A bad afternoon for Jillie
September 19th, 2008
Hi everyone
Just putting an update because I said I would let everyone know everything that is happening. I don’t know why, but Jillian had HORRIBLE stomach cramps today. I’ve never seen her in this kind of pain. It broke (to put it mildly) my heart…..big time.
She had no therapy scheduled for today, was feeling great, fever totally gone and didn’t come back, so we decided to take advantage of the time off and get out of the hospital a little. We went to the silk market. She was doing great, she let me know she was hungry by doing her “ummmmm, ummmmm” queue, so I brought a banana to feed her, gave it to her. You know our girl, she loves food, so she was disappointed that the banana was gone so I started to give her a muffin. About a third of the way into the muffin she started being uncomfortable, like she had to go (all right I’ve got to be descriptive in this post, so weak stomachs beware) poopy, but it was a different kind of straining than she normally does. I picked her up out of the stroller to hold her and she acted like something hurt. Decided to go ahead and head back to the hospital to let her lay down. She laid down in the car with her head in Carole’s lap and feet in mine and was just fine. Got back to the hospital and she was trying really hard to “go to the bathroom,” but she acted like it hurt. A doctor palpated her tummy and said it is a gas pain. We put a hot water bottle on her tummy and it helped and she was laughing and trying to be funny. Figured, okay, she passed it, whew, she’s okay now. Fed her some scrambled eggs and tomato for dinner. She was in a great mood, looking forward to her bath and a little sesame street on the computer. Then I picked her up to put her in bed to go make her bath and she stiffened up and screamed. She cried and screamed so bad and was in such bad pain she was wet with sweat. This lasted about 45 minutes.
Dr. Tony said she was impacted (you know what I mean), and they gave her something rectally. It “worked” after about 10 minutes, and she fell asleep in my arms from exhaustion. The doctor and nurse left, I went to roll her over on her left side, and she woke up hurting and crying again and threw up. A lot more came out “back there,” all over the place, we cleaned her up, changed the bedding, brought her to my bed and I laid down with her again and she fell hard asleep. All I could do was hold her and tell her I’m so sorry baby. It broke my heart because she wanted me to fix it so badly. She’s never experience pain like that…..I mean when she was a preemie in the hospital and all the IV’s and stuff, but I’m sure she doesn’t remember that time.
Man oh man oh man I hope she’s okay now. She’s sleeping right now in her bed as I’m writing this. She’s actually moaning a little in her sleep right now. I’m afraid there’s still some pain in there, because when I moved her from my bed to hers and laid her down she whimpered and stiffened up and kept her legs close up to her body, but she was just so exhausted she fell asleep anyways.
I don’t know what could have caused this. It’s driving me nuts to know, so I don’t let it happen again. I’m wondering if it could be after-affects from the anesthesia? Carole said she’s heard of people getting bad gas pains after being under anesthesia. But that was two days ago. Was that banana bad? Her uncomfortableness started right after eating that banana. I just don’t know. If it’s from the anesthesia, then we have two more spinals to go under general anesthesia.
Ooooh, I just don’t know. We were going to go to West Lake tomorrow, but no way am I taking her out of this hospital. I mean we didn’t come here for tourist reasons anyway. She’ll get her next spinal on Monday (Sunday night your time). I guess I justed wanted to let everybody know everything that was happening with The Bean.
Oh, yeah, just a side note…..the air conditioning in our room broke last night. Yaaaay. They couldn’t get it fixed until this morning. We brought in a few fans and dressed lightly and didn’t use blankets. But it’s fixed now.
Okay…….sorry to bum you out…….really. I just thought I’d give you guys the good, the bad, and the ugly about this whole journey and experience. It’ll get back to absolutely terrific great real soon.
I know it sounds petty to ask to throw in some “Jillie’s tummy feels better” into those prayers from all of you after you’ve been praying for something, gee, a little bigger, like success with the stem cells and changing this little girls life, walking, talking….but if you can, we would so so very much appreciate it.
I know in the end this is going to be life-changing for Jillian! I had a dream lastnight that she was walking!
So we love all of you very much!!!!!!!!!!!!!!! Thanks for loving us back!!!!!!!!!!!!!!!! I’m going to bed now!!!!!!!!!
Love,
Tami and Jillie Bean (and Carole too)
Entry Filed under: cp,Uncategorized
11 Comments Add your own
1. Jenn | September 19th, 2008 at 11:13 pm
Good Morning Family
Never to much to ask of God. With him all things are possiable. Prayers for a better tummy comming right up. Times that by at lease 100 people that are praying for all of you everyday, all day.
