Jordan’s Glucose Transporter Deficiency Blog

Tuesday, April 22, 2008

April 22nd, 2008

Another day done and this one has been a doozy.  Jordan slept through the night with no problem and got up in a mood.  She did not want to do anything and we really haven’t.  The only therapy she would do was the electric wave and then she refused p.t., accupuncture and standing.  I took her to the RTMart for some eggs and to get nuggets from KFC (she will have a beak) and Dr. Mike was waiting for the elevator at the same time.  I got to talking with him and he is so very kind and really seems concerned with his patients.  He was also interested in the diet.  I don’t think they use the diet over here.  Anyway, he was asking me what she eats and about her supplements so maybe they might use it in the future.  I told him about my package from home being in customs.  Around 4:30 today I got a call from FEDEX re: package.  They started out wanting copies of my visa and passport so I went to get an interpretor and of course Luca was busy and Alf and Sid were gone.  Nurse Sophie came to help me and when all is said and done since it has food in it they cannot deliver it.  I have to have certification from an agency in the states that it is safe to eat.  What a joke!  In order for them to throw out the Oscar Mayer precooked bacon and the cheese it will take at least a week and they will not guarantee delivery before I leave.  To return the package I have to write them a letter and fax it to them.  This hospital DOES NOT have a fax.  So when Richard woke up this a.m. he was given yet another task.  We will see if we ever get it back.  Then Alice delivered Jordan’s supper and it wasn’t right.  Instead one order of nuggets I had five.  Jordan probably would have eaten them but anyway I finally had only one order of nuggets.  So bad days do happen in foreign countries.  I was telling momma/daddy tonight that one change I see in Jordan is that she is even more independent.  She flat out refused to touch her nose for the doctor this a.m. turned over face down on the bed.  Heaven help me when I get home.  Well she is again ordering me to bed. For those who have asked my internet service is very hit and miss and I have not been able to log on for the past few days.   I ordered our banner today for the doctors.  It says:  “Thank you for proving that faith, love, hope and care know no boundaries.  Love, Jordan Stover and Family  Alabama  USA   April, 2008″.   I also ordered the cakes today for the nurses/pt staff and now I have to get them flowers.  I have a few things to keep me busy along with Jordan.  She is ordering me to bed again now so I better go.  Please keep us in your prayers a little longer.  Love to all,

Sabrina and Jordan

PS  Thanks for all the comments-I feel like we have had conversations.

Entry Filed under: glucose transporter deficiency blog,Uncategorized