Kyle’s Schizencephaly Blog

Final Spinal Stem Cell Treatment

July 22nd, 2009

   Wooo Whooo! Kyle just had his final spinal stem cell treatment! It went so much better than last time. I talked to another parent last night and she told me that when her daughter was put under she was still in her wheelchair and they just gave her the anesthia through her IV. So I talked to the translators and the doctor so they can do that for Kyle as well, because last time he screamed and cried. This time the anesthialogist (Kayla that may not be spelled right) put the medicine into his IV while I was holding him and he went out and I laid him on the bed and they wheeled him to the back. He was only in the back for about 10 minutes and then we were on our way to the room. Kyle thinks he stayed in the operating room waiting area with me the whole time. Whatever makes him feel good about it, he can believe. After the treatment he went to sleep. This is something new. Usually he is wide awake! We were very happy that it was the last spinal and I am so happy that he did well.  So we will spend the evening relaxing.

 Yesterday Dr. Tony came in and I was explaining to him that Kyle has been scooting to the edge of the bed and pushing himself up to the sitting position. He asked if Kyle did his therapy that day and I told him yes. He said that Kyle had lots of energy. I said yes a lot. I just wish they could see him at the Chris Shivers Rodeo. He stays up until 1 or 2 o’clock in the morning jumping around with all of that energy that he has! Yesterday and today in therapy Jason has been making Kyle roll to the left side to get up, because that is harder for him. I love to see him do this because he actually puts his left hand down to push up some. The left hand doesn’t do as much work as the right hand, but it is away from his chest. Also today Kyle used the stander that is in the OT room. While he was standing we had him putting pegs into the pegboard with his right hand and taking them out and putting them into a bucket with his left hand. It’s very hard for him, but he did try. He got frustrated a few times, and I had to help him some, but once again he is trying. It’s neat to watchi his face as he is using that left hand. You can see the gears in his brain turning. Tomorrow will be another day full of therapy and Friday will be our last Stem Cell Treatment.

  Last night we went to a nice Italian restuarant called Napoli’s with several other families from the hospital. It was a very nice place. They had a piano player in the corner playing. I thought I could get used to that nice of a place! They brought out tons of appetizers; garlic bread, caesar salad, tuna salad, meats, and cheeses. Then after we ate all of that stuff they brought out the menu for us to order. We ordered the lasgna. It was good, but the sauce wasn’t as sweet as Barbara’s and Uncle Geno’s. We had a nice time, but we got in lae so that is why I didn’t uppdate last night. Well, 6 more days and then we’ll be home!!!

Entry Filed under: schizencephaly,Uncategorized