Kyle’s Schizencephaly Blog

Getting Tired

July 14th, 2009

Today Kyle woke up and he was fine. He did his morning talks on the phone and then headed out for therapy. He started his therapy very lazily. Kyle is not a morning person so the 8:10 therapy session is not his favorite. I walked out of the therapy room to get a cup of ice and when I came back mom sent me ot again because she said he perked up and did better when I wasn’t in there, surprise, surprise! He did really well. He was able to balance front to back on the balance board and he said that was easy. He did great in standing therapy. He clasps his hands together and hits the ball somewhat like a volleyball player does. The doctor came in and looked at him and said he was doing good. He asked if Kyle was getting heavier because he is big. After standing therapy Kyle wanted to play the Playstation, but he started crying saying that his head was hurting. He laid down and skipped lunch, well he ate it a little later. We went for electric wave therapy and he was fine. He played the Wii for a long time and then did his acupressure. He did great in evening therapy. We take a walker and put it next to the bench and we help him pull up where he is kneeling on his knees. He is able to be sitting on his knees and pull himself up on his knees. Jasmine helps him to control his body and shift his weight back and forth. I rigged up the walker next to the bench and we put a stand up mirror in front of him and Jasmine says, Oh, you mother so clever.” I know how to rig things up to make it work for Kyle. After therapy we had it planned to walk across the street with 4 other families to the Lottie Mart to get frozen coffee. When we got into the coffe shop Kyle started whining saying that his head hurt. He eventually started crying and wanted to go back to the room. I figured his head must really be hurting because he skipped out on a frozen coffee to come back to the room. Dr. Tony says it may be a smell that is at the Lottie Mart to try to keep him in. So it looks like we’ll be homebound for the next few days. I just want him to feel better because he normally doesn’t complain about his head hurting. I really think it is sinus so we’ll stay around and have him get good and well. He was scheduled for a spinal stem cell treatment, but he conned his way out of that. We asked the doctor if we should switch Wednesday’s spinal with Friday’s IV and Kyle overheard us talking about an IV and he started chanting, “IV, IV,IV.” So the doctor said that he would switch tomorrow to an IV and keep Friday as an IV as well, since that was the treatment that we had added anyway. So he’s excited about not having another spinal tomorrow. I am hoping that he will feel better soon and will keep everyone updated.

Entry Filed under: schizencephaly,Uncategorized