Archive for April, 2008

4-28-08

Well, we have been home for almost 3 months.  I believe we have readjusted to life.  No more waking up at 3am starving :) !   I am back to work full time and Lydia is back to school fulltime.  She continues to do well with her school work and has been heard more than once when she had to go home/stay home from school due to illness, “I want to stay at school and learn!!!”  I took about 10 minutes to get her out of the school nurse office and into the car.  She is such an avid learner.

So to the part everyone wants to know – how is she doing with her eyesight?   Well, Lydia has made some definite progress in the last few weeks.  A couple of weekends ago she was checking out her new big girl booster seat in the car, I was cleaning out the front and I poked my head in between the seats.  She said”Hi mom!” She said she saw my head and knew it was my head because she saw darkness in the shape of a circle.  Later that evening we she was playing with her Hello Kitty CD player which is pink and has a white kitty face.  She began to swing it on a hook and was watching it swing back and forth.  She said she could see darkness moving and then asked what the white kitty face was, I explained it and it was the color white.  She  was excited to finally learn a color!  About a week later, I was exiting a dark room into a dark hallway wearing a white shirt and she looked toward my torso and said “I see white!”    This weekend she randomly saw 2 cars parked on the street when we were out for a walk .  Also, as we were playing a game with 2 differernt colored balls I challenged her to look for hers with her eyes.  She was able to locate hers and mine, she knew they looked different (one orange, the other purple) and consistently knew which one was hers and which one was mine by their color.  I got to explain the different colors to her.  Tonight we played the same game with her locating the correct colored ball again, and again was consistent. Pretty cool……..

Thank you again to everyone who has given us support in so many ways, it is very much appreciated.  You are all a part of an extraordinary event. 

I am not sure when I will update the blog again, we are trying to live a “normal” life and just “be” for  a while.  I will certainly update periodically so please check back in a few weeks!   THANK YOU!!!!!!!!!!!

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