1-25-08
January 25th, 2008
Lydia has done very well after her last spinal. We made it through the 6 hrs of post-op boredom. She had a slight headache for a couple of hours, otherwise no problems. The procedure seems to wear her out overall and sleeps a bit better for a couple of nights. Her 4th and 5th(final) spinal will be on Monday and Friday of next week.
Today and the next few days a camera crew is around to film what goes on here and interview some patients and families. I spoke with a reporter from the same crew last evening on the phone, she is interested in interviewing Lydia. We will see how it goes.
Todays exciting news: we did a test of Lydia’s vision today using a flashlight a varying points in the room. At one point she was to walk to where she saw the light and another time was to stand still and point to the light. We determined earlier that she was able to consistently perceive light at approx 6 feet in front of her(last time I tried it was about 1 foot in front). We asked her to locate the light at these varying points around the room and she was able to do so with almost 100% accuracy. The only time she didn’t go to the flashlight was when she went to a source of light coming from under the closed heavy curtains that was a stronger light than the flashlight. This was the first time I have had her point to a light and she had a little trouble with hand-eye coordination but did exceptionally well for the first time! Truly amazing!!!
Entry Filed under: onh,Uncategorized
20 Comments Add your own
1. miss jennifer | January 25th, 2008 at 8:10 pm
Super! Sounds like things are going great. What would Ms Lydia like from home? I am going to try to send a package today. I will give it a try. If it does not get there by the time you leave that is okay as well. I have a nephew who lives there in China and they send him packages. I am going to try his family’s route.
I am so glad that the reaction to the stem cell went so much better this time and the good results keep coming.
Ms Jennifer
2. Ms. S. Kemp | January 25th, 2008 at 9:23 pm
Juli and Lydia, I am glad to hear that Lydia did better with this treatment than the first one. It sounds like things are going well. We all enjoy reading your messages that you send! Thank you for keeping us posted! Lydia hang in there! You have been quite a trooper! We look forward to seeing the both of you soon!
Ms. Kemp
3. Lexi! | January 25th, 2008 at 9:47 pm
Hey Lydia i told Lexi, Landon and Uncle Luke about what you had to do today and they too thought that it was funny, but gross too!! Hope you are asleep now or we would have called you!! we are all saying TGIF back here as you are going to wake up to saturday morning!! Hope to hear from you tomorrow!! I love You babe!!!
Love Aunt Shelley and family
4. Grandma/Grandpa Black | January 25th, 2008 at 10:39 pm
Hi Lydia Glad to hear things went well again for you. What a brave sweet little girl. We are praying and hoping things continue to go well for you. Have mom and papa take you for some icecream today. Hopefully it won’t be raining out. We all LOVE you so much. Juli and Doug what a trooper you have. Thanks for the update Juli
5. genny perso | January 25th, 2008 at 10:46 pm
Yea! I’m soo glad everything went so well this time. I can’t believe that next week will be the last of her treatments already!! I hope you guys have a fun weekend–and find some good food to eat!! hugs and love GEnny
6. Karen | January 25th, 2008 at 10:50 pm
Awesome, awesome, awesome! Glad to hear our girls are doing well. Lydia you are suck a rock star!
7. Emily and Stephony Stelzer | January 25th, 2008 at 11:17 pm
Hi Lydia,
We are counting down the days until you get back! I hope you are having fun this weekend. The Sock Hop is on Feb 8, I hope you can come so we can dance! See you soon!
your friend, Emily
8. Tiffany | January 25th, 2008 at 11:25 pm
More fabulous news! I’m so excited for both of you! Tiffany
9. Genelle Cole | January 26th, 2008 at 12:16 am
Glad to hear this treatment went better. I think of you guys and continue to hope and pray for the best. Take care and enjoy the food(ha) and sights!
Genelle
10. Caroline Drake | January 26th, 2008 at 1:18 am
Hi. I teach at Bismarck and am friends with Ms. O. I have been emailing Ryan Seacrest to let him know that Lydia has a crush on him. I haven’t had any response yet, but I thought maybe we could make this a group effort. Here are the email addresses for him, if anyone else would like to try to contact him. Maybe we can bombard him with our emails and see what he will do.
