Keiran's SOD Blog

Final Treatment #8 via Lumbar

Yesterday afternoon was Keiran’s final treatment!! It was nice to know that he will not have to have any more needles stuck in his body!

Nurse Linda fitted his cannula with no problems & was done in seconds. Just a case of waiting around until 4pm to go up for the final time.

I’ve spent the past few weeks having to chase Dr Tony up on his ‘Dr Visit’ slots. He really doesn’t seem interested in the care of Keiran. I think he could do with taking a look at his ‘people’ skills’ and think about patient care & how to speak with families!!!!! After chasing him up for most of the day……..he finally came in the afternoon , with an attitude, & gave us the results of the VEP test. It confirmed what I actually thought – there has been no improvement this time around Keiran is upbeat & after I had a 5 minute blip I pulled myself together & focused on what mattered most …………….My SON!!! He’s been terrific through everything again & he’s still the same happy, most wonderful young man – who I am so very proud off and nothing in the world will ever change that!!!! I love you Keiran for who you are !!!!!

As Keiran went in for his last lumbar………..the same horrible feeling in the pit of my stomach lingered!!! Standing outside the doors for the last time really wasn’t any easier. He was a superstar again!! Valium caused him some discomfort again this time around but other than that no complaints. 6 hours of laying down soon passed & he was up eating and laughing. When he went to bed at 11pm he was out like a light, in seconds. As for me, I was exhausted as I’d only got about 3 hours sleep the nite before. My back pain is not easing & with the added stress of lumbar day I ended up throwing my guts up & spent the day/eve feeling quite drained.

Only 2 more days to go out here in China and we are coming home. I’m looking forward to seeing everyone, especially the girls & can’t wait to ‘smell home’. Both Keiran & I are looking forward to our own beds!!!

Loads of love
Hayley xxxx

1 comment August 28th, 2010

Sorry – Internet’s been playing up!!!

Sorry we haven’t posted over the past few days. The internet has been temperamental and I’ve not been feeling 100%. I’m suffering with back pain!!

Wednesday Keiran and I went for a bit of relaxation & headed out for a massage. It was lush!!! Although, Keiran and I didn’t enjoy the bit where they had their fingers in our ears. We managed to get in the kitchen just after 7pm and cooked a roast. It’s good to cook out here as it helps pass the time BUT it’s a nightmare trying to get in the kitchen. They could really do with having a larger one & having more cooking appliances & utensils. It’s nowhere big enough for the 16 families that are on the 18th floor!!!!

Thursday, Keiran and I were taken downtown to have another VEP test. We were very lucky as we were seen quite quickly & back to the ‘cell’ before we knew it. Forrest kindly came in and done Keiran’s afternoon therapy later.

We headed over to the shopping centre over the road & popped into get a few presents for the nurses & translators. I was planning to take keiran on the rides today but with a bad back was not a good idea. But he was fortunate at Jaden’s parents wanted to go on the roller coaster – so he was very pleased when they offered to take him on & I waited with Jaden. Thank you to Jill & Joe for making my Boy so happy!!!

Will be home really soon
xxx

Add comment August 28th, 2010