Mackenzie's Spastic Cerebral Palsy

Mackenzie received her last spinal today. Tomorrow and Sunday are free days for us, which means no therapy, no doctor visits, and no tests. Well except having blood work done again. Which will be 8:30am. Her eeg showed epilepsy but the neurologist examined her and said the medication would do more harm than her seizures because they don’t seem to be effecting her. We are leaving Tues at 4pm and will arrive home wed morning. Going to start hyperbaric oxygen therapy once we get home to help the stem cells multiply, then start looking for a new neurologist. Plan on having lunch with my baby boy whom I miss dearly. Then just relaxing for the rest of the week. therapies start back up the following week. We plan on going to the beach this weekend. just to get out and try to enjoy the day a little bit. The days have been long and I’m definitely ready to get home.Mackenzie’s appetite seems to have doubled if not tripled. Sorry for being all over the place with this post. I am tired and trying to fit everything in one post. She actually pulled herself up today in therapy (situps). She’s been letting the physical therapist do it for her. Thank you everyone for the prayers they are much needed and much appreciated. I hope all her therapist and her chiropractor will be ready for her starting November 2nd. She’s even more vocal and more demanding. What’s kind of funny is when we get close to the physical therapy room doors Mackenzie starts fussing. I think she’s had enough. When we ask if she’s ready to go home and see Brandon her eyes light up and start looking around.

Add comment October 24th, 2009

Mackenzie had an eeg this morning and will have her 3rd spinal today at 3pm. Going to be a long night.

1 comment October 14th, 2009

Since Mackenzie’s iv treatment her tone in her arms and legs have decreased and she is tracking the flashlight side to side. Also her newest word is mamaw.

4 comments October 5th, 2009

We arrived on Monday the 28th

We have arrived and received Mackenzie’s schedule. She will receive her first treatment via IV today after pt and ot. She will receive 6 treatments total, 1 iv and 5 lumbar puncture. She had x-ray and ekg yesterday

1 comment September 30th, 2009

Our Angel and the gift (stem cell treatments)

Mackenzie Cheyenne was born 5 weeks early by emergency c-section only weighing 4lb 5oz. I was told it took 12-15 minutes to revive her. She stayed at Kosair Children’s Hospital for 5 weeks. Scans showed significant damage covering her whole brain. The neurologist said it looked like a bomb went off in her head, then diagnosed her with spastic cerebral palsy. Later she was diagnosed with cortical vision impairment, quadriplegia, microcephalia, and epilepsy. She has received physical, occupational, speech, and massage therapy, along with acupuncture, chiropractic, and hyperbaric oxygen therapy. She has come such along way but still has a long way to go. I thank God every day we are able to take her to China for stem cell treatments. I have talked to many parents who have taken their children to different places for these treatments and I really feel China, well Beike Biotech is the best option. The people I have spoke with via phone and email have been very patient and helpful. I can’t believe we leave for Qingdao in 2 weeks. I am on an emotional rollercoaster. We have little things to do now before the trip. I will miss my son so much. It breaks my heart to leave him behind, but he understands why we are going.

5 comments September 11th, 2009