Another rough night more seizure activity but I guess this is 30 days. I thought seizure day was last week with only one seizure. There I go dreaming again. Had light therapy today acupucture and stretching is all we did. Kendra is pretty tired and so am I. Not getting much sleep for a few nights maybe tonight will be better.
Going to fly to Africa shortly but I will be back in China before my flight leaves and to finish up the stem cells. There is another therapy there I can have done for Kendra and it’s very cheap.
Just kidding unless there’s more therapy in Africa. And yes I would go there lol.
Come on Laura China’s not that far away. lol
love
Sarah and Elmo
I Love you Daddy – E lmo
April 3rd, 2007
Well we are back into the swing of therapy here and it is going well after the weekend.
Kendra is having a lot of seizure activity I spoke with the doctor this morning and he said it’s a good thing OKAY. But I guess it means Kendra cell are where they should be lol. The doctor said it is very normal to have a lot of increase seizure activity after the stem cells which we experienced before. We are scheduled for the spinal on Wednesday of this week and they will let me know the time Wednesday morning. I hope it will be later in the day so Kendra can just sleep all night again that worked out pretty well last time.
Well the other two families left this morning. Nancy, Rachael, Chrissy and Vickie, Cindy and Brooke they are on there way home. Rachael has a blog set up on the computer where Kendra’s is me and elmo signed the guess book. Both families helped us a lot we are going to miss them.
Didn’t get much sleep last night it was like a big party going on all night without the party. Everyone seemed to be gathering outside my door and talking for 20 mins. at a time, running down the hall, banging dishes you name it, it was happening last night. The noise didn’t stop until 1:15 am and had to get up at 5:30 am to make sure Kendra is ready for her therapy. Either one of us got up on time so either one of us got our shower this morning lol. So needless to say I am not in a good mood this morning. I think everyone else must start there therapy later in the morning.
talk to you all later
Love Sarah and Kendra
I love you Daddy
April 3rd, 2007