Thanks
Caroline
ryan@kiisfm.com
ryan@eonline.com
11. Parris Cardenas | January 26th, 2008 at 3:05 am
Hi, My grandson is 5 months old diagnosed with SOD.We have talked to Ryleas mom, and are following your story to see how things are going for Lydia. If you can give us any information.a contact person for these procedures in China???It would be appreciated. It seems so surreal, CHINA! So far away, it is hard to know the procedures to try and get these kids over there!!! Any information would be appreciated. We are ready to try and get him over there.just do not know how to go about it! Thanks and good Luck! Parris Cardenas
12. Kim Olmsted | January 26th, 2008 at 3:34 am
Hi Lids and Juli,
So glad to hear all the positive things going on. I bet you all are tired of being tired since you all are so active. Debbie and I are getting a barbeque and auction together for March 8 at the High School so maybe you all can come to that. Tell Lids were even gonna have snowcones. Hope to hear from you soon. Hugs and Kisses. Aunt Kim and Uncle Chuck
13. Kelly Ayers | January 26th, 2008 at 9:51 am
congrats to uou Lydia hope each and every day will have more progress. I know your mom and dad are very very proud of you. Doug and Julie continue being strong and showing Lydia how to be brave, you are giving her an experience oif a lifetime. Good luck to you all Love Aunt Kelly UNcle Rich in cold cold Iowa
14. Erma Harrelson Jan.23 Potosi.Mo. | January 26th, 2008 at 10:09 am
Hi Lydia
I work with your Aunt Kim have been keeping up with you though her sounds if you are real busy Keep up the good work and we will be praying for you and your family.
Love and prayers Erma
15. Debbie | January 26th, 2008 at 12:06 pm
Lydia,
So glad to hear this treatment wasn’t as rough for you. It sounds like things are really happening fast. I am so proud how brave you have been and hope you continue seeing new things every day.
Juli,
How awesome this has to be for you! I think about you everyday and look forward to reading about your days. Thanks for keeping all of us at home informed. Hopefully you find some decent food to eat.
Doug
We haven’t met, but I’m so glad you are there with Lydia & Juli.
Please take care of them!
Love………Debbie & Steve
16. Michelle Schneider | January 26th, 2008 at 12:39 pm
Hi,
Ben, Curt, and I checked today to see how things are going for you. I am so glad to hear more good results and to hear that Lydia tolerated the treatment better. I am praying for you and thinking about you all of the time. What is happening is truly amazing!
Shell
17. granny | January 26th, 2008 at 1:18 pm
So good to talk to you. Hope the kids on the bus finally sat down and are behaving! Can’t wait for you to come home to help me feed the cows, listen to Randy and Toby and get “on the road again” with Willie.
Love you
18. South Wrestling Team | January 26th, 2008 at 2:33 pm
We are so proud of you Lydia! We are looking forward to seeing you in the wrestling room so you can tell us about all of the new things that you have learned and got to experience in China. We wish you the best and are keeping you in our prayers! Coach, we will have a Dew waiting for you when you get back to gods country, BLUE SPRINGS and that’s no bull butter! See ya soon, The guys
19. Cleo Kottwitz | January 29th, 2008 at 11:03 am
Judy and I are so happy to hear about the light sightings and hope that is a good sign and will improve. We also hope the “bug” is better soon! We know that vomiting is no fun.
We returned home from S. Georgia on Saturday, spent the day in St. Charles with Ann’s family at the death of Don’s father.
We’ll keep you in our prayers and hope to continue to improve. Look forward to seeing you at home soon!
Love you, Uncle Cleo & Judy
20. Mary Ann Daugherty | January 29th, 2008 at 11:27 pm
Hurray! Hurray! Thanks for the update and WONDERFUL, FABULOUS, EXCITING, TERRIFIC news!!! I keep jumping for joy for you all !!!!!!
Will keep you in our prayers as your adventure winds down until you are all safely back on American soil!! (and then some)
Mary Ann Daugherty
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