Final Stemcell Treatment (#8)
Well today was Keiran’s final treatment which he received via Lumbar. I am pleased to say that all went well again and he was just fantastic as always. Although, Keith & I still felt the same anxiety as the first Lumbar he received; 20 minutes is a long time behind a closed door. The nurses think we are crazy as we wait nervously behind the closed door instead of the waiting area. He got a bit cranky for the last hour or so of laying down; but who can blame him; 6 hours is a long time – especially as Keiran doesn’t like sitting for a long period of time!
We received some good news yesterday. Dr Apple came to see us last nite as she was so excited that she couldn’t wait until this morning to tell us. Keiran’s VEP test has improved from the initial test that was done when we first arrived :O) His readings on the test picked up that his optic nerves were reacting & responding much better; basically means that over the next 3-6 months that we should be able to see improvements with his vision!!! To add to this…….Dr Apple was doing a screening test with him yesterday morning (where Keiran counts fingers & they measure the distance that he can see them) AND he can count fingers at 2-3 inches in front of his left eye!!!! Something that he could not do before………he only could distinquish light in his left!!!! It’s amazing news!!! We’ve also managed to teach Keiran to read the letters A,B,O,X (4inches in height). The Dr’s here have urged us to try and teach the letters to Keiran and get him to try and draw what he see’s. This is going to be a challenge in itself for him as well as us BUT so very promising!!
Well that’s our news from China……………………… I have been longing to say that improvements have been achieved BUT it’s only been in the past few days that we’ve noticed them & had it confirmed. Although these are very small steps; we are elated to know that these can keep growing. Keiran has done us so proud & I know he will continue to. He hasn’t noticed anything himself but was rather pleased when he realised he was counting fingers with his left eye (as he says ‘my weak eye’). Let’s just keep our fingers crossed that the immature stemcells will keep growing and work magic
Keiran is having blood tests in the morning and then we’ve got a ‘free day tomorrow & sunday’. We are counting down the days until we are home – 4 days to go!!
Missing you all & can’t wait to get home.
Love Hayley xxx
14 comments December 4th, 2009