24th November – Saying Goodbye & Lumbar tomorrow :(

November 24th, 2009

Today Keiran was woken by the nurse at 7.20am to have his bloods taken to check his growth hormone level. So it was time to get up, breakfast & then the usual wake up call from Forest with electric wave therapy (with several games of dominoes – 6-1 to Keiran), ear point & accupuncture. As always, Keiran just gets on with it and does as he’s told. We had Dr Apple come round with a Professor from downtown & they were trying to access Keiran’s vision.

Keiran really loves the afternoon therapies. He really does look forward to Forest knocking on the door & he quite happily chats away to Forest as he’s having his massage. Firecups; it’s amazing to see just how relaxed Keiran is………….it’s definitley worth it. The smile on his face just melts my heart.

This afternoon we had to say goodbye to Pam, Dave & Sam………we wish them well & really hope that Sam continues to show improvement. It’ll be quiet without those guys!!!!

Also this afternoon we had a chat with Jon from Beike H/O (we spoke with him & Matt late last week). He spoke to us with regard to any concerns we’ve had with our room etc since we arrived. They have taken our comments onboard and have tried to rectify the smell in the bathroom by resealing the sink twice but it didn’t work. We’ve had someone put something in the drain cover and have now got 3x airfreshners on the go, plus a candle. Fingers crossed it might do the job (I’m not so sure….but trying to stay positive)!!!

This evening we went to the Holiday Inn to say goodbye to more great people. Our best wishes go out to Eric, Boudelle, Emelie & Victoria & also to Chris, Wendy & Michaela……..we wish you every success & happiness with the future. It’s been a pleasure to meet you all.

Now it’s back to the hospital room & thinking of tomorrow. Another day of pure anxiety, worry & fear. My beautiful son; not a care in the world; me it makes me sick in my stomach and an aching in my heart just thinking about tomorrow’s treatment……….. BUT…………… his strength just ozzes out & I need to grab onto it. He’s one tough cookie!!! He will be receiving his fourth treatment – 2nd one by Lumbar. Will let you know how it goes tomorrow.

Thanks for all your support, even though we are miles apart; I’m always thinking of home. Love you guys.

xxxx

Entry Filed under: sod,Uncategorized

6 Comments Add your own

  • 1. Kelly  |  November 25th, 2009 at 1:48 am

    Thinking of you as always. Good luck for tomorrow, again keiran you are such a star!

    I know i keep saying it but we are really proud of you. Look forward to speaking to you soon.

    I know its probably sad saying goodbye but just think it will be your turn to say goodbye and leave to come home sooner than you think.

    Lots of love, hugs and kisses to you all xxxxxxxxxxxxxx

  • 2. Llian  |  November 25th, 2009 at 4:04 am

    Hi there

    Sorry for not mailing sooner. I know it must be dragging for you but the time seems to be flying this end. Just over a week and you’ll be home! Can’t wait to see you.

    There’s nothing much to report from here. Lauren is getting cheekier by the second. (Her favorite word is NO!) and i am getting fatter by the second!

    Hope all goes well tomorrow (Prob today by now). Give Keiran a big kiss from me and burp in the ear from Uncle Matt. :-)

    Take care and try to relax a little bit. There’s nothing wrong with sitting still for a while! :-) xxxxxxx

  • 3. Shaw's  |  November 25th, 2009 at 4:23 am

    Good luck for tomorrow Keiran!!
    We are thinking of you all and counting the days until you are home.
    Lots of love

    C, S and A xxxx

  • 4. mum/nan  |  November 25th, 2009 at 5:19 am

    Hi All

    Thinking of you all and hope all goes well tomorrow. Keiran is so brave through all of this and he will know that this is a chance you had to take to give him the same opportunities me and you have. He loves his mum and dad and he knows how much you love him

    The girls are fine with me, ill make sure there happy and im sure they wont resent you for giving keiran there brother) this chance. You wouldnt want to spend the rest of your life wondering what if ?. Dont give up hope yet theres still time its early days yet.

    When i read yesterdays blog and todays it upset me to think i cant be there for you when you get down H but i am in mind. May not get chance to speak to you in the morning but thinkng of you its no good me trying to tell you not to get upset but hope all goes well and Keiran copes as well as normal

    Love you all loads xxx

  • 5. londonruby  |  November 25th, 2009 at 7:25 am

    What a trooper!! So glad he is so brave!! Chin up mum everyting will be okay!! You have given him an opportunity to improve his quality of life!!! Good for you!! you are all in our thoughts and prayers!!

    Ruby

  • 6. Auntie Joanne  |  November 25th, 2009 at 6:48 pm

    Fantastic to read that Keiran is loving the therapy sessions, bless him, I can just picture him smiling all the way through it too.

    H stay strong – it is always hard to watch your children go through anything, but keep telling yourself it is for a very special reason and it is something that you had to try.

    You and Keith are being very strong for Keiran and I dare say you are all being strong and supportive for each other.

    Like Kelly says it will nearly be your time to say your goodbyes and come back home. Everyone is so very proud of you and amazed at Keiran’s bravery throughout everything.
    Keep smiling babe – luv to you all xxx xxx xxx

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