Spinal Stem Cell Treatment #3
July 17th, 2009
Today Kyle was off from therapy, but he did have a spinal stem cell treatment this afternoon. It was the worst one yet. Not because Kyle had any pain, but because he did not want to have the spinal. I was telling Jacob this morning how brave Kyle was that he doesn’t even cry when they take him to the back to put him under anesthesia. Well, today I ate my words. Kyle has been very brave and he has gone through and done a lot. He was not happy about this spinal today. He was fine all of the way to the fourth floor. When we actually got into the OR room the waterworks started. He cried and screamed and begged me to take him out of there. It broke my heart and I wanted to just take him out of there. When the nurses came to take him for the anesthesia he screamed and cried, which made me start to cry. But, the spinal SCT went fine and he came out with groggy eyes. It’s been about three hours after the SCT and he’s wondering when he can eat, so he’s fine! He wants me to ask Dr. Tony to change his next spinal to an IV. I think because the doctor switched Wednesday’s from a spinal to an IV he thinks we can change them at anytime. We have one spinal SCT and one IV left so hopefully he can stick through it!
Well today was my birthday and Kyle and mom ordered a birthday cake for me. Kyle says it was my birthday in China. The translators ordered the cake for us. It was like a spongy cake with whipped cream and chocolate syrup on it. It was very nice. Many of the other families sat on the couches with us and ate some yummy birthday cake. Kyle actually kept it a secret for a day, which is something he has a very hard time doing!
Entry Filed under: schizencephaly,Uncategorized
2 Comments Add your own
1. Kathy Stilley | July 17th, 2009 at 7:43 pm
Happy Birthday Trish! Not many people can say they celebrated their birthday in China!
Kyle I am so proud of you. You are one brave little man! Keep working hard and you will be home before you know it.
Trish, I’m so proud of you too. I cannot imagine being in a foreign place receiving medical care. You are an AWESOME mom and I am proud of how strong you are. Can’t wait to see you and hear all about the trip and treatment.
2. Maw-Maw Flo | July 18th, 2009 at 1:36 am
Trish, I think Kyle just does not like that he cannot eat before the spinal and that he is hungry before the long hours pass that he has to wait to be able to eat. Tell him, Maw-Maw promises he will not get hungry when he gets home, I’ll fix him whatever he wants to eat . He has been so good to take all of those treatments and still be smiling. I love you Kyle and we are missing you’al a lot. Take good care of Mama and Meme. Love and Kisses!!!!
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