Archive for December 4th, 2009

Final Stemcell Treatment (#8)

Well today was Keiran’s final treatment which he received via Lumbar. I am pleased to say that all went well again and he was just fantastic as always. Although, Keith & I still felt the same anxiety as the first Lumbar he received; 20 minutes is a long time behind a closed door. The nurses think we are crazy as we wait nervously behind the closed door instead of the waiting area. He got a bit cranky for the last hour or so of laying down; but who can blame him; 6 hours is a long time – especially as Keiran doesn’t like sitting for a long period of time!

We received some good news yesterday. Dr Apple came to see us last nite as she was so excited that she couldn’t wait until this morning to tell us. Keiran’s VEP test has improved from the initial test that was done when we first arrived :O) His readings on the test picked up that his optic nerves were reacting & responding much better; basically means that over the next 3-6 months that we should be able to see improvements with his vision!!! To add to this…….Dr Apple was doing a screening test with him yesterday morning (where Keiran counts fingers & they measure the distance that he can see them) AND he can count fingers at 2-3 inches in front of his left eye!!!! Something that he could not do before………he only could distinquish light in his left!!!! It’s amazing news!!! We’ve also managed to teach Keiran to read the letters A,B,O,X (4inches in height). The Dr’s here have urged us to try and teach the letters to Keiran and get him to try and draw what he see’s. This is going to be a challenge in itself for him as well as us BUT so very promising!!

Well that’s our news from China……………………… I have been longing to say that improvements have been achieved BUT it’s only been in the past few days that we’ve noticed them & had it confirmed. Although these are very small steps; we are elated to know that these can keep growing. Keiran has done us so proud & I know he will continue to. He hasn’t noticed anything himself but was rather pleased when he realised he was counting fingers with his left eye (as he says ‘my weak eye’). Let’s just keep our fingers crossed that the immature stemcells will keep growing and work magic :)

Keiran is having blood tests in the morning and then we’ve got a ‘free day tomorrow & sunday’. We are counting down the days until we are home – 4 days to go!!

Missing you all & can’t wait to get home.

Love Hayley xxx

14 comments December 4th, 2009

3rd Dec – VEP Test – 5 days to Go!!!

Today Keiran had his morning therapies with Forest; Electric Wave Therapy, Accupuncture & Ear Point. Keiran sat on the bed & played dominoes with Keith as I still don’t want to get too close to him for too long (which is killing me).

The Dr visited in the morning and explained that we would be going downtown to the Eye Hospital around 12.30pm for another VEP test. Cliff (a company driver) took us & another family into downtown. This gave us a good opportunity to speak with Shane & his parents. They arrived in Qingdao 3 days ago & have only just recovered from their flights. Shane sounds like an amazing man…..He has come for treatment for his optic nerves too. He suffered with a heartattack 2 yrs ago & as a result of a needle being injected in his arm it caused a bleed for 11hours; his optic nerves damaged & lost his sight & has limited use of his right arm. We will chat to him some more I’m sure.

After 2 hours of waiting in the hospital (which was not pleasant one little bit) Keiran went in to have the test. Once again, it was the same drill………..he’s got a bald patch on the back of his head again – so I’ll really need to get his hair cut when he gets home! We will get the results of the test tomorrow.

Came back to the hospital & got ready to go over to the shopping mall with Lucy (translator who’s been really nice to us) as she’d mentioned about going on the rollercoaster with Keiran. Well, what can I say………..what a whimp she is!!!! Bless her cotton socks she didn’t want to go on anything, she said that it makes her sick. After a few minutes of trying to convince Lucy, she was not having any of it. Although, I think she enjoyed watching Keiran & I being thrown around of them. We all met up with Forest at a Korean restaurant. It was a lovely meal with great company! Lucy & Forest told us their chinese names & meanings. Their names are so pretty & have such fantastic meaning. Forest explained that he chose his name because of the film ‘Forest Gump’ which we laughed & explained that that is what we automatically thought of.

Tomorrow is Keiran’s last treatment via Lumbar. I’m still as nervous as the first one BUT knowing this is the last one makes me feel a little better.

Love to all
xxxxxx

2 comments December 4th, 2009


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