. It broke (to put it mildly) my heart…..big time.
She had no therapy scheduled for today, was feeling great, fever totally gone and didn’t come back, so we decided to take advantage of the time off and get out of the hospital a little. We went to the silk market. She was doing great, she let me know she was hungry by doing her “ummmmm, ummmmm” queue, so I brought a banana to feed her, gave it to her. You know our girl, she loves food, so she was disappointed that the banana was gone so I started to give her a muffin. About a third of the way into the muffin she started being uncomfortable, like she had to go (all right I’ve got to be descriptive in this post, so weak stomachs beware) poopy, but it was a different kind of straining than she normally does. I picked her up out of the stroller to hold her and she acted like something hurt. Decided to go ahead and head back to the hospital to let her lay down. She laid down in the car with her head in Carole’s lap and feet in mine and was just fine. Got back to the hospital and she was trying really hard to “go to the bathroom,” but she acted like it hurt. A doctor palpated her tummy and said it is a gas pain. We put a hot water bottle on her tummy and it helped and she was laughing and trying to be funny. Figured, okay, she passed it, whew, she’s okay now. Fed her some scrambled eggs and tomato for dinner. She was in a great mood, looking forward to her bath and a little sesame street on the computer. Then I picked her up to put her in bed to go make her bath and she stiffened up and screamed. She cried and screamed so bad and was in such bad pain she was wet with sweat. This lasted about 45 minutes.
Dr. Tony said she was impacted (you know what I mean), and they gave her something rectally. It “worked” after about 10 minutes, and she fell asleep in my arms from exhaustion. The doctor and nurse left, I went to roll her over on her left side, and she woke up hurting and crying again and threw up. A lot more came out “back there,” all over the place, we cleaned her up, changed the bedding, brought her to my bed and I laid down with her again and she fell hard asleep. All I could do was hold her and tell her I’m so sorry baby. It broke my heart because she wanted me to fix it so badly. She’s never experience pain like that…..I mean when she was a preemie in the hospital and all the IV’s and stuff, but I’m sure she doesn’t remember that time.
Man oh man oh man I hope she’s okay now. She’s sleeping right now in her bed as I’m writing this. She’s actually moaning a little in her sleep right now. I’m afraid there’s still some pain in there, because when I moved her from my bed to hers and laid her down she whimpered and stiffened up and kept her legs close up to her body, but she was just so exhausted she fell asleep anyways.
I don’t know what could have caused this. It’s driving me nuts to know, so I don’t let it happen again. I’m wondering if it could be after-affects from the anesthesia? Carole said she’s heard of people getting bad gas pains after being under anesthesia. But that was two days ago. Was that banana bad? Her uncomfortableness started right after eating that banana. I just don’t know. If it’s from the anesthesia, then we have two more spinals to go under general anesthesia.
Ooooh, I just don’t know. We were going to go to West Lake tomorrow, but no way am I taking her out of this hospital. I mean we didn’t come here for tourist reasons anyway. She’ll get her next spinal on Monday (Sunday night your time). I guess I justed wanted to let everybody know everything that was happening with The Bean.
Oh, yeah, just a side note…..the air conditioning in our room broke last night. Yaaaay. They couldn’t get it fixed until this morning. We brought in a few fans and dressed lightly and didn’t use blankets. But it’s fixed now.
Okay…….sorry to bum you out…….really. I just thought I’d give you guys the good, the bad, and the ugly about this whole journey and experience. It’ll get back to absolutely terrific great real soon.
I know it sounds petty to ask to throw in some “Jillie’s tummy feels better” into those prayers from all of you after you’ve been praying for something, gee, a little bigger, like success with the stem cells and changing this little girls life, walking, talking….but if you can, we would so so very much appreciate it.
I know in the end this is going to be life-changing for Jillian! I had a dream lastnight that she was walking!
So we love all of you very much!!!!!!!!!!!!!!! Thanks for loving us back!!!!!!!!!!!!!!!! I’m going to bed now!!!!!!!!!
Love,
Tami and Jillie Bean (and Carole too)
11 comments September 19th, 2008
