Monday, April 21, 2008
April 21st, 2008
Jordan had her last lumbar puncture today and I am so very glad. Dr. Mike and the whole crew came around this morning to visit. Dr. Mike had been traveling to conferences on stem cells. I am sure he was not in the states. That was ugly. Anyway, he still encourages me as much or more than Dr. Tony about the results we will see in the next couple of months and longer. He wants to communicate with Drs. Hull and Bebin as well as Dr. Tony and I also appreciate that. Jordan had therapy and Tina said she worked so-so and was asking for me. Tina brings her to me and I asked her about standing therapy and Jordan wants to go right then. Tina looked at me like she had lost her mind because she had asked Jordan and Jordan did not want to do it then. Tina is expecting her first child in November then she will understand. Anyway, after the lumbar, Jordan comes back to the room and is supposed to lie flat for 4-6 hours. 1 1/2 hours later I am calling a nurse and physically holding her down. In comes Dr. Huang, Dr. Tony, 2 nurses and Luca. They were all suprised esp. Dr. Tony and then someone tells that Jordan is Dr. Tony’s favorite and he is shocked by her behaviour. I put my fingers to my head like devil horns and he really enjoyed that. None of the doctors, nurses, or Luca could believe how mad she was. They finally told her to just sit up if that made her happy and increased her i.v. drip so that could be taken out early. As soon as the i.v. came out she was fine. She ate her chicken nuggets like always and then watched a little Andy Griffith and is now telling me to go to bed. I think the stem cells have given her more independence if nothing else! 5 down and 1 to go and that is an i.v. injection on Friday. I am going to go to bed and possibly rest. She usually tells me right after I lie down that she needs to go to the bathroom. Please pray for my sanity as well as Jordan. Love to all,
Sabrina
Entry Filed under: glucose transporter deficiency blog,Uncategorized
3 Comments Add your own
1. Susie | April 21st, 2008 at 9:25 pm
Hang in there, just a few more days. Are you getting to come home early? Did you get my emails?
UNA this weekend, not sure if I am going.
2. Susie | April 22nd, 2008 at 8:15 pm
I am not going to UNA, except for the concert. Our girls are rooming with Melissa Nolan.
3. Anita | April 23rd, 2008 at 8:25 pm
Hey, Sabrina…Just a few more days and you’ll be coming home. My heart aches for you having to be there, but praying hard that it will all be worth it. I’m sure it will be nice for both of you to get home and have a good homecooked meal!! Probably won’t want any Chicken Nuggets for awhile
Sure have enjoyed your blog…read it every day.
Love you both,
Anita
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