I am sure that she will be felling better soon. We all love you so much. talk to you soon
love jenn
2. Lori and Billy | September 20th, 2008 at 12:23 am
Hi Tam,
More prayers for Jillies Tummy to feel better. It may have been the banana, I’ve always heard and have experienced (sometimes not all the times) crampy, bloaty feeling after eating a banana, could be?? Laying down flat does seem to help so that was smart to just get her to lay down. Hang in there and know we are all thinking of you> Lots of Love, God bless you
Give Jillie a kiss for me, and another one, and another one, and one more on her little tummy, hope she is feeling better.
Love Lori, Billy, Rebecca and Vincent
3. Gwendolyn | September 20th, 2008 at 1:36 am
Hey Lovelies,
God doesn’t know big or small. And nothing is too much to ask of Divine Spirit.
Star, if she will let you, you can massage her tummy in a clock-wise motion starting on the left side going down. As you do this you can chant, “Peace be to every part of you and perfect life to every member of your body.”
Maybe some peppermint tea as well. it is very soothing and good for digestion.
xoxoxo
Gwen
4. grammakuna | September 20th, 2008 at 2:26 am
Hey Sweethearts (this includes Carole), It could have been
the anesthesia with the banana kicking in to boot. I’d keep away
fron bananas for a little while. Try other fruits. And I agree that
pepermint tea might sooth her discomfort. Prayers have been
coming since you called and will continue. She’s in the best care
around–yours. Try to get some rest. Maybe she’s passed what
needed to be passed. (Being polite) Keep us posted and worst
case senerio call Dr Mike or Dr Tony. Love,kisses,prayers AND
sugar. GrammaK. P.S. I try to keep Grammy up on whats happening, I will pass on this
5. Sharon and Jason | September 20th, 2008 at 4:54 am
Bananas ALWAYS do a number on my tummy, poor Jillie – maybe it was because her tummy was empty? Anyway, will pray for her to have complete relief from tummy issues – while maybe not big in the whole scheme of things they sure are big when they are happening! Glad to hear the spinal went so well, and 100 million stems cells – WOW.
Love you guys,
Sharon and Jason (who also had a double ender the other day – very rare for him – what a mess and he was as limp as a noodle. Just the once though and then he was fine)
6. "Skip" | September 20th, 2008 at 8:10 am
Hi Tam/Jillie&Carole Too
Headed back to the boonies ffor another week and will miss the coming messages, But be asured I will be in prayer every day and night.
I ask the church body to add Jullie to the prayer list so you will have a more prayers comeing from here.too.
Love and prayers
“Skip”
7. Kathy Enloe | September 20th, 2008 at 8:43 am
Hi Tami and Jillie and Carole — just wanted you to know you’re in our thoughts and prayers each and every day. Carole, what a wonderful friend you are and Tami, you’re amazing! I showed my Katie all the pictures from China and she thought Jillian was tooooo precious, which of course she is. All of us at Esquire are praying for you. Love you lots, Kathy & Gang.
8. Shawn | September 20th, 2008 at 10:26 am
Hey Sis.
Just stopping in to say that I love you guys. I’m not much for writing commints in these things, But I wanted to let you know that I have been reading your posts as well as the comments that others have posted. Hang in there, Just another week and you can come home again.Can’t wait.
All my love and prayers…. MUAH
9. Varinia | September 20th, 2008 at 11:28 am
Hi Tami,
For sure it was teh effect of after anastesia. Corvin had one spinal when they told me to give him something to eat in the evening and I did. he slept well but next day and teh day after he vomited. We ended up if you remember giving half a banana every half an hour, he had also fluids and glucose and vitamins.
She did not get a diasepam after teh spinal right? From our experience and other experience I know it is better not to eat anything the day after the spinal but ask the doctors to give extra glucose and vitamins. Then next day it is clear. With extra fluis alll teh stuff from general aneastesia is eliminated faster. Another factor may been that she was out. I think it is better if she rests the next day because the heat may have provoked the simptomps to be worse.
Definetely staying inside and no therapy to give her body as much rest as posible.
Another little thing next day I made sure I give Corvin something that is digested easily like fruits ( banana) no juice, bread and jam, pasta with little cheese or rice and maybe some chicked but nothing friend. Eggs are harder to digest.
Tomorrow start slowly with teh banana. Let her have half a banana then wait 30 min before giving her more. Also teh water she should drink it with a straw, slowly.
Fruits are easier to digest, then carbs then proteins including eggs, cheese, meat.
I hope she is better tomorrow but she needs a quiet day inside, not too much excitement on teh computer, maybe just strolls on teh halway, reading, little TV and rest.
I
I will be thinking of you
Varinia
10. Uncle Charlie/Aunt Vickey/S.C. | September 20th, 2008 at 9:49 pm
Tami and Jillian:
We are praying for you!
11. Varinia | September 23rd, 2008 at 8:21 pm
Hi Tami,
I hope everything is ok and than the second spinal went fine
Varinia
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