hello all, well. . . .i don`t feel tired like i did when we 1st got home, but i`m still weaker than before we went. any improvements from my SCT`s have faded away now. i recently filled out my 1st post treatment evaluation and the Dr. says this is normal and the stem cells need a few weeks to grow before they start working. i hope they`re right, i could use the boost. i just finished the book “Eric is winning” about a man that is beating his ALS. I strongly suggest everyone read it. i found it on-line while in china, it`s quite an eye opener. i`ve been riding the exercise bike everyday trying to maintain the strength i have, it really wears me out, but i think it`s better to do it than just lay around all day. stay positive and happy holidays, love Lenny
good morning, i feel a little better today, the last few days have been rough! the time change seems much harder to adjust to now, than it did when we arrived in China. i`m gonna try to start riding my exercise bike today. i`ll see how it goes & do small steps as i feel better. i want to give myself the best chance i can & all those stem cells too! ttys, Lenny
good morning, it`s great to be back home again! there`s nothin` like sleeping in your own bed. although i feel pretty run down from the flights & 14 hr. time difference, i`m hopeful that with a few days rest i`ll bounce back. that long flight from china to Chicago is just brutal!!! they were wonderful at the hospital, they threw me a surprise party the night before we left, everyone was there. the morning we left all the staff walked us out. we got lots of pictures. we have plenty to do here, unpack, 40 days of mail to open, laundry, etc it`s cold here too & they`re calling for snow tonight & tomorrow (yuck!) still it`s great to be here. good bye for now. love Lenny & Angie
good morning, it`s 7:00 a.m. here & we`re getting the last minute packing done. i feel pretty good today, i slept well. we leave the hosp. at 8:55 so i`ll be brief. we`ll text msg. you all when we land in Chicago. love, L & A
good morning, well it`s here, our last full day in China. we have a busy day ahead, packing and giving/getting good bye`s. i have PT this a.m. too. also some post treatment tests. i can`t believe it`s time to leave already. there were times when it seemed like it would never get here, but now it seems like it went quick. breakfast is almost over, so i`m gonna wrap it up now. i`ll leave a short post tomorrow a.m. ttyl, love L & A
hello everyone, i just finished my last SCT, it was by IV so it was a piece of cake. i`m havin` lunch now, then i`ll take a nap. if it works like last time, i should wake up feelin pretty groovy!!! tomorrow i`ll have PT in the morning & then we`ll finish packing. it`ll probably take the rest of the day to say all our good-byes, there are so many people to thank! also lots of farewell pictures to take. i`ll leave you for now. ttyl, love L & A
good morning, well. . . .just three days this week, then we are outta here!!! we did some packing yesterday. i still feel pretty good from my last two SCT`s. Angie went to the store & bought a big box of candy for all the nurses, & one for my Dr. & PT dude. we`ve been here the longest, everyone that was here when we arrived has gone home, & many others have came & went. a couple of babies have come for treatments. it`s tough to see them. it`s gettin` cold at home i see on-line, that`ll take some gettin` used to. Angie says hi & she can`t wait to see you all when we get home. i`m off to PT now, ttyl, love L & A
hello again, just got my last schedule (boy oh boy)!!! they moved my final SCT to Tues. it`s by IV so no six hrs of laying down afterwards (that`s nice). we`ll leave early Thurs. a.m., our flight from Hangzhou to Beijing departs at 10:55a.m. then we have a 4 hr. layover in Beijing. we leave at 5:20p.m. & arrive in Chicago at 4:25p.m. the same day (crazy). we land in St Louis at 8:00p.m. Angie`s brother Nick is picking us up from the airport. well enough of this goin` home talk, i gotta focus on my last couple days here, i still have PT & all my other stuff to do. i`ll talk to you later. love Lenny & Angie
hi guys, i`m back!!! . . . . did you miss me?. . . . i missed you. Fridays SCT went good, it was a bit more painful than my other ones. i get my last one will be Tuesday, then we leave Thursday morning early, our flight leaves Hangzhou at 10:55am (hooray)!!! we had a goin away party for Drew, it was nice everyone was there. if you would like to see some pictures from it log on to Drew’s blog @ : schemera.blogspot.com/ that`s all for now.
hello everyone, well #7 was a whopper!!! i felt 50% better within two hrs. of getting it. i just hope it lasts for a while. it was the 1st one of two that i traded for my BMT, the other one will be given to me FRI. by lumbar. then i will get my last regular one the WED. before we leave by IV. i still feel as good as i did yesterday after getting it. i should be able to whoop some ass in PT today!!! i`ll leave you all with a quote “ Being deeply loved by someone gives you strength, while loving someone deeply gives you courage” Lao Tzu Taoist philosopher 600 BC-531 BC
