January 26th, 2008
Addendum to earlier post: you will need to go back to the Stem Cells China home page to access current patient blogs as I cannot get mine to refresh to include the new ones. Check out the other ONH sites- Carl,Hunter and Rylee. Ryan is another kiddo here with a nice family. Having brain farts right now and not able to recall the host of others here that are so kind. I’ll post them when I can remember.
Entry Filed under: onh,Uncategorized
7 Comments Add your own
1. Meg Darkjow | January 27th, 2008 at 3:30 am
Hey, i was trying to figure out forever how to send a comment, but overlooked the obvious & had to ask Jen. (She knows everything). Just wanted to let you guys know I am thinking about you, praying for you & look forward to reading the blog for more good news. You must be so overwhelmed & excited & off balance & exhausted & amazed. You both are very brave people. God speed, see you soon.
Meg
2. Neighbor Rita | January 27th, 2008 at 7:05 am
Speaking of home, Dude misses you and his regular routine. He hasn’t been going out much, and when he does it’s only for a few minutes. Part of the reason for that is probably the cold. We are having a few warm days before winter returns. He is eating and getting some rubs, so he’s doing fine.
Results so far sound very positive, and that’s great! Sending lots of prayers.
3. 7West | January 27th, 2008 at 8:20 am
WOW!!! We are so glad to hear that Lydia is improving. We will keep praying. Sending you lots of love.
4. Jessica Fend | January 27th, 2008 at 11:50 am
Hi! My son, Cody, is 2 and has ONH. We are from Pittsburgh, Pa and are currently raising money to travel to China in June for the stemcell treatments as well. Where are you guys from? Is there anything that you know now, that would have been easier if you new earlier– like advice to the “yet traveled” ONH family?? Look forward to talking to you! Here is Cody’s website that I made for him. Best of luck! Jessie Fend
http://www.webstarts.com/codyfend
Jam29Isabel_sru@yahoo.com
5. Kim Dencklau | January 30th, 2008 at 8:41 am
Doug, Juli & Lydia
Keep the news coming, we are enjoying every detail your able to tell us.
Just know that Lydia is in our thoughts 24 hrs each day until you return home
Kim & Kevin
6. Patty Espenson | January 30th, 2008 at 10:26 am
Hi, Doug~
I am excited to hear of the progress that Lydia is making with this new and exciting treatment. What courage & strength she has (just like her dad!). You and Juli must be so proud of her! I have prayed for you all and will continue to lift you up in my prayers. We’re hoping and praying for the gift of sight for Lydia!
Love,
Patty, Marty and family
7. Lanette | January 31st, 2008 at 5:24 am
Hello guys! Any big adventures today? Lydia, I am proud of you peeing in that hole in the ground. Alexis has a thing for only peeing on white toilets. Yes, that is a pain because all the parks in Columbia have gray, metal toilets. Last night the girls started swimming lessons at the University Rec Center. It was so cold when we left that their hair froze. That has never happened to either of them before and they were quite amazed that could even happen. Lydia, do you like to swim? It is suppose to snow here tomorrow. I wonder if they will have a snow day Friday? Erica is ready for summer vacation….boy, she has quite a while for that to happen!
You continue to be in my thoughts and prayers!
Take care,
Lanette
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