Day 13 10/28/08
Pretty much the same as yesterday. Therapy and more therapy. Found out I will be getting that seventh injection and only one more spinal! I told the doctors I would do whatever was necessary, but this is the way they want to go. The doctors examined me again today and said I’m making excellent progress. IV tomorrow, spinal Friday, and 3 more IVs after that. I’ve been doing PT once a week for a year and a half (all that insurance allows) but when I get back, I’m going to step it up to three times a week for the next three months. It’s very important to give the stems their marching orders early on.
We’re losing another couple and a mom and grandson from Nebraska tomorrow, drinks and appetizers tonight. A mom and her daughter(early 20′s) from New Zealand arrived yesterday. This girl was 21 years old when she died of a heart attack. They brought her back and she died three more times in the ambulance. Oxygen deprivation.
So people come and go, and one problem is more horrifying than the last. Makes you realize that your problems aren’t so bad. A lot of people are telling me how brave I am for coming here alone. I’m not brave. I’m just doing what I have to do. The brave ones are the 5 year olds with Cerebral Palsy and Optic Nerve Hypoplasia and autism and oxygen deprivation from drowning that are here, smiling despite their challenges. And their parents. That’s bravery. I’m not religious, but I thank God that my problem is not genetic. I don’t know if I could face that.
9 comments October 28th, 2008
