1-21-08
We have enjoyed a few days of just being human. Some patients who were leaving soon hosted socials on the floor and was a good chance to get to know some of the patients and families. There are people here from all over the world – Australia,Scotland, Romania,US,Italy. We are all here for the same reason – HOPE. In our conversations we all have a common thread and we all very much needed these social events to just be and enjoy the company of other hopeful people.
We also took a trip to WestLake area – a much more urban area than we are in (for those in STL think Central West End/U City loop). Ate at a nice Italian restaurant , and did I eat. It felt really nice to have good food and feel full. Lydia also enjoyed having warm,delicious food. Unfortuanely it was raining but we took a walk around the area anyway. We had a driver/escort with us that helped hold umbrellas, figure out where we were,etc. Unfortunately he spoke no English but we got by with a lot of pointing and the use of a good map.
Big news for the day: Lydia used to be very sensitive to light in her eyes, not able to tolerate the pen light in her eyes (refer to one of the first posts for failure of opthamologist visit). Today, she was able to keep eyes open and not turn away when we were playing with a flashlight, she also said it did not hurt. She normally would have turned away, put a hand over her eyes and said “OUCH!” She is really starting to show some changes. It is pretty amazing that she is responding so quickly! She will have her 2nd spinal on Wednesday afternoon, hopefully she will not have the same reaction as last time. She had absolutely no problems with the IV stem cell treatment on Friday.
Again, our most heartfelt THANK YOUs to everyone who helped us be here and for all the prayers being said for Lydia.
22 comments January 21st, 2008
