Comments for Justin's Spinal Muscular Atrophy Blog http://blog.stemcellschina.com/justinleroux Getting Beike's Stem Cell Treatments at Hangzhou Xiaoshan Hospital Tue, 02 Dec 2008 20:41:24 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Tragic News by Egill Helgason http://blog.stemcellschina.com/justinleroux/2008/12/02/tragic-news/comment-page-1/#comment-80 Egill Helgason Tue, 02 Dec 2008 20:41:24 +0000 http://blog.stemcellschina.com/justinleroux/?p=30#comment-80 Dear Tatiana I am so sorry to hear about your son. I just discovered your blog earlier today, before you wrote about he had passed away. I hope you all are doing well. Very best regards, Egill Helgason, Iceland Dear Tatiana
I am so sorry to hear about your son. I just discovered your blog earlier today, before you wrote about he had passed away. I hope you all are doing well.

Very best regards,
Egill Helgason,
Iceland

]]> Comment on Update by Egill Helgason http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-78 Egill Helgason Tue, 02 Dec 2008 13:20:40 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-78 Hi Good to hear your Justin has made some improvements. I myself have a 14 year old daughter with SMA type III. How has Justin´s improvments been since July ? Best regards, Egill Helgason Iceland Hi
Good to hear your Justin has made some improvements. I myself have a 14 year old daughter with SMA type III. How has Justin´s improvments been since July ?

Best regards,
Egill Helgason
Iceland

]]> Comment on Update by Michael http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-77 Michael Mon, 01 Dec 2008 13:41:46 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-77 Hi I saw your video on youtube and looked at you blog etc. My son also has SMA. How real and effective is this treatment? Hi I saw your video on youtube and looked at you blog etc. My son also has SMA. How real and effective is this treatment?

]]> Comment on One Down Two To Go by lia licsko http://blog.stemcellschina.com/justinleroux/2008/05/29/one-down-two-to-go/comment-page-1/#comment-76 lia licsko Fri, 07 Nov 2008 03:18:01 +0000 http://blog.stemcellschina.com/justinleroux/2008/05/29/one-down-two-to-go/#comment-76 My beloved Lovebug died on November 2, 2008. just before his second birthday Still bolieve in stemcell treatment and I' wish instead spending millions and millions on war killing on both side just a smoll part of it would go to research to save children all over the world. We should all stand together and demand to feed and heal the children before anything else My beloved Lovebug died on November 2, 2008. just before his second birthday
Still bolieve in stemcell treatment and I’ wish instead spending millions and millions on war killing on both side just a smoll part of it would go to research to save children all over the world.
We should all stand together and demand to feed and heal the children before anything else

]]> Comment on Last Stem Cell Treatment by lia licsko http://blog.stemcellschina.com/justinleroux/2008/06/06/last-stem-cell-treatment/comment-page-1/#comment-75 lia licsko Tue, 04 Nov 2008 04:54:19 +0000 http://blog.stemcellschina.com/justinleroux/2008/06/06/last-stem-cell-treatment/#comment-75 to Ming !!! I'hope your baby is doing fine, wish you success to Ming !!!
I’hope your baby is doing fine, wish you success

]]> Comment on Update by Robin Heffner http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-74 Robin Heffner Wed, 24 Sep 2008 07:58:54 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-74 Hello From North Carolina! I have been reading Justin's blog and keeping up with his progress. I have SMA and will be traveling to China for treatments in October. I do hope you continue to see improvement and I will certainly pray for Justin and family. If you have time to e-mail I would love to hear anything you can share that may help this trip go smoothly. I am somewhat concerned about finding food there I will eat. I am a light picky eater and I am not much for trying new foods. By the way I think I will be the first adult with SMA to receive the treatments. I am a young at heart 51 years old. My weakness showed up when I was 18 months old. I have participated in all types of research studies over the years. And from time to time I am involved with the Muscular Dystrophy Association. I even traveled to Las Vegas one year for the Telethon. I recently joined Families With SMA. The trip to China is by far the longest trip I have tried to accomplish. I know it is going to be hard but my weakness is now to the point I have got to try something like this to keep going. Thank you for sharing your son with all of us who read the blogs. He is adorable! I have a granddaughter that is 17 months old and she just lights up my life. I hope to gain strength so I can be around to watch her grow up. I am telling you way too much about me. I mainly wanted to let you know how much I have enjoyed reading about your son and seeing his cute pictures. ROBIN HEFFNER Hello From North Carolina!
I have been reading Justin’s blog and keeping up with his progress. I have SMA and will be traveling to China for treatments in October. I do hope you continue to see improvement and I will certainly pray for Justin and family.
If you have time to e-mail I would love to hear anything you can share that may help this trip go smoothly. I am somewhat concerned about finding food there I will eat. I am a light picky eater and I am not much for trying new foods.
By the way I think I will be the first adult with SMA to receive the treatments. I am a young at heart 51 years old. My weakness showed up when I was 18 months old. I have participated in all types of research studies over the years. And from time to time I am involved with the Muscular Dystrophy Association. I even traveled to Las Vegas one year for the Telethon. I recently joined Families With SMA.
The trip to China is by far the longest trip I have tried to accomplish. I know it is going to be hard but my weakness is now to the point I have got to try something like this to keep going.
Thank you for sharing your son with all of us who read the blogs. He is adorable! I have a granddaughter that is 17 months old and she just lights up my life. I hope to gain strength so I can be around to watch her grow up. I am telling you way too much about me. I mainly wanted to let you know how much I have enjoyed reading about your son and seeing his cute pictures.
ROBIN HEFFNER

