January 15th, 2008
Unfortunately, Lydia is experiencing some typical side effects from a spinal stem cell treatment: headache,vomitting, fever. Her temp is rising and is now 100+ and the nurse went to check with the doctor about more meds. She has had a rough day-first the headache,then vomitting, now fever. This morning an opthamologist tried to see her for an evaluation, however he wanted her to do the most difficult thing-keep her eyes open with a bright light shining in it. I tried to explain it was a very painful thing for her, but the doctor persisted and ,of course, was unsuccessful. He came to the room later in the afternoon with the same result and with Lydia crying uncontrollably. Then, due to her symptoms, IV fluids needed to be started again. Unfortunately her right hand IV was bad and burned, had to put in new IV on the left-more sobbing. The new IV was better, her favorite nurse Sophie put it in and I think that helped her. Now she is sleeping and I have to wake her to give her Ibuprofen. I hope tomorrow is better and this doesn’t happen after every procedure!
Entry Filed under: onh,Uncategorized
22 Comments Add your own
1. Genny PErso | January 15th, 2008 at 10:34 pm
Hello, I tried to leave a message yesterday but it didn’t take. My heart goes out to both of you–you guys are having a rough time it sounds. I wanted to let you know that mega prayers are being sent for you both. My mom and aunt go to Our Lady of Snows in Belleville Il. every month and pray with a man that apparently has visions from Mary. They have you and Lydia’s name and are all praying for you both. I wish I could give you a hug–poor little pooper–give yourselves a squeeze for me!!!!!!!!!
Gen
2. Stephony Stelzer | January 15th, 2008 at 11:04 pm
Lydia,
We are praying for you and thinking of you every single day and night. We know you are very brave and very strong. I’m sorry to hear you are not feeling good after your first treatment. You hang in there and be a big girl for Mommy!
Sending lots of hugs your way!
Love, The Stelzers
3. Karen | January 15th, 2008 at 11:31 pm
Lydia, you are the most awesome 6 year old I know. Things will certainly be better. Sometimes there’s bad before there’s good. Juli you are the most awesome of mom’s. Love you both and hang in there; it will get better. American Idol starts soon so I will definitely set my TIVO to start recording Ryan for when you return. Karen
4. Lexi! | January 15th, 2008 at 11:46 pm
Hello everyone i am so sad about what has happened Lydia. You sounded so good when i talked to you last, try to hang in there honey. Hopefully the medicine they give you will help relieve those symptoms. Breaks my heart to hear of you being sick makes me want to get sick. You are always on our minds back here Lydia, we will always pray for your well being. Doug and Juli i hope you two are doing ok and keeping it together. i know how hard it is to see your baby sick. i am so sorry. lets just pray only better from here on out.
love to all
Shelley and family
5. Alisa Nickelson | January 15th, 2008 at 11:55 pm
Hang in there, Lydia. We’re all praying for you here in St. Louis! Sometimes the side effects make treatments very unpleasant—Brooke can share that with you. You and Brooke will have some stories to share once you get back to the states!
Here’s hoping today goes better…. and the next, and the next….
Love, The Nickelson Six
6. danijela | January 16th, 2008 at 12:37 am
I send a big hug and support to little brave Lidija
I also have a doter which is blind,she have retinopathy of prematurity and she is 14 month’s old.We leave in Serbia so we like to contact Lidijas grandmother which leave in Belgrade.Can you please give us her number.
Grateful Danijela Stevic
7. The Threatt's | January 16th, 2008 at 12:49 am
Lydia,
We are thinking of you both and hope you are feeling better. You are so brave and strong, what a special girl you are. Juli, take care of each other.
Love to you both,
Phil, Dawn, Corey, Tyler & Anna
8. miss jennifer | January 16th, 2008 at 1:50 am
Lydia,
You are very brave and have your Lion with you. Hang on to him for help.
Julie,
I know this is a tough time for you. Hang in there and hopefully things will get better for all. I know if is very difficult for you to watch your baby have any discomfort at all.
Take care all!
Ms Jennifer
9. Joe Paulsen (POPS) | January 16th, 2008 at 1:52 am
Lydia, Julie and Doug,
Sounds like you all are being unbelieveably brave. I know that all your tough times right now will be rewarded. This blog is great and we all appreciate being able to keep up with your goings-on in China on a daily basis. Keep up the great attitude!!!! Sounds like it’s a good thing there are McDonalds and KFC to keep you strong. We all are praying for you.
