7-14-2010 update
July 14th, 2010
London is in pre-school
Hello all;
We trust everyone is having a wonderful summer as we are all hot and humid here in upstate NY. Sorry it’s been a while since we have had an update, but there really hadn’t been a whole lot of changes to talk about in a while.
London has started pre-school this week and is doing very well. Her vocabulary continues to grow and has about 30 words now. London’s eyes are still dilating and she sees light. She also stairs at us now and her eyes do not wonder nearly as much as pre stem cell. She has also started feeding herself finger food which is a huge thing!! She has a texture problem so she would never feed herself and now she has begun that task.
We have had a little setback and not quite sure why but she is refusing to stand or try to walk. When you try to get her to stand she lifts her legs out and up and refuses to use them. We have had her to the DR. and nothing is wrong with her legs so hopefully this will change soon.
With school she is seeing her therapists 3 days a week now so her progress should move forward more quickly now. We were playing with the lighted ball the other night and she was cracking up. We have discovered she loves the pool and she is playing in it all the time this summer with great fun!
We are still holding off to see the eye Dr. until about November or December so we can have the full effect of the stem cell growth. Her specialist in VT and her regular Pediatrician are both happy with her progress.
Keep the prayers going for London please and we will update in a few weeks when we have more to report!
Blessings to all!
London and family
Entry Filed under: London's Journey,sod,Uncategorized
3 Comments Add your own
1. Sandy Callaghan | July 15th, 2010 at 8:19 pm
Hi Ruby and family,
Thanks for the update (could not get to it yesterday). Very happy to hear that London is making progress.
She is very fortunate to such a great Gramma. You will remain in our prayers.
Sandy
2. Michelle Martin | July 22nd, 2010 at 7:53 pm
I am soooo happy for you all – she is so fortunate to have such a great support system – keep in touch – love michelle and family
3. Diane Gilmartin | September 15th, 2010 at 6:56 am
I am sure her PT works with her on her leg strengthening and weight bearing. The PE person in me says to get a appropriate size tricycle, the one that the parent can push, strap her feet on with velcro and begin going outside for walks. Get her legs moving. I also wonder if becasue she can see some light that maybe the open space in front of her is scary. I would try having her stand with her belly against the couch, Sit behind her so you can prompt her tushy. Put her toys on the couch so she can put her arms up on top. It would be best if you have a couch where her toes can go under and she shins, knees, hips and chest are supported and you support in the back. As she begins to keep her legs straight, your support will lessen.
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