Keiran's SOD Blog

MAY 2010

May 14th, 2010

Sorry it’s been so long since our last update!!

Keiran is doing great……..So much so that we are in the process of returning in the next few months!!

Nothing has improved immensley since we’ve been home BUT we’ve noticed little things. The letter size has reduced by half the size & he can recognise them in his left eye m(weaker eye) as well as his right eye. We are still noticing the difference with his nystagumus & as for his bowel problems; it’s as if there was never a problem in the first place!?!?! I would love to go back to his primary school & prove to them that it was part of his condition. It is not stated anywhere that toilerty problems are linked with SOD but speak to other parents who have a child with the condition & it’s apparent that most of the kids suffer with a form of bowel problems………………….wish I knew that 8 yrs ago……Hind site is an amazing thing. Feeling alone back then; I would love to meet other families who have older children!!

On a brighter note, we are looking to retunr for a 2nd course of treatment in August this year. I’m hoping it will be a better experience & that conditions will be different this time round. Keiran is eager & excited with the hope that he will have more achievments this time and with his positive fibes I will soldier through. It will only be Keiran & I on this journey this time round. I’m just hoping he won’t be tooooooooooo bored with only me as his company. I’m sure that we will find many friends along the way & will find reassurance with those around us.

Will post more when we know dates etc about returning. Please wish us much luck.
Love Hayley & Keiran
xx

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