Joe (POPS)
10. Kim Scholl | January 16th, 2008 at 2:37 am
HI Honeys.. well I figured out how to get on this thing.. oh my gosh,, what an experience. You both are my heroines.. so brave and strong. please know I think of you guys every single day. I will hope and pray for a better day for you Lydia and for you juli sleep and descent food.. big hugs.. Gus and Pippa are thinking of you too Lydia and Teddy cant wait until you are back so he can take you for a ride.. Kim
11. Shel Morse | January 16th, 2008 at 3:11 am
Hang in there Lydia you can do this. My daughter who has ONH is cheering you on.
12. Wendy Brown | January 16th, 2008 at 4:32 am
I am so sorry that Lydia is feeling so bad after the treatments. She is one tough, brave little girl and so is mom. I know this is hard on both of you. I have faith that it will all be worth it. My prayers are with you! Wendy
13. Michele Reznicek | January 16th, 2008 at 5:20 am
Lydia, you are SO BRAVE! I am very proud of you. I am sorry you don’t feel well after your treatments, and am very glad your mommy is there with you. I will pray for you and your mommy and cross my fingers that you have a good day soon. Guess what? Ryan Seacrest is cute. He wears really cool clothes and is very funny. Take care! I think you and your mommy are fabulous! JULIE: You are a fantastic mother. The epitome of womanhood! BRAVO!
14. Debbie | January 16th, 2008 at 5:30 am
Lydia-
I’m sorry to hear you’re not feeling well. It sounds like you were a brave girl for your treatment. I hope you start feeling better.
Juli-
Hang in there. I know it’s going to be tough, but you’re doing the right thing. Stay positive and feel all the love from Missouri being sent to you both in China.
Love, Debbie & Steve
15. Ms. Christy W. | January 16th, 2008 at 7:22 am
Hang on in there Lydia and keep on being brave. I know that you can do it. Remember how loud noises used to hurt your ears soooo much but after a while it got better. Well this too youill get better. I am praying for you and mom. I love you and when I see you I will have to have a lot of hugs for all the days that I haven’t seen you.
Ms. Christy
16. Molly | January 16th, 2008 at 8:23 am
Hi Lydia —
I hope you are feeling better — it is no fun when you don’t feel like yourself. Josie has kept you in her prayers, just as I have. She has a “God Bless” list every night, but in the middle of it she stops to say a special prayer for you and your doctors. Keep on being brave!
Pastor Molly
17. Scott Cutbirth | January 16th, 2008 at 8:41 am
We are praying for you Lydia! Hope you will be seeing things in a whole new light soon!
Scott & Kristin Cutbirth
18. Lexi! | January 16th, 2008 at 8:47 am
I hope that you all had a good night sleep and that you are feeling much better Lydia!! I hope to hear from you soon!! American Idol starts in about 10 minutes babe!! I hope you have a much better day and if you get out of the hospital you can get out get some fresh air and experience some more culture!! The weather looks to be good this weekend while you are there!! Wish you all the very best!!
Love
Shelley and family
19. Tiffany | January 16th, 2008 at 10:07 am
Hi Juli & Lydia,
I’m so sorry to hear that Lydia is feeling bad
I’m just sure there will be good results to come! Juli, I hope you’re not starving, the meat situation sounds horrible! I hope both of you get some rest – tell Lydia to keep being brave…I think about both of you all the time! Tiffany
20. Michelle | January 16th, 2008 at 1:23 pm
I hope that the next treatments will go better, especially if there can be some sedation. I’m sure that getting started is the hardest part. Lydia is right. The next time will go well because everyone knows what to expect. She is already mentally preparing herself for next time. What an amazing girl! Hang in there. I hope things are already better by the time you are reading this. Keep in touch.
21. Lanette | January 16th, 2008 at 9:06 pm
Hello! I have been thinking about you guys all the time. Lydia, last night I watched American Idol but I didn’t have any “candy corn” to eat while I was watching it! My thoughts and prayers are with you! Lanette
22. Parris Cardenas | February 4th, 2008 at 11:39 pm
Hi, I was wondering in your comment on your notes about things being rough the past couple of days. Is anything going wrong with the treatments or anything at the facility? Just curious….I wonder what it is like there at the facility, is it clean, has Lydia gotten sick again from treatments? Is there any improvement for her. Thanks so much….as I said before, we are trying to take my grandson over there soon, and would appreciate any info. I did get your mail about the cost of the trip. I am really nervous about taking a baby over there. thanks. Parris
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