Comments for London Ruby's SOD Blog

Comment on December 13 2011 by Sarah Fox

Sarah Fox — Thu, 15 Mar 2012 23:59:57 +0000

Would be great to hear how London is doing now. We’ve been told here in the UK that there is no treatment for ONH yet it seems that in China there is. Why is this so?

Comment on January 23, 2011 by Michelle Martin

Michelle Martin — Mon, 24 Jan 2011 13:40:36 +0000

Sounds like little Miss London is growing into quite a young lady – it is wonderful to see such steps in her development – let me know about the fundraising you know I will be more than willing to help out!!!! love Michelle

Comment on January 23, 2011 by Judy

Judy — Sun, 23 Jan 2011 15:39:30 +0000

Sounds like you’re seeing many changes in London that are so positive!!! Can’t wait to see her, maybe sometime this year I can get out there. What a wonderful experience this has been and just imagine how fantastic it will be to see her go to China again for more stem cells. Hugs to all of you, kiss London for me.
Love you bunches,
Judy

Comment on 10/6/10 video for London by Judy

Judy — Thu, 07 Oct 2010 23:28:55 +0000

I’m just so happy to have London in our lives, she’s very special Ruby!!

Comment on 7-14-2010 update by Diane Gilmartin

Diane Gilmartin — Tue, 14 Sep 2010 22:56:44 +0000

I am sure her PT works with her on her leg strengthening and weight bearing. The PE person in me says to get a appropriate size tricycle, the one that the parent can push, strap her feet on with velcro and begin going outside for walks. Get her legs moving. I also wonder if becasue she can see some light that maybe the open space in front of her is scary. I would try having her stand with her belly against the couch, Sit behind her so you can prompt her tushy. Put her toys on the couch so she can put her arms up on top. It would be best if you have a couch where her toes can go under and she shins, knees, hips and chest are supported and you support in the back. As she begins to keep her legs straight, your support will lessen.

Comment on 9/15/2010 by Judy

Judy — Tue, 14 Sep 2010 22:37:33 +0000

You sure can tell she’s growing up, and her eyes seem to really be doing much better. It looks like they are focusing on things. I’m so happy for London and all of you. Maybe it’s time for me to do an updated video. Love you guys!

Comment on 7-14-2010 update by Michelle Martin

Michelle Martin — Thu, 22 Jul 2010 11:53:38 +0000

I am soooo happy for you all – she is so fortunate to have such a great support system – keep in touch – love michelle and family

Comment on 7-14-2010 update by Sandy Callaghan

Sandy Callaghan — Thu, 15 Jul 2010 12:19:58 +0000

Hi Ruby and family,
Thanks for the update (could not get to it yesterday). Very happy to hear that London is making progress.
She is very fortunate to such a great Gramma. You will remain in our prayers.
Sandy

Comment on April 16, 2010 by Michelle Martin

Michelle Martin — Sat, 17 Apr 2010 16:01:05 +0000

She looks terrific – i just love her – and am sooo happy for her!!! loveyou michelle

Comment on April 16, 2010 by Debra & Kenai Stover

Debra & Kenai Stover — Fri, 16 Apr 2010 19:12:24 +0000

YAY!!! Go, London, GO!