3 Month check up

September 30th, 2008 by Kacie

Well it has been 3 months since we left China. Kacie is making small improvements all the time. She can now play twister without help. She can see where to put her hands and feet. She can even spin the dial and tell you what color it landed on. This was something that we had to help her with before.

Kacie is in the 4th grade this year and a new building. She has figured it out very well. I have walked her in to school every morning since she started preschool. I have never seen her look around so much. She use to walk into school and her eyes would look down and she would just use her cane. Now she tilts her head backwards and is trying to look where she is going. She seems to be walking faster and with more confidence.  When Kacie gets to the end of the hallway where she turns to go to her class room she looks around to see where she needs to go. She even spotted the water fountain at 20 ft away. 

Though the eye doctor says he has seen no scientific evidence that her vision has changed,  I have.  I can’t figure out how he says nothing has changed when her left eye only seen light and dark. Now it can see movement for sure. On Thursday Kacie couldn’t count his fingers with the left eye but she said she could something stickin up. The eye doctor believes we are just trainin her brain and nothing else is changing. I don’t think he wants to believe that this treatment will change anything.  But what I don’t understand is how you train an eye that has never seen!!! We will get photos of her optic nerve at her 6 month check up. I hope there is some evidence for him then to tell we’re not training her brain.

I have seen Kacie for 9 years and I can say that she is changing, though it is slow. I do not tell her to look around and see all the new things she just has started this on her own.  When you ask her if what she sees is different, she’ll say “yeah it is a little. ” 

Rinda

Kacie’s momma

New things are happening

July 10th, 2008 by Kacie

Well we have been home now for a month. Seems like there was so much to get caught up on and our garden still needs alot more attention.

Since we have been home I have started working with Kacie with some flash cards. Trying to make her use her eyes as much as we can. When we first started with the flash cards she said that will be boring and its for babies but if we don’t work on them she sure ask about them and then she admits its kinda fun to be really seeing those things. She could see the cards about 4 inches away and could name most of her colors and shapes. The shapes were a black line on white card and she couldn’t hardly tell the shape so I colored it red for her. She then could identify those shapes. I hadn’t worked with her with those in about a week because of the 4th of July holiday we had been really busy. Well yesterday I worked with those again and she just flew threw them. This time she could tell the shapes even the ones that wasn’t colored in. She was also lookin at them about 8 inches away insead of 4. She is also learning her numbers. I will show her a card with a number and if she doesn’t know it I will have her describe to me what it looks like then I will tell her that number. She is really pickin up on those fast too. Her eyes don’t seem to shake near like they use to. And when you tell her to look at something both eyes turn toward it.

The other night we were tuckin her and bubby in bed. Daddy was down on his knees tuckin bubby in and when Kacie came in she stepped right over his legs. Usually if she had to step over something there was alot of toe stumping and studdar steppin and sometimes she wouldn’t make it over. She just flat stepped right over his legs. He was like “Kacie you just stepped over my legs”. She said” well i could see them.” It was just another moment of smiling between daddy and me.   

Before we went to China I had went to see her pediatrician to see what he thought. All he would say was we were on our own and he didn’t know anything about it. But when we went the other day he was so excited. He had Kacie count his fingers and he didn’t say anything he just smiled. When we were leaving, he walked up to the nurses station and told the nurses she counted my fingers and everyone was like Yeah!!. Just made me feel better knowing that he was excited about it. He wanted to make sure that we were working with her at least an hour everyday on looking at things.

I’ll update as more changes happen. Thank you for your thoughts and prayers.

Rinda (Kacie’s Momma)

We’re home!!!

June 12th, 2008 by Kacie

After many many long hours of traveling we finally made it home on Monday evening. It is so good to see all our family and friends again. While we had fun and enjoyed our trip, there is no place like home. Thank you to everyone who has been praying for Kacie and her journey in China. Thank you for all your support. Without you, all these amazing things would not be happening for her.

I will update her blog as changes happen and after her doctor appointments. So please check back every now and then.

Thank You,

Rinda

Leaving Qingdao

June 7th, 2008 by Kacie

Sorry I haven’t udated. We have been spending our last few days out as much as we could. We seen some new sights and did a little shoppin. I can’t believe the time has come for us to say goodbye. It has been a wonderful experience that we will always remember. The staff at the hospital was so amazing. You couldn’t ask for nicer or sweeter people. They are always smiling and saying hello. They have given us something here that we couldn’t get anywhere else. And we couldn’t have gotten here without everyone at home. So many people gave so much and we just can’t say thank you enough. You ALL are helping a dream come true. Kacie has started having changes in her vision and should continue to change thru the next year. Even though this is a very slow process, we are so excited to see what each new tomorrow brings.

Please keep us in your prayers as we travel home. Lord willing we should arrive back at Arkansas on Monday morning.

I can’t wait to see everyone. We have missed you all so much. We’re comin home boys!!!

Lovin & Missin you all,

Rinda

Hot Pot

June 5th, 2008 by Kacie

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Well being the day after Kacies treatment her back and head hurt a little when she stirs, like the other times, we didn’t do much. We went to acupuncture and came back to the room for most of the day. We have read almost 20 chapters of her Little House on the Prairie books today.  Needles to say I about lost my voice. We finally finshed it though. After that we was  getting ready to go out for supper and they brought in a new schedule for the rest of the week. I guess                    Martin(acupuncture) is going to be off Friday instead of Sunday. So we are done w/all needle pokings. Kacie is so glad she’s not going to be a pin cushion no more. All we have tomorrow morning is doctor visiting and then we  are done.

