It has been a while, at least a couple of weeks since I have made an entry into Joanne’s blog. The past 2 weeks have been a tough time for both Joanne and myself. The flight home was absolutely draining and uncomfortable. We did upgrade our seats to business class from Bejing to Vancouver for the low cost of an additional $2000.00 per seat. Better seats for sure but the cost ……I think at least $1500.00 over priced. To top off the long flight home …I didn’t bring my keys to get into our house, thinking I had given Jason (our son) a copy of the key and I was also thinking Maria would be home when we arrived . But Jamie( our daughter) had a key , not Jason and Maria wasn’t at home. To make this long story short , Joanne and I spent the night of our arrival at my Mother’s house after some 30 plus hours of being awake for this trip home. Joanne was so uncomfortable for 4 more days with the jet lag and body soreness that both of us were lucky to get 2-3 hours of sleep in each night. If anyone is going on this long flight be prepared is all I can say ….this is a tough journey. Monday , Joanne’s new caregiver was supposed to start and she was a no show. She must have found other work while we were gone to China . I don’t know for sure because she doesn’t return my phone calls. This began my search for a new caregiver for Joanne and just a few days ago I signed an agreement with a young lady who will begin working for Joanne as soon as the papers clear immigration . This process takes approximately 2-3 months. So because of this Joanne had to placed in Wascana Rehab in Regina until the new caregiver arrives. This is something we have been able to avoid until now , but we will get through this minor set back and Joanne will be home as soon as possible. There has not been any further improvements with Joanne’s MS since we returned from China. She continues with physio at the Rehab and we keep hoping to see some voluntary movements in Joanne’s limbs. It has now been a little over 2 weeks since Joanne’s last stemcell injection and according to the Doctors in China we must give it at least 3-6 months before we see any improvements. So now Joanne works with physio and waits for the stemcells to take effect. As for me it’s back to work ……sometimes when it rains it pours. Bye for now!
keep the faith and keep up the good fight
wishingyou both all the best
thanks for keeping this blog going
Hi Joanne and Brian, it was so nice meeting you last Thursday and I read your last entry into your blog and I felt for both of you on this long journey home and then everything else, the house keys, and caregiver problems and your fatique to deal with.
I have both you and Brian in my prayers, may God let you be restored through those stemcell transplants. Take care and hope you had a nice mother’s day even if we both spent it at Wascana.
Marcia
Hi Joanne and Brian, I hope you are both well. Keep fighting Joanne… My husband was talking to one of his suppliers from Winnipeg who knows a lady who went through the stem cell therapy and the improvements were incredible. It did take 6 months to a year but she is now walking and going back to work. I am sure you researched this thoroughly so you know to keep on going with this fight against this MonSter. You are in my thoughta and prayers.
Sharon
hi there, hope all is well.
Haven’t heard anything in a while.
Just wondering if Joanne is noticing any improvements yet?
Take care
Sharon