1-16-08
What a rollercoaster ride today has been. Lydia’s fever cleared this morning and she was back to being herself. We had a good time playing, she played Bop It with another visually impaired gentleman from Missouri down the hall. She was even patient while he was learning the game. We also visited with another girl with ONH/SOD and her mom this afternoon-they arrived just a day or 2 ago.
Then Lydia started to get a bit needy, said her legs felt weak when she was standing. She has pain in lower back and bottom when sitting, tingling in legs when her legs or spine are on stretch (PT’s read:positive neural tension signs) Then she started to get her fever back. It was higher this time 38.8 C which had me worried. She has had some OTC meds to resuce the fever and now it is coming down. Momma kind of freaked out for a little while- sometimes having medical knowledge is a bad thing when your child is sick. It seems all is OK now, the nurse just took her temp and it is 37.0. Looks like I might be able to sleep tonight afterall……at least until she wakes up at 3:30 am and says “I’m tired of laying down!” (This is my usual wake up call)
Lets hope tomorrow is a wonderful and worry-free day!
18 comments January 16th, 2008
