7th Stemcells treatment via IV

December 2nd, 2009

How we managed to get up this morning I have no idea. A group of us went out for dinner at the Holiday Inn last nite to celebrate Brandy, Chad & Spencer’s last nite on the 8th Floor. When we got back to the hospital we sat in the common area chatting and having a laugh (it was one of the best days we’ve had since being in China). Before I knew it, it was 1.30am & time for me to get in my pit.

It was lovely to be able to talk to Matthew’s mum Bernadette, Cathy & Ryan (Mallory’s parents), Brandy & Chad (Spencer’s parents) & Chris & Michelle (Amy’s Parents). These children are so wonderful and it’s heartwrenching to listen to the stories of what they’ve been through BUT we will continue with our fight for our children to have the best life possible!!

It was another sad morning as we watched Brandy, Chad, Spencer, Mildred & Lulu set off for the airport. It sure will be quiet around this place now. We will miss those guys but wish them all the success in the world. Will def stay in contact with them!! Thank you for some sanity over the past few weeks LOL! We are now the longest serving family on the block & will be the next to leave……

Keiran was great again today. He did ask for numbing cream to be applied to his hand before the nurses were due to come and insert his canula. His strength through all his treatments & therapies has been outstanding!!! His canula was fitted and he was very relieved that it went in first time. For some reason my cold has hit me with a vengenace & I was unable to go upto the IV room with him at 2.30pm when he was receiving his stemcells. I had to watch Keith take him up and say goodbye to him at the stairs :( After a very long hour……..he strolls back into the room ‘Hi Mum; what you been doing?’ Bless him…….never mind ME I want to know about him LOL. Looks like his body is not having any bad reactions to the stemcells as he’s not suffered with any side effects from the 5x IV & 2x Lumbar. We have one more Lumbar scheduled for Friday & then the stemcell treatment is finished YEAHHH.

We are due to go Downtown to the Eye Hospital tomorrow for Keiran to have another VEP test. Dr Apple will then compare the new test against the one originally done when we first got here. Will post as soon as I get results :/

Just taken some Sudofed & it’s an early nite for me. Just hope Keiran & Keith don’t end up catching it.

Thanks guys & girls for all your support, without it this would not have been possible & with everyones kindness & generosity we’ve managed to give Keiran 8 treatments rather than the original 6. To you we are all so very grateful.
xxx

Entry Filed under: sod,Uncategorized

8 Comments Add your own

  • 1. sarah  |  December 3rd, 2009 at 1:57 am

    hi all..glad to here all is going well and that keiran is ok, hope u feel better soon hayley any stay strong. love to u all. sarah and co xxx

  • 2. auntie emma  |  December 3rd, 2009 at 2:56 am

    hello all have a cold to and james is poorly to . I read this every day and you are always in the back of my mind thinking of you all XXXX

    LOts of love all of us XXX

  • 3. Alison  |  December 3rd, 2009 at 3:16 am

    Hi again. nice to hear that you all went out last night, sad for you that more of the people that you have met are leaving, mind getting nearer for you, this time next week you will all be waking up in your own beds. Keiran as ever is the bravest boy, keep up the good work Keiran and you never no you might see us in the new year. Keep up the hard work too mum and dad it will all be worth it in the end.
    Love to all of you Alison, Mick, Kyle and Kane xx

  • 4. Amelia, Aidan, Tersa, Shaun Reynolds  |  December 3rd, 2009 at 5:27 am

    Hi there

    We are pleased to hear all is well with Keirants treatment. Weve been follwoing the daily blogs. Millie is back on track and is so proud of how everything is progressing. The last week has soon come around. The Christmas spirit is just stirring at home with the Advent calendars. We bought Aidan a High School Musical one as thatsthe next paly at school LOL he’s disgusted wanted to do Foot Loose.
    Hope the cold clears so your all fit for the journey home.
    Best Wishes

    Reynolds Clan – Telford

  • 5. londonruby  |  December 3rd, 2009 at 7:02 am

    WE are so happy to hear how well Keiran is doing and we do hope you get better soon!! We look forward to reading your blog everyday!!

    Blessing to you all, you are in our hearts and prayers!!

    WE will fly out of NY on Monday

  • 6. Shaw's  |  December 3rd, 2009 at 2:58 pm

    Hello there Spainys!

    Nearly all over and then you can come back and enjoy the constant rain we are having lol! Keiran has been amazing through all of this and i love his comment about moving stools! What an answer ha ha ha. Cant wait to see you all when you get back, but will give you a few days peace and then we can catch up. Bottle of red is chilling in the fridge waiting for you! Hope you recover from your cold soon. Love to you, keith and keiran xxxxxxxxxx

  • 7. Tucci's  |  December 3rd, 2009 at 5:05 pm

    Hi Everyone,

    Great to read that you all had a night out and stayed up chatting and catching up (a little bit of normality in such a hectic lifestyle at present), prob did you the power of good.

    Hopefully you have managed to shift your cold by the time you read this…………..but typical that you have got a cold when you least need it most.

    Well done to Keiran, Keith and you H………………all fantastic (as always) and Keiran is such a brave little soldier we are all so very proud of him.

    Countdown to coming home now sis – hope yr better before the journey home.

    Luv to you all and catch up soon xXx xXx xXx xXx xXx

  • 8. julie knott  |  December 4th, 2009 at 12:39 am

    hi guys, its so good you are coming home soon. Glad Kierans doing so well, he really is amazing isnt he?. Just a couple more days and home, hang in there and see u soon. Love 2 u all x x x

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