]]> Comment on Update by Julie Clegg http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-73 Julie Clegg Mon, 15 Sep 2008 18:16:09 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-73 That is such amazing news about your son!. I actually became aware of Justin while researching SMA and Stem Cell treatment. Our Son (15 months) was diagnosed in April 08 and we really would love to find out more about your medical experiences. We are seriously considering the same treatment and need to become more educated on the topic. I think I read/heard somewhere that you are from Canada too. Would love to get in contact if possible. Julie That is such amazing news about your son!. I actually became aware of Justin while researching SMA and Stem Cell treatment. Our Son (15 months) was diagnosed in April 08 and we really would love to find out more about your medical experiences. We are seriously considering the same treatment and need to become more educated on the topic. I think I read/heard somewhere that you are from Canada too.
Would love to get in contact if possible.

Julie

]]> Comment on Update by Ritesh Sehgal http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-72 Ritesh Sehgal Tue, 05 Aug 2008 09:01:48 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-72 Dear Sir/Mam It is infacvt a gr8 news that Your little son Justin has seen improvement. I am from India (New Delhi) and my little angle my daughter 6 months old have been diagnosed with Spinal Muscular atrophy type 1. Please let us know whether the treatment was a suscess and the improvement that Justin has showed. It would be a gr8 help for us. We really pray and hope that Justin could be the first SMA patient to be fully cured from the desease. With lot of hope and wishes Ritesh Sehgal(Father) +91-9818099200 Dear Sir/Mam

It is infacvt a gr8 news that Your little son Justin has seen improvement.

I am from India (New Delhi) and my little angle my daughter 6 months old have been diagnosed with Spinal Muscular atrophy type 1.

Please let us know whether the treatment was a suscess and the improvement that Justin has showed. It would be a gr8 help for us.

We really pray and hope that Justin could be the first SMA patient to be fully cured from the desease.

With lot of hope and wishes

Ritesh Sehgal(Father)
+91-9818099200

]]> Comment on Update by gisele schabach http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-71 gisele schabach Mon, 04 Aug 2008 02:39:06 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-71 justin, you have rapid improvements. I have a child with type 1 and sma His case is very similar to the justin, but my son has tracheostomy and gastrostomy, since 24/09/2007. I want to go to china to do a treatment, please return me. help me. help me Gisele justin, you have rapid improvements.
I have a child with type 1 and sma His case is very similar to the justin, but my son has tracheostomy and gastrostomy, since 24/09/2007. I want to go to china to do a treatment, please return me. help me. help me
Gisele

]]> Comment on Update by Emma http://blog.stemcellschina.com/justinleroux/2008/07/31/update/comment-page-1/#comment-70 Emma Sun, 03 Aug 2008 17:05:13 +0000 http://blog.stemcellschina.com/justinleroux/2008/07/31/update/#comment-70 Hello! My name is Emma and I am 16 years old. I live in Sweden and i have also SMA, but type 2. Me, my family and my friends are very interested of this stem cells theory. If you want, you can email me on this adress (emma@emmixen.se). We would be very happy if you did! I hope it helped Justin a lot. Hope to hear from you! //Emma Hello! My name is Emma and I am 16 years old. I live in Sweden and i have also SMA, but type 2. Me, my family and my friends are very interested of this stem cells theory. If you want, you can email me on this adress (emma@emmixen.se). We would be very happy if you did! I hope it helped Justin a lot. Hope to hear from you! //Emma

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