Kyle’s Schizencephaly Blog

Working Hard

July 20th, 2009

  Today was a full day of therapy and sight seeing. We were tired this morning because we were up late getting Maw Maw and Paw Paw from the airport. We got up on time and made it to therapy. Now we were on time but our therapist wasn’t, shame shame! Kyle was not overjoyed about therapy, but when is he ever? He stretched and worked on sitting up. During standing therapy he bounced and threw the ball. We had our regular break time and we took Mrs. Sandy and Mr. Dennis to the Lottie Mart. We ate at the Lotteria and Mr. Dennis ordered the squid rings. They look ike onion rings, but they are squid and it tasted like fish sticks. Kyle tried one with ketchup. He said he didn’t really like it. Mr. Dennis tells him he has to try a locust with him. I tried the squid, but not sure about a locust.

  Kyle had acupressure today and I thik that hurts him more than acupressure. His therapist showed me how to do acupressure on Kyle’s left hand. I am not sure what it does, but I’m going to ask a translator. He taught me and mom how to relieve hiccups using acupressure. I may have a new career. Jason asked if acupuncture is used in America, and I told him not very much and he wanted to know why. I told him that in America we just use medicine. During electric shock wave Kyle thinks it’s funny because the electric shocks make his arms jump  up and down. The therapist says that it’s supposed to do that. We watched Jasmine have acupressure on her hand today, she says it’s feeling better. Instead of another round of PT today Jason had Kyle do OT. He had him do a lot of things using his left hand. He did really well. When he is using that hand I can just see his mind working to try to get the hand to do what he wants it to do. He got really frustrated a few times, but he did great and he kept trying.

  We came to the room to do Kyle’s homework, well after he watched a movie Aunt Jackie sent him and ate Snow Caps. We finished his homework with minimal fighting. After we finished Kyle flopped onto the bed and I told him that I was not going to get him up. Well, he can sit up on the edge of the bed if someone holds his legs down. I didn’t help him at all and he worked himself over to the edge of the bed and then wiggled until he was sitting on the edge of the bed. He did it all on his own. It took him some time and I kept telling him to put his left hand down to help him, but he did it. Actually, as I was sitting here typing this he did it again! Now he just has to learn to sit up without hanging his legs off of the bed, but he’ll get it!

  We walked down to Century Park this evening. It is a park that highlights the Olympics. It’s a very pretty place. Lastly we went to the Holiday Inn to eat supper. Kyle chowed down on BBQ ribs, again! Now we are about ready to go to bed and ofcourse watching another movie that Aunt Jackie and Angelle sent us! 8 more days! We will leave here on Tuesday morning and be at home on Tuesday night. Because of the time difference we will leave and return on the same day. Kyle’s still having a hard time understanding that!

Entry Filed under: schizencephaly,Uncategorized