Comments for Mariannel's Viral Cerebellitis Blog http://blog.stemcellschina.com/mariannel Getting Beike's Stem Cell Treatments at Qingdao Chengyang Hospital Mon, 30 May 2011 17:42:10 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on 5 February, 2009 – rollercoaster by Bear http://blog.stemcellschina.com/mariannel/2009/02/06/4-february-2009-rollercoaster/comment-page-1/#comment-50 Bear Mon, 30 May 2011 17:42:10 +0000 http://blog.stemcellschina.com/mariannel/?p=145#comment-50 No more s***. All posts of this qulatiy from now on No more s***. All posts of this qulatiy from now on

]]> Comment on 7 October, 2008 – not even remotely funny entry by Marylouise http://blog.stemcellschina.com/mariannel/2008/10/08/7-october-2008-not-even-remotely-funny-entry/comment-page-1/#comment-49 Marylouise Mon, 30 May 2011 17:20:55 +0000 http://blog.stemcellschina.com/mariannel/?p=112#comment-49 The forum is a brighter place tahkns to your posts. Thanks! The forum is a brighter place tahkns to your posts. Thanks!

]]> Comment on 7 October, 2008 – not even remotely funny entry by Lynn http://blog.stemcellschina.com/mariannel/2008/10/08/7-october-2008-not-even-remotely-funny-entry/comment-page-1/#comment-47 Lynn Mon, 30 May 2011 08:04:51 +0000 http://blog.stemcellschina.com/mariannel/?p=112#comment-47 That's really thinikng out of the box. Thanks! That’s really thinikng out of the box. Thanks!

]]> Comment on 23 May, 2009 – 14+ months on by Doug Redman http://blog.stemcellschina.com/mariannel/2009/05/24/23-may-2009-14-months-on/comment-page-1/#comment-45 Doug Redman Sun, 07 Jun 2009 19:19:44 +0000 http://blog.stemcellschina.com/mariannel/?p=262#comment-45 I Just read your last post, my son who has Spino Cerebellar Ataxia Type 7 arrived in China a week ago with his mother. I'm encouraged by your comments. You mentioned HBO treatments, is that hyperbaric treatment ? If so do you recommend it, my son has lost much of his vision due to the SCA and anything we can do we will. You can read his blog on the stemcellschina web his name is Nate under ataxia. Thanks Doug Doug@gidevelopment.com I Just read your last post, my son who has Spino Cerebellar Ataxia Type 7 arrived in China a week ago with his mother. I’m encouraged by your comments. You mentioned HBO treatments, is that hyperbaric treatment ? If so do you recommend it, my son has lost much of his vision due to the SCA and anything we can do we will. You can read his blog on the stemcellschina web his name is Nate under ataxia.
Thanks
Doug
Doug@gidevelopment.com

]]> Comment on 7 October, 2008 – not even remotely funny entry by Birgite Lindum http://blog.stemcellschina.com/mariannel/2008/10/08/7-october-2008-not-even-remotely-funny-entry/comment-page-1/#comment-44 Birgite Lindum Sun, 19 Oct 2008 22:02:30 +0000 http://blog.stemcellschina.com/mariannel/?p=112#comment-44 Dear Marianne, it is SO good to reed your blog. When I see you I often forget to ask you how it is going. Even though you might not think that any miracle has happened, you are still able to do a lot more than before you went to China. I remember beeing out there with you, from when I first got there, to when we left again, the developement that had happened. You were suddently able to stand on your own for about 5 minutes...when I got there you just didn't!!...-not to mention the currage to put oneself into a china-cap and pray to to-what ever- to still be alive at the end of the trip!!! Even though that last experience was a little...well..alternative...I somehow never really told you how much I appreciated to bee there with you. Thankyou for taking me with you to China...for me that was a little miracle on its own...I just ask: when else would the two of us have taken a taxi together in Asia!? Now you have even taken your steps down from 22 to 9. I really admire all your strength and braveness. Seeing how hard work you did in China and knowing all the hard work you do now, it hasn't been useless. All the best to you and Al in London, Birgitte Dear Marianne,

it is SO good to reed your blog. When I see you I often forget to ask you how it is going.

Even though you might not think that any miracle has happened, you are still able to do a lot more than before you went to China. I remember beeing out there with you, from when I first got there, to when we left again, the developement that had happened. You were suddently able to stand on your own for about 5 minutes…when I got there you just didn’t!!…-not to mention the currage to put oneself into a china-cap and pray to to-what ever- to still be alive at the end of the trip!!! Even though that last experience was a little…well..alternative…I somehow never really told you how much I appreciated to bee there with you. Thankyou for taking me with you to China…for me that was a little miracle on its own…I just ask: when else would the two of us have taken a taxi together in Asia!?

Now you have even taken your steps down from 22 to 9. I really admire all your strength and braveness. Seeing how hard work you did in China and knowing all the hard work you do now, it hasn’t been useless.

All the best to you and Al in London,

Birgitte

]]> Comment on 5 August, 2008 – aah, space! by Ida http://blog.stemcellschina.com/mariannel/2008/08/06/5-august-2008-ah-space/comment-page-1/#comment-43 Ida Wed, 20 Aug 2008 12:45:35 +0000 http://blog.stemcellschina.com/mariannel/2008/08/06/5-august-2008-ah-space/#comment-43 Hi Marianne and family I'm glad to hear that you are experiencing some improvement, although slowly. And was very amused by the description of Nicholas' birthday party - you must have had to rely on all of your patience-reserves to get through that. :) Personally I am relying on those of my own right now, as I am temporarily teaching a class of chineese students in business english, at the local business college. When asking them what they want for their future, job-wise, they all said something like "go China have nice job". Fine....I can work with that.....sure...! Am thinking about you and wishing you further strength. Hugs from Ida Hi Marianne and family

I’m glad to hear that you are experiencing some improvement, although slowly. And was very amused by the description of Nicholas’ birthday party – you must have had to rely on all of your patience-reserves to get through that. :) Personally I am relying on those of my own right now, as I am temporarily teaching a class of chineese students in business english, at the local business college. When asking them what they want for their future, job-wise, they all said something like “go China have nice job”. Fine….I can work with that…..sure…! Am thinking about you and wishing you further strength.

Hugs from Ida

]]> Comment on 14 April, 2008 – grow up! by Bonnie Miller http://blog.stemcellschina.com/mariannel/2008/04/14/14-april-2008-grow-up/comment-page-1/#comment-42 Bonnie Miller Mon, 14 Apr 2008 20:55:14 +0000 http://blog.stemcellschina.com/mariannel/2008/04/14/14-april-2008-grow-up/#comment-42 Hi, I have been followiing your blog and was wondering if you could contact me. I am taking my daughter back to China for the second time but first time in Qingdao. Last year we were in Hangzhou. So I have some questions and was wondering if you mind helping answer some of them. I would appreciate it. Keep up the hard work, I think you are doin great!! You can also visit my daughter's site at www.caringbridge.org/visit/laurenashley Thank you~Bonnie bonbon3203@aol.com Hi, I have been followiing your blog and was wondering if you could contact me. I am taking my daughter back to China for the second time but first time in Qingdao. Last year we were in Hangzhou. So I have some questions and was wondering if you mind helping answer some of them. I would appreciate it. Keep up the hard work, I think you are doin great!! You can also visit my daughter’s site at http://www.caringbridge.org/visit/laurenashley
Thank you~Bonnie
bonbon3203@aol.com

]]> Comment on 31 March, 2008 – if only by Kathryn & Troy http://blog.stemcellschina.com/mariannel/2008/03/31/31-march-2008-if-only/comment-page-1/#comment-41 Kathryn & Troy Tue, 01 Apr 2008 12:52:02 +0000 http://blog.stemcellschina.com/mariannel/2008/03/31/31-march-2008-if-only/#comment-41 Hello again from Manchester! It's fantastic to hear about the progress you are making. We're both delighted for you and all your family. Keep the updates coming! PS I reckon Al came up with option 3... Shocking! PPS Word today was 'fatuous' - brilliant! Hello again from Manchester!

It’s fantastic to hear about the progress you are making. We’re both delighted for you and all your family. Keep the updates coming!

PS I reckon Al came up with option 3… Shocking!
PPS Word today was ‘fatuous’ – brilliant!

]]> Comment on 13 March, 2008 – nope, DEFINITELY not good by Shirley Larsen, Denmark http://blog.stemcellschina.com/mariannel/2008/03/13/13-march-2008-nope-definitely-not-good/comment-page-1/#comment-40 Shirley Larsen, Denmark Fri, 14 Mar 2008 07:18:09 +0000 http://blog.stemcellschina.com/mariannel/2008/03/13/13-march-2008-nope-definitely-not-good/#comment-40 Have a good trip home, Marianne, to a chilly, rainy DK, where spring has suddenly become coy and hidden itself. It's probably waiting for you to come home. Enjoy your last day saying goodbye to all the friends you have undoubtedly made there, I'm sure "that gorgeous blonde with the wobbly legs" will long be remembered :-) Have a good trip home, Marianne, to a chilly, rainy DK, where spring has suddenly become coy and hidden itself. It’s probably waiting for you to come home. Enjoy your last day saying goodbye to all the friends you have undoubtedly made there, I’m sure “that gorgeous blonde with the wobbly legs” will long be remembered :-)

]]> Comment on 13 March, 2008 – nope, DEFINITELY not good by Karsten "The Pope" http://blog.stemcellschina.com/mariannel/2008/03/13/13-march-2008-nope-definitely-not-good/comment-page-1/#comment-39 Karsten "The Pope" Thu, 13 Mar 2008 18:51:45 +0000 http://blog.stemcellschina.com/mariannel/2008/03/13/13-march-2008-nope-definitely-not-good/#comment-39 Kære Marianne: Jeg har længe villet skrive dig en lille hilsen, men det skulle sÃ¥ først blive idag. Stine og jeg, som begge har arbejdet i medicinalbranchen i mange Ã¥r, har talt meget om din tur til Kina og om de muligheder som stamceller bringer til hele menneskeheden. Vi hÃ¥ber og tror fast pÃ¥, at det vil hjælpe dig fremad. Vi hÃ¥ber, at du har det godt omstændighederne til trods - det er langt væk fra Danmark. ForÃ¥ret er ikke kommet for alvor, sÃ¥ du nÃ¥r det sagtens. Din blog tyder pÃ¥ godt humør og ekstremt hÃ¥rdt arbejde. Men bare genoptræningen af ubrugt muskelvæv kan jo tage meget lang tid! Skæbnen ville, at vores første søn, Oscar, blev født med en defekt hjerteklap. Det generer ham ikke endnu, men det vil det gøre mere og mere som tiden gÃ¥r og en dag skal den skiftes ud. Det kan være nødvendigt om 1 Ã¥r, 10 Ã¥r eller 50 Ã¥r - det kan ikke forudsiges men udskfites skal den. Da vi fik det at vide brugte jeg en uge pÃ¥ internettet og stødte hurtigt pÃ¥ ny viden om stamceller og fik en tro pÃ¥, at stamceller mÃ¥ske endda kan reparere hans hjerteklap, nÃ¥r behovet melder sig. Det er jo bare utroligt fascinerende. Da jeg i 2005 var til samtale hos Celgene, en af USAs førende forskervirksomheder pÃ¥ dette felt, læste jeg igen op pÃ¥ emnet. Det var et meget betagende besøg jeg aflagde dem i New Jersey - og jeg har lige siden været ekstremt betaget af de muligheder stamcelleterapi byder pÃ¥. Bedste hilsner - og bid nu tænderne sammen, nÃ¥r du skal op at stÃ¥. Hvad enten vi kan lide det eller ej er der desværre nok en del sandhed i "no pain, no gain". Og god tur hjem, nÃ¥r dagen oprinder, Stine & Karsten Kære Marianne:

Jeg har længe villet skrive dig en lille hilsen, men det skulle så først blive idag. Stine og jeg, som begge har arbejdet i medicinalbranchen i mange år, har talt meget om din tur til Kina og om de muligheder som stamceller bringer til hele menneskeheden. Vi håber og tror fast på, at det vil hjælpe dig fremad.

Vi hÃ¥ber, at du har det godt omstændighederne til trods – det er langt væk fra Danmark. ForÃ¥ret er ikke kommet for alvor, sÃ¥ du nÃ¥r det sagtens. Din blog tyder pÃ¥ godt humør og ekstremt hÃ¥rdt arbejde. Men bare genoptræningen af ubrugt muskelvæv kan jo tage meget lang tid!

Skæbnen ville, at vores første søn, Oscar, blev født med en defekt hjerteklap. Det generer ham ikke endnu, men det vil det gøre mere og mere som tiden gÃ¥r og en dag skal den skiftes ud. Det kan være nødvendigt om 1 Ã¥r, 10 Ã¥r eller 50 Ã¥r – det kan ikke forudsiges men udskfites skal den. Da vi fik det at vide brugte jeg en uge pÃ¥ internettet og stødte hurtigt pÃ¥ ny viden om stamceller og fik en tro pÃ¥, at stamceller mÃ¥ske endda kan reparere hans hjerteklap, nÃ¥r behovet melder sig. Det er jo bare utroligt fascinerende. Da jeg i 2005 var til samtale hos Celgene, en af USAs førende forskervirksomheder pÃ¥ dette felt, læste jeg igen op pÃ¥ emnet. Det var et meget betagende besøg jeg aflagde dem i New Jersey – og jeg har lige siden været ekstremt betaget af de muligheder stamcelleterapi byder pÃ¥.

Bedste hilsner – og bid nu tænderne sammen, nÃ¥r du skal op at stÃ¥. Hvad enten vi kan lide det eller ej er der desværre nok en del sandhed i “no pain, no gain”.

Og god tur hjem, når dagen oprinder,
Stine & Karsten

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