Tonight for supper Kirshner took us all out to a place I think was called Hot Pot. It was really neat. You had a burner with a pot on it and they put some kind of broth in it. It would get really boiling hot. Then they brought out your food raw and you cooked it in the hot broth. We had some beef and lamb in thin strips and some chicken and beef meatballs. Then there was all kinds of green veggies and some mushrooms. They say this kind of meal is traditional here. It was good. We enjoyed the food and getting to visit with everyone. Tomorrow and Saturday we are going to go out and try to see all we can before we fly out on Sunday.  I can’t wait to be back home I am missin everyone so much.  Especially my boys.

Lovin & Missin you all,

Rinda

5th treatment

June 4th, 2008 by Kacie

Well Kacie had her 5th and final treatment today at around 2:00p.m. She said this one hurt even more than the last one. But she is doing good right now. It has been 30 minutes since she got to get up from her 6 hours of laying. She is settin up and playing with her dolls. Her back hurts a little and she has a slight headache but she seems good other than that. That is how she usually feels after a treatment. She had grandma go get her a KFC Shrimp sandwich AGAIN. Grandma went and got it for her for supper and got her some more Evian water from the rt mart. We just read some more of Little House on the Prairie and watched some movies while we waited for time to be up. We walked the stairs right before treatment so maybe she would be tired and ready to lay for a while. She did good the hole time of laying. We are so glad this is our last treatment. Kacie says she is tired of being a pin cushion. She only has 2 more days of acupuncture and she is so glad of that.Thank you again for all your thoughts and prayers.

Lovin & Missin you all,

Rinda

A walk in the Park

June 3rd, 2008 by Kacie

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Today we didn’t go to far. We took a walk in the park that is right here close to the hospital. It is called Century Park. It is the same park that we went to earlier but we went to another part of it that we hadn’t seen.  It has a lot of pretty things to see. One of the really neat things is that they are getting ready for the olympics. They are putting together so many different things which makes the park so bright with colors. It is so neat that we are in a town where the sailing part of the olympics are going to be held. Every where you go here it seems they are gettin ready for it.  It was nice to get out and I think we walked Kacie’s legs off so maybe she will be ready to spend her day laying around tomorrow evening. She will get her 5th and final treatment some time after noon. She is doing really good and I think I notice little things change here and there.

Well that was our day and now grandma is reading another Little House on the Prairie book. She just loves to listen to those.

Please keep her in your prayers.

Lovin & Missin you all,

Rinda

Out again

June 2nd, 2008 by Kacie

Well today Kacie decided we need KFC AGAIN!!! So after we got done with  acupuncture  we got around and had lunch there.  Of course Kacie got a shrimp sandwich, her favorite thing there. She says she has to eat alot of them because she dont think they will have one back home at our KFC. 

Well an interesting thing happened while we were sitting there. Kacie asked me if I was eating my french fries plain and I said no I had Ketchup.She looked over toward mine and just stuck her french fry right in the ketchup. I was like wow. She always stuck her fingers in her ketchup  to see where it was even when it was right in front of her. This time it was closer to me and she just dipped it right in there. I said Kacie you didn’t stick your fingers in the ketchup to find it and she said no I could see it. =~) Just made me smile!! Slowly it is working. We are so thankful for what she has already recieved and excited to see what each tomorrow brings.

Thank you for all your prayers.

Lovin & Missin you all,

Rinda

Polar Ocean World

June 2nd, 2008 by Kacie

polarwrld-004d.JPG Kacie and Paden @Polar Ocean World

polarwrld-002b.JPGpolarwrld-001a.JPG                                                                                               Since we were lost anyway we decided to stop a popular picture taking spot.

We had lots of fun at Polar Ocean World. We got to see all kinds of sea creatures. There were more larger animals here than at underwater world. I wish bubby could’ve been here to see the sharks and polar bears. He would have really loved it. We even got to see a show with dolphins. Even though we might have got lost for a couple of hours trying to find Polar Ocean World in the mean time we found a nice place to eat. We got to try lots of different foods and actually they were kinda good. We are gettin better at those chopsticks too. We had lots of fun just being out of the hospital.

polarwrld-003c.JPG Kacie and me eatin w/chopsticks.

When we got back they were having a party for Mitzi, who was going home the next day. So we sat around and visited with everyone and had some pizza. The day went by alot faster than the others.

Lovin & Missin you all,

Rinda

Lazy Day

May 31st, 2008 by Kacie

Well today has been a lazy day around here. The day after treatments Kacie has a slight headache and back pain so we don’t do anything. She went to acupuncture this morning and then came back to the room and has lazied her day away. As long as she ain’t stirring to much she is fine. We have finished another Little House on the Prairie book today and had more tea parties. Jessie, Cody’s mom, went to the RT Mart yesterday and bought Kacie a present. It was beads that you can string and make a bracelet or necklace. Kacie started working on that today and has really enjoyed it. She has made 2 bracelets and I believe next RT Mart run we are going to get her some more.  It was so sweet of them to get those for her and I am so thankful that they did. She has gotten so bored with everything we brought and she has really enjoyed doing something different.

We got to meet Kirshner today. She came by our room and visited with us for awhile. We also got to meet her son, Brandon, he was such a delight and brightened our day. Paden and his family, Cody and his family and then Kacie and her family (us) are all going with Kirshner to Ocean World  in the morning. We are looking forward to getting out again.

Thank you for all your thoughts and prayers.

Lovin and missin you all,

